| Alabama | Alabama Rare Disease Advisory Council | Active | [email protected] |
| Arizona | Arizona Rare Disease Advisory Council | Active | [email protected] |
| California | Jacqueline Marie Zbur Rare Disease Advisory Council | Active | Contact NORD for Information |
| Colorado | Colorado Rare Disease Advisory Council | Active | [email protected] |
| Connecticut | Connecticut Rare Disease Advisory Council | Active | [email protected] |
| Florida | Rare Disease Advisory Council | Active | [email protected] |
| Delaware | Rare Disease Advisory Council | Active | [email protected] |
| Georgia | Georgia Rare Disease Advisory Council | Active | [email protected] |
| Illinois | Illinois Rare Diseases Commission | Active | 217-782-0843 |
| Indiana | Rare Disease Advisory Council | Active | 317-233-1325 |
| Kentucky | Rare Disease Advisory Council | Dormant | Contact NORD for Information |
| Louisiana | Louisiana Rare Disease Advisory Council | Active | [email protected] |
| Maine | Rare Disease Advisory Council | Implementing | (207) 287-3707 |
| Maryland | Rare Disease Advisory Council | Active | [email protected] |
| Massachusetts | Rare Disease Advisory Council | Active | [email protected] |
| Michigan | Michigan Rare Disease Advisory Council | Active | [email protected] |
| Minnesota | Minnesota Rare Disease Advisory Council | Active | [email protected] |
| Mississippi | Mississippi | Active | [email protected] |
| Missouri | Advisory Council on Rare Diseases and Personalized Medicine | Active | [email protected] |
| Montana | Rare Disease Advisory Council | Implementing | 406-444-3111 |
| Nevada | Rare Disease Advisory Council | Active | [email protected] |
| New Hampshire | Rare Disease Advisory Council | Active | 603-271-4517 |
| New Jersey | Rare Disease Advisory Council | Active | [email protected] |
| New York | New York State Rare Disease Advisory Council | Implementing | [email protected] |
| North Carolina | Rare Disease Advisory Council | Active | Contact NORD for Information |
| Ohio | Ohio Rare Disease Advisory Council | Implementing | [email protected] |
| Pennsylvania | Pennsylvania Rare Disease Advisory Council | Reauthorization Process | [email protected] |
| Rhode Island | Rare Disease Advisory Council | Implementing | Contact NORD for Information |
| South Carolina | South Carolina Rare Disease Advisory Council | Active | https://rarediseasesc.org/ |
| Tennessee | Tennessee Rare Disease Advisory Council | Active | [email protected] |
| Utah | Utah Rare Disease Advisory Council | Active | https://utahrdac.org/contact/ |
| Vermont | Vermont Rare Disease Advisory Council | Implementing | Contact NORD for Information |
| Virginia | Virginia Rare Disease Council | Active | https://www.vdh.virginia.gov/rare-disease-council/contact-us/ |
| West Virginia | West Virginia Advisory Council on Rare Diseases | Expired | https://wvrare.org/ |
