Rare Disease News

NORD Issues New Rare Disease DayⓇ Rallying Cry: Show Your Stripes™!

Published January 16, 2019 by NORD

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Get ready to #ShowYourStripes for Rare Disease Day, the biggest day of the year for the rare disease community.

Rare Disease Day 2019 is Only 10 Weeks Away!

Published December 20, 2018 by NORD

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Let’s get started! 10 weeks to go until Rare Disease Day! Share your plans!

The 2019 Rare Impact Awards will take off at Space Center Houston, Saturday, June 22!

Published December 17, 2018 by NORD

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This June in Houston, Texas, the 2019 Living Rare, Living Stronger | NORD Patient & Family Forum will bring the rare community together with physicians, medical students and allied health …

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Chat, Chew, and Be Challenged! Lunchtime Learning at the NORD Rare Summit

Published September 20, 2018 by NORD

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Make your choice from this menu of thought-provoking, informative Lunch & Learn sessions available for attendees of the 2018 NORD Rare Summit. With only 25 days to go, be sure …

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Three Big Reasons Not to Miss the 2018 NORD Rare Summit

Published September 12, 2018 by NORD

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1. Raves About the Rare Summit “Inspiring and Informative. Brought me to the realization that though I may feel my ‘disease’ is the only one – there are many who …

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Patient/Caregiver Opening Address Announced for NORD Rare Summit

Published September 5, 2018 by NORD

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One of the unique aspects of the 2018 NORD Rare Diseases & Orphan Products Breakthrough Summit is its theme, “A New Era of Patient-Focused Innovation,” which we will be examining from a …

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2018 NORD Rare Summit to Feature Distinguished Speakers Discussing a New Era of Patient-Focused Innovation

Published August 29, 2018 by NORD

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Washington, D.C., August 29, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, has announced some of …

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Join us at the 2018 NORD Rare Summit

Published August 9, 2018 by NORD

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Dear Reader, I want to invite you to join me and 700 others from the rare disease community at our annual Summit. This year, NORD’s 2018 Rare Diseases and Orphan …

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FDA Commissioner Dr. Scott Gottlieb Confirmed as 2018 NORD Rare Summit Keynote Speaker

Published July 11, 2018 by NORD

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Dr. Scott Gottlieb was sworn in as the 23rd Commissioner of Food and Drug Administration in 2017, and provided a keynote speech at the NORD Rare Summit shortly thereafter. 2018 …

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A Celebration of NORD’s 35th Anniversary

Published May 31, 2018 by NORD

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On Thursday, May 17 at the Andrew W. Mellon Auditorium in Washington, D.C. the rare disease community came together to celebrate NORD’s 35th Anniversary and to recognize the amazing accomplishments …

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