Published January 26, 2018 by NORD
Washington, D.C., January 26, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement on the confirmation by the …
Continue reading “NORD Issues Statement on Confirmation of New Secretary of HHS, Alex Azar”
Read morePublished January 18, 2018 by NORD
During the 2017 Rare Diseases & Orphan Products Breakthrough Summit over 700 individuals from the rare disease community gathered to advance the dialogue in rare diseases. NORD was pleased to …
Continue reading “Early Diagnosis: Perspectives from NORD Student Chapter Leader, Harjot Randhawa”
Read morePublished January 16, 2018 by NORD
THE NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD) LAUNCHES 7,000 MILE RARE MOVEMENT CHALLENGING AMERICANS TO CHART 7,000 MILES DURING MONTH OF FEBRUARY Americans to walk, bike or run 7,000 miles …
Continue reading “NORD Launches 7,000 Mile Rare Movement”
Read morePublished January 10, 2018 by NORD
Today, advocates across the country are joining together to #SaveCHIP! The Children’s Health Insurance Program (CHIP) is a critical program that provides 9 million children and pregnant women across the …
Continue reading “Your Help is Needed to #SaveCHIP”
Read morePublished January 9, 2018 by NORD
Do you know a person or company making a difference in the fight against rare diseases? We want to hear about them! Submit a nomination for the 2018 Rare Impact Awards by this …
Continue reading “Nominations for the Rare Impact Awards Close Friday, January 12”
Read morePublished January 5, 2018 by NORD
Washington, D.C. – January 5, 2018 – today, NORD sent the following letter to Majority Leader Mitch McConnell and Minority Leader Chuck Schumer in support of Alex Azar’s candidacy for Secretary of the Department of Health and Human Services (HHS): …
Read morePublished January 4, 2018 by NORD
Washington, D.C. – January 4, 2018 – As we celebrate the 35th anniversary of the Orphan Drug Act, we are particularly grateful for the champions responsible for its creation. Today, such gratitude …
Continue reading “NORD Issues Statement in Response to Senator Orrin Hatch’s Announced Retirement”
Read morePublished December 21, 2017 by NORD
Learn how to get involved with the biggest day of the year for the rare disease community.
Read morePublished December 18, 2017 by NORD
Washington, D.C., December 18, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response …
Read morePublished December 7, 2017 by NORD
With the Senate and House versions of the Tax Cuts and Jobs Act heading to a conference committee, the future of the Orphan Drug Tax Credit (ODTC) is at stake. …
Continue reading “Over 160 Patient Organizations Reemphasize Support for the Orphan Drug Tax Credit”
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