Events take place across the country in recognition of Rare Disease Day each year! You can get involved by attending or hosting your own event. How will you be spending the day or days leading up to Rare Disease Day? Tell the world! Find an event to attend listed here. If your event is not already listed, fill out this form so we can share it broadly on this website and through social media!
Outside of the United States, hundreds of events take place in honor of Rare Disease Day around the world! Our sister organization and founder of Rare Disease Day, EURORDIS, lists events taking place internationally.
Interested in hosting an event in your state? Submit your own event now. Want to get involved but don’t know where to start? View some suggestions.
Hosting a Rare Disease Day event in your hospital, school, community, or even virtually is a great way to commemorate the day and raise awareness for rare diseases. Use the resources below to help you plan the awareness event that you are imagining.
Whether it’s a lobby tabling event or something more elaborate, recognizing Rare Disease Day in your hospital or medical center makes an important statement about commitment to rare disease patients. Read about what others have done and download helpful resources here.
Students organize Rare Disease Day events in schools and universities across the U.S. and NORD is happy to help with suggestions, resources and – when possible – speakers. Campus events promote awareness and provide an important learning opportunity for students preparing for health-related careers. Events within grade schools help children and adolescents understand the challenges of those impacted by rare diseases at an early change and create a better sense of understanding.
Campus events promote awareness and provide an enriching learning experience for students preparing for health-related careers. Students should feel free to download and utilize the following resources to prepare for their university events. For more information about hosting these events, email [email protected].
How-To Guide: How to Host a University Event
How-To Guide: How to Host a Panel
For the past several years, NORD has provided a curriculum supplement for high school teachers to download and use for Rare Disease Day that has been very well received. That resource is available here, along with other suggestions for high school students and teachers.
Children of all ages can learn important lessons about understanding and acceptance through Rare Disease Day events with an anti-bullying message or other age-appropriate themes. For help in planning these events, check out the resources below.
Anyone can host a live event within their local community to raise awareness and participate in Rare Disease Day! The possibilities are endless and so we have developed resources to help you brainstorm event ideas and resources to then help you plan those events.
Rare Disease Day Events are not limited to in-person events and may take place online! These virtual events are a wonderful way to be include those who may be unable to leave their homes or their places of work on the day. Ideas for different types of Rare Disease Day events are listed below. In order to host a successful virtual event, online promotion is critical. Make sure to take a look at our 2019 social media toolkit for promotion tips.
On behalf of Peers Alley Media and Organizing Committee, we welcome you and are very proud to host our “Euro Chemistry Congress” which will be held during April 02-03, 2020 in Paris, France. The congress venue is located in the heart of the city of Paris presents a strategic level program. Chemistry Conferences 2020 Paris offers a unique opportunity for investigators across the globe to meet, network and perceive new scientific innovations. This year’s annual congress highlights the theme “Novel…
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Please join us for a Genetics Pop-Up honoring #RareDiseaseDay2020! What is a genetics pop-up you might ask? A Genetics Pop-up is a gathering, held in the local community (Lafayette, CO), spearheaded by a genetic ambassador (Jamie), to share genetic resources with families and those who work with families impacted by genetic conditions. The Mountain States Regional Genetics Network (www.mountainstatesgenetics.org) is holding genetics-pop ups in all 8 states in our region (AZ, CO, MT, NV, NM, TX, UT, WY). You can…
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We are looking for Speakers and Delegates who are interested to participate at our upcoming 29th Edition of World Congress on Nursing Education & Research during May 25-26, 2020 Dublin, Ireland. Nursing Education-2020 aims to discover advances in health practice, management and education with the leading world doctors, registered nurses, health care professionals, professors, research fellows, universities, students, directors of association and societies. Nursing Education-2020 aims to discover advances in health practice, management and education with the leading world doctors,…
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The University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD) at Cincinnati Children’s Hospital (CCHMC) will host the Rubinstein-Taybi Syndrome (RTS) National Conference, July 9 – July 11, 2020. The conference will be held at the Cincinnati Marriott at RiverCenter and the Northern Kentucky Convention Center, both located in Covington, Kentucky, and conveniently connected by a skywalk. The conference is geared towards families of children and adults with RTS across the lifespan. It has been many years since an…
Find out more »Peers Alley Media Conferences would like to invite all the outstanding Polymer Chemistry Professionals, Industrial Delegates, Renowned speakers, Professors, Scientists, Educationalists, Researchers and Students from all around the world to attend International Congress on Advances in Polymer Science and Engineering from July 20-21, 2020 in Vancouver, Canada.
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Episirus Scientifica welcomes you to attend 2020 World Neuroscience and Psychiatry Conference (2020WNPC) held during September 8-9, 2020 at Bangkok, Thailand with the theme “Melioration in Innovations with advancement in Mental Health and Neurology”. This international meet anticipates hundreds of participants including keynote speakers, Oral presentations by renowned speakers and poster presenters besides delegates around the world. This conference perhaps a giant event that creates an ideal platform to share expertise addressing current advancements involved in Neuroscience, Psychiatry and Neurology.…
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2020 World Heart and Cardiothoracic Surgery Conference (2020WHCS) is a premiere educational Heart Congress in the field of Cardiothoracic Surgery and Cardiology that rotate between continents and are organized in collaboration with national and international Cardiac societies and associations. This International Heart and Cardiothoracic Surgery Congress 2020WHCS is going to be held at Bangkok, Thailand during September 8-9, 2020 around the theme ‘Discovering the Science of Heart’. The World Heart and Cardiothoracic Surgery Conference is targeted to the international Cardiology,…
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Episirus Scientifica welcomes you to attend 2020 World Critical Care and Anesthesiology Conference (2020WCAC) to be held during September 8-9, 2020, in Bangkok,Thailand around the theme ‘Thought Provoking Solutions to Improve the Crisis of Critical Care’’. This international meet (2020WCAC) anticipates hundreds of participants including keynote speakers, Oral presentations by renowned speakers and poster presenters besides delegates around the world. This conference perhaps a giant event that creates an ideal platform to share expertise addressing current advancements involved in Critical…
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