Published April 25, 2018 by NORD
“Every time I meet someone new, I am focused on going into the interaction with an open mind and accepting heart,” says Chris Ulmer, co-founder and front man behind …
Continue reading “Chris Ulmer: 2018 Rare Impact Award Honoree”
Read morePublished April 18, 2018 by NORD
An exciting new piece of legislation known as the RARE Act (Rare disease Advancement, Research, and Education Act) of 2018 (H.R.5115) was recently introduced by Congressmen Carson and Costello. This legislation would …
Read morePublished April 12, 2018 by NORD
Washington, D.C., April 12, 2018—The National Organization for Rare Disorders (NORD) has announced the latest news regarding the upcoming 35th Anniversary Celebration presenting the Rare Impact Awards on May 17 in …
Read morePublished April 11, 2018 by NORD
Washington, D.C., April 11, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, released the following statement regarding …
Continue reading “NORD Issues Statement Regarding Governor Bevin’s Veto of Kentucky Senate Bill 7”
Read morePublished March 29, 2018 by NORD
After months of debate, Congress passed an omnibus spending bill last week to fund the government through September 30, 2018. Within this legislation, there are both exciting investments in critical …
Continue reading “NORD Reaction to Recently-Enacted Government Spending Bill”
Read morePublished March 22, 2018 by NORD
Washington, D.C., March 22, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, released the following statement …
Continue reading “NORD Issues Statement Regarding House Vote on Right to Try”
Read morePublished March 21, 2018 by NORD
Washington, D.C., March 21, 2018—The National Organization for Rare Disorders (NORD) today announced the people, organizations, and innovators who will be honored at the 35th Anniversary Celebration presenting the Rare …
Read morePublished March 21, 2018 by NORD
In advance of another vote on the Right to Try Act scheduled to occur later today, NORD joined over 100 patient and provider organizations in sending a renewed letter to the House of …
Read morePublished March 20, 2018 by NORD
The 2018 report has grown to cover several emerging issues. Download your copy today.
Read morePublished March 14, 2018 by NORD
Washington, D.C., March 14, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, released the following statement in …
Continue reading “NORD Issues Statement Regarding House Vote on Right to Try”
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