Published November 10, 2017 by NORD
Washington, D.C., November 10, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response …
Read morePublished November 8, 2017 by NORD
Show your support for the Orphan Drug Tax Credit!
Read morePublished November 2, 2017 by NORD
Washington, D.C., November 2, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response …
Read morePublished October 31, 2017 by NORD
NORD Board Chair Marshall Summar MD will moderate a National Disability Forum on Compassionate Allowances and Rare Diseases to be hosted by the Social Security Administration (SSA) on Tuesday, Nov. …
Continue reading “Join NORD & SSA in Forum on Compassionate Allowances & Rare Diseases”
Read morePublished October 26, 2017 by NORD
View the full documentary. Danbury, C.T., October 26, 2017 – Imagine never being allowed to feel the sun on your skin. For 11-year-old Peyton, who is allergic to sunlight, that is …
Continue reading “NORD Releases New Documentary called “Good Morning Peyton””
Read morePublished September 26, 2017 by NORD
Washington, D.C., September 26, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the …
Read morePublished September 26, 2017 by NORD
Stay informed on what NORD is doing to address the Affordable Care Act for rare disease patients.
Read morePublished September 19, 2017 by NORD
The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement opposing the “Graham-Cassidy” plan to repeal …
Continue reading “NORD Issues Statement Opposing the “Graham-Cassidy” ACA Replacement Plan”
Read morePublished September 14, 2017 by NORD
Today, NORD joined over 140 patient organizations in sending a letter to Congress in support of the Orphan Drug Tax Credit (ODTC). We are extremely grateful to all those organizations …
Continue reading “Over 140 Patient Organizations Support the Orphan Drug Tax Credit”
Read morePublished August 31, 2017 by NORD
Hurricane Harvey has left thousands rid of their belongings and forced out of their homes. For individuals living with a rare disease, the impact of such natural disasters can be …
Continue reading “Downloadable Hurricane Harvey Emergency Relief Resources”
Read more
Your gift today fuels progress in the lab, in clinics, on Capitol Hill and for rare families who can’t wait another year for answers.
Please complete this form to access the requested resource.