Rare Disease News

Pachyonychia Congenita Project

Published December 7, 2015 by NORD

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Connecting patients with Pachyonychia Congenita, PC Project says that it is “all about love”.

Be a Hero-Help NORD Help Patients Obtain Life-Saving Treatments

Published December 4, 2015 by NORD

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When you or a beloved family member is facing serious illness, the last thing you need to be concerned with is how you will pay for the medication.

Be a Hero: Help NORD Educate Current and Future Medical Professionals

Published December 2, 2015 by NORD

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Education has always been a key component of NORD’s mission and this year we expanded our outreach to two vitally important audiences – medical professionals and students preparing for health-related …

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Giving Spotlight: Parents Thank NORD for Saving Daughter’s Life

Published November 9, 2015 by NORD

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Laurie and Chuck Eallonardo were thrilled at the birth of their twins, Jenna and Caden. Laurie felt happy and relieved that she had been able to carry them for 38 …

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NORD Releases First-Ever State Progress Report for Rare Diseases

Published October 22, 2015 by NORD

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Announcing NORD’s State Progress Report, a Roadmap for State Improvement.

Raise Your Voice: Rare Disease Day 2016 is Coming

Published October 12, 2015 by NORD

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Date: February 29, 2016 Global Theme: Patient Voice Global Slogan: Join us in making the voice of rare diseases heard By definition, each rare disease affects a small segment of …

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The Undiagnosed: Orphans of the Rare Disease Community

Published October 5, 2015 by NORD

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While the approximately 7,000 known rare diseases run the full spectrum of symptoms and experience, rare disease patients encounter many common obstacles. Rare patients face incredible difficulty finding safe and …

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Rare Disease Day 2016 Theme and Slogan Announced!

Published September 16, 2015 by NORD

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Theme: Patient Voice Slogan: Join us in making the voice of rare diseases heard It’s here! As the official sponsor and host of Rare Disease Day in the U.S., NORD …

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Rare Disease Day 2016 Theme and Slogan Announced

Published September 16, 2015 by NORD

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Theme: Patient Voice Slogan: Join us in making the voice of rare diseases heard As the official sponsor and host of Rare Disease Day in the U.S., NORD is excited …

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NORD’S Free Student Membership: Sign up Today!

Published September 2, 2015 by NORD

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A few months ago, NORD and our members hosted a “Meet the Patients” event at the annual conference of the American Medical Student Association (AMSA). We were thrilled with the …

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Rare Disease News

Access State Report Card Data