Washington, D.C., June, 4, 2018 —The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement on the increasing use of copay accumulator programs in health plans:
“Recently, a number of health plans have started implementing, what are broadly known as, ‘copay accumulator programs.’ These programs prevent…
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Tags: copay accumulator programs, copay accumulators, healthcare costs
May 21, 2018
TOPIC: Events, Featured News, Get Involved, Industry, Medical, Patients & Members, Research
Posted at May 5, 2018 03:36 pm by Christina Jensen
We are looking forward to bringing all stakeholders in rare diseases together once again for our annual Rare Diseases and Orphan Products Breakthrough Summit. We hope to see you there! Please mark the details below in your calendars and keep an eye out for a registration announcement in early June.
Rare Diseases &… Read More
Tags: 2018 Rare Summit, NORD Rare Summit, Rare Diseases & Orphan Products Breakthrough Summit
April 25, 2018
TOPIC: Events, Featured News, Get Involved, Medical, Patient Stories, Patients & Members
Posted at April 4, 2018 01:24 pm by Christina Jensen
Dr. Robert M. Campbell, Jr. is Director of the Center for Thoracic Insufficiency Syndrome (CTIS) and an Attending Physician in the Division of Orthopaedic Surgery at Children’s Hospital of Philadelphia (CHOP). He is best… Read More
Tags: 2018 Rare Impact Award Honoree, 35th Anniversary Celebration presenting the Rare Impact Awards, Children's Hospital of Philadelphia, CHOP, Director of the Center for Thoracic Insufficiency Syndrome, Dr. Robert Campbell, NORD 35th Anniversary, NORD Medical Advisory Committee, NORD Research Grant Program, Rare Impact, Rare Impact Award Honorees, Rare Impact Awards, titanium rib, VEPTR, Vertical Expandable Prosthetic Titanium Rib
