Published September 27, 2019 by NORD
On September 26, BioNews Service published an extensive article written by reporter Larry Luxner, previewing the upcoming NORD Rare Diseases & Orphan Products Breakthrough Summit, which will be taking place …
Read morePublished September 25, 2019 by NORD
NORD President and CEO Peter L. Saltonstall has some breaking news to share on the city we are taking the Living Rare, Living Stronger: NORD Patient and Family Forum to …
Read morePublished August 14, 2019 by NORD
We’re delighted to announce that Acting FDA Commissioner, Norman E. “Ned” Sharpless will deliver the keynote address at this year’s Rare Diseases & Orphan Products Breakthrough Summit. Sharpless, a physician and scientist, became …
Continue reading “FDA Acting Commissioner to Deliver NORD Rare Summit Keynote”
Read morePublished July 11, 2019 by NORD
NORD and the Foundation for Rare Blood Diseases (SZB) invite you to register for an externally-led Patient Focused Drug Development (EL-PFDD) meeting on Pyruvate Kinase deficiency (PKD), taking place Friday, …
Read morePublished July 2, 2019 by NORD
The time is now…register today!
Read morePublished June 27, 2019 by NORD
We would like to extend our sincerest thanks to all those who joined us during the Living Rare, Living Stronger NORD Patient & Family Forum, June 21-23 in Houston. Over …
Continue reading “NORD’s 2019 Living Rare, Living Stronger Weekend Highlights”
Read morePublished June 17, 2019 by NORD
NORD’s Living Rare, Living Stronger Patient & Family Forum is coming us this weekend on June 21-23 in Houston, TX. For those not joining us in-person, please join us online! …
Continue reading “Catch Living Rare Forum Plenaries and The Rare Impact Awards on Facebook Live!”
Read morePublished April 18, 2019 by NORD
The 2019 Living Rare, Living Stronger NORD Patient and Family Forum is a conference in which patients and caregivers can gain insights and practical tools for living their best lives …
Read morePublished April 9, 2019 by NORD
The 2019 Living Rare, Living Stronger NORD Patient and Family Forum promises to be an unforgettable weekend for patients, families, medical professionals and students. Download the agenda now and register by April 26 to …
Continue reading “Living Rare, Living Stronger full agenda with speakers now available”
Read morePublished March 12, 2019 by NORD
Washington, DC, March 12, 2019—The National Organization for Rare Disorders (NORD) today announced the individuals, organizations and industry innovators who will be honored for their outstanding work in support of …
Continue reading “NORD Announces Honorees for 2019 Rare Impact Awards”
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