Dec. 13, 2018
Posted by Lisa Sencen
For more than 35 years, NORD has been the voice of the rare disease community. Whether it’s advocating in Washington, protecting the Orphan Drug Act, working with the FDA to integrate the patient’s voice or providing assistance to those in need, NORD is the organization the rare disease community and patients rely on.
And, we rely on you!
Without your continued and ongoing support, we would not be able to deliver these valuable services to patients in need.
As we enter 2019, I hope you’ll join me in supporting the one in ten Americans whose lives have been affected by rare diseases.
With your help, NORD can continue to:
- Provide access to assistance programs that have helped more than 8,000 families so far this year.
- Build awareness and education programs to promote earlier diagnosis and state-of-the-art care for patients.
- Award seed funding to researchers seeking to better understand rare diseases and to develop innovative new treatments for patients with rare diseases
Your support makes a difference! Please consider making a tax-deductible donation today and remember that NORD is 4-star rated by Charity Navigator, and that 90% of all patient assistance gifts go directly back to patients.
On behalf of all of us at NORD, thank you for helping those in need this holiday season.
Alone we are rare. Together, we are strong.
Peter L. Saltonstall
President and CEO of NORD