Board of Directors
The NORD Board of Directors includes representatives of NORD Member Organizations as well as individuals who have demonstrated leadership in serving the rare disease patient community.
Marshall Summar, M.D., Chairman
Children’s National Medical Center
Sheldon Schuster Ph.D., Vice Chairman
Keck Graduate Institute of Applied Life Sciences
Steven A. Grossman, Secretary
HPS Group, LLC
Rick Barr, M.D.
Arkansas Children’s Hospital
Ronald J. Bartek
Friedreich’s Ataxia Research Alliance (FARA)
Foundation for Prader-Willi Research
Critical Path Institute
Aplastic Anemia & MDS International Foundation
Shafali Spurling Jeste, M.D.
Moebius Syndrome Foundation
Phillip L. Pearl, M.D.
Boston Children’s Hospital
Peter L. Saltonstall