Rare Disease Day 2019 Notes and Successes
Your stripes were shown! See how the rare disease community worked together to make Rare Disease Day 2019 reach the world at large!
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Published March 6, 2019 by NORD
Your stripes were shown! See how the rare disease community worked together to make Rare Disease Day 2019 reach the world at large!
Read morePublished January 16, 2019 by NORD
Get ready to #ShowYourStripes for Rare Disease Day, the biggest day of the year for the rare disease community.
Read morePublished December 20, 2018 by NORD
Let’s get started! 10 weeks to go until Rare Disease Day! Share your plans!
Read morePublished December 17, 2018 by NORD
This June in Houston, Texas, the 2019 Living Rare, Living Stronger | NORD Patient & Family Forum will bring the rare community together with physicians, medical students and allied health …
Read morePublished September 20, 2018 by NORD
Make your choice from this menu of thought-provoking, informative Lunch & Learn sessions available for attendees of the 2018 NORD Rare Summit. With only 25 days to go, be sure …
Continue reading “Chat, Chew, and Be Challenged! Lunchtime Learning at the NORD Rare Summit”
Read morePublished September 12, 2018 by NORD
1. Raves About the Rare Summit “Inspiring and Informative. Brought me to the realization that though I may feel my ‘disease’ is the only one – there are many who …
Continue reading “Three Big Reasons Not to Miss the 2018 NORD Rare Summit”
Read morePublished September 5, 2018 by NORD
One of the unique aspects of the 2018 NORD Rare Diseases & Orphan Products Breakthrough Summit is its theme, “A New Era of Patient-Focused Innovation,” which we will be examining from a …
Continue reading “Patient/Caregiver Opening Address Announced for NORD Rare Summit”
Read morePublished August 29, 2018 by NORD
Washington, D.C., August 29, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, has announced some of …
Read morePublished August 9, 2018 by NORD
Dear Reader, I want to invite you to join me and 700 others from the rare disease community at our annual Summit. This year, NORD’s 2018 Rare Diseases and Orphan …
Continue reading “Join us at the 2018 NORD Rare Summit”
Read morePublished July 11, 2018 by NORD
Dr. Scott Gottlieb was sworn in as the 23rd Commissioner of Food and Drug Administration in 2017, and provided a keynote speech at the NORD Rare Summit shortly thereafter. 2018 …
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