Year-End Message from NORD’s President and CEO

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For more than 35 years, NORD has been the voice of the rare disease community. Whether it’s advocating in Washington, protecting the Orphan Drug Act, working with the FDA to integrate the patient’s voice or providing assistance to those in need, NORD is the organization the rare disease community and patients rely on.

And, we rely on you!

Without your continued and ongoing support, we would not be able to deliver these valuable services to patients in need.

As we enter 2019, I hope you’ll join me in supporting the one in ten Americans whose lives have been affected by rare diseases.

With your help, NORD can continue to:

Your support makes a difference! Please consider making a tax-deductible donation today and remember that NORD is 4-star rated by Charity Navigator, and that 90% of all patient assistance gifts go directly back to patients.

On behalf of all of us at NORD, thank you for helping those in need this holiday season.

Alone we are rare. Together, we are strong.


Peter L. Saltonstall
President and CEO of NORD