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Board of Directors

The NORD Board of Directors includes representatives of NORD Member Organizations as well as individuals who have demonstrated leadership in serving the rare disease patient community.

Kay Holcombe, MS, Chair

Senior Advisor, Milken Institute
Board, Critical Path Institute

Steven A. Grossman, Secretary

HPS Group, LLC

Rick Barr, MD

Arkansas Children’s Hospital

Ronald J. Bartek

Friedreich’s Ataxia Research Alliance (FARA)

Susan A. Berry, MD

University of Minnesota

Susan Hedstrom

Foundation for Prader-Willi Research

Dennis Jackman, MBA

Independent Board and Organizational Consultant

Shafali Spurling Jeste, MD

Children’s Hospital Los Angeles
USC Keck School of Medicine

Jim Palma

TargetCancer Foundation

Phillip L. Pearl, MD

Boston Children’s Hospital

Mike Porath

The Mighty

Peter L. Saltonstall

National Organization for Rare Disorders