Published August 18, 2022 by NORD
August is national “Make a Will Month,” a critical moment for planned giving and making a lasting impact. Every adult – regardless of age – should take the time to …
Continue reading “Solidify Your Legacy for Make a Will Month”
Read morePublished July 12, 2022 by NORD
Many people with rare diseases require medical nutrition prescribed by a healthcare provider to prevent permanent disability and mortality, allow for normal growth in children and adults, or provide adequate …
Read morePublished December 20, 2021 by NORD
In November, NORD announced the launch of its Rare Disease Centers of Excellence program, which aims to improve medical care for people living with rare diseases. The program has ambitious …
Read morePublished November 4, 2021 by NORD
National Organization for Rare Disorders® (NORD) provides new designation to medical centers to define standards for high-quality specialized care for rare disease patients Washington, DC, November 4, 2021— Today, the National Organization for Rare Disorders (NORD) announced 31 NORD Rare Disease Centers of Excellence across the United …
Read morePublished September 28, 2021 by NORD
David Arons is the Chief Executive Officer of the National Brain Tumor Society (NBTS). He shares a passion for incorporating diversity, equity, and inclusion within the rare cancer and rare …
Continue reading “Head of the Herd: David Arons, National Brain Tumor Society”
Read morePublished May 27, 2021 by NORD
Quincy, MA and Danbury, CT, May 27, 2021—The National Organization for Rare Disorders (NORD®), the leading patient advocacy organization dedicated to the identification, treatment and cure of rare diseases, announced …
Continue reading “NORD Welcomes Edward Neilan, MD, PhD, as Chief Medical and Scientific Officer”
Read morePublished April 22, 2021 by NORD
Danbury, CT and Austin, TX – April 22, 2021 – CDISC and the National Organization for Rare Disorders (NORD®) have announced a partnership to develop global data standards for rare …
Continue reading “CDISC and NORD Partner to Develop Data Standards for Rare Diseases”
Read morePublished April 8, 2021 by NORD
For several years, the National Organization for Rare Disorders (NORD) has prioritized gene therapy education to advance knowledge and promote safe and effective clinical applications to reduce suffering from rare …
Continue reading “NORD Expands Gene Therapy Offerings Through New Online Resources”
Read morePublished January 14, 2021 by NORD
As part of its expanded outreach to medical professionals, NORD recently partnered with Frontline Medical Communications (FMC), a division of Medscape, on Rare Diseases Report: Rheumatology and Rare Diseases Report: Cancers, both published in late 2020. …
Read morePublished November 24, 2020 by NORD
The National Organization for Rare Disorders (NORD®), in partnership with PlatformQ Health, the Hemophilia Federation of America and the National Hemophilia Foundation, is pleased to announce the publication of an …
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