Rare Disease Resource Library

Advocates, Advocacy, Rare Disease Advisory Councils (RDAC), Webinar, Policy,

November 15, 2024

Rare Disease Advisory Council 2024 Stakeholder Webinar Recording

Advocates, Medical Professionals, Researchers, Students & Volunteers, Rare Disease Advisory Councils (RDAC), Webinar, Policy,

February 7, 2023

RDAC Stakeholders Meeting – 2022

Advocates, Patient & Caregiver, Patient Organizations, Students & Volunteers, Rare Disease Advisory Councils (RDAC), Infographic, PDF, Policy,

January 23, 2023

Rare Disease Advisory Council – One Pager

Advocates, Patient Organizations, Students & Volunteers, Advocacy, Legislative Advocacy, Rare Disease Advisory Councils (RDAC), Educational Video, Webinar, Policy,

October 17, 2022

Webinar Recording: Your State Just Enacted an RDAC – Now What?

Advocates, Patient Organizations, Students & Volunteers, Legislative Advocacy, Rare Disease Advisory Councils (RDAC), PDF, Policy,

Toolkit: Advocating for a Rare Disease Advisory Council in Your State

Advocates, Patient Organizations, Students & Volunteers, Advocacy, Legislative Advocacy, Rare Disease Advisory Councils (RDAC), Educational Video, Webinar, Policy,

October 14, 2022

Webinar Recording: Create a Rare Disease Advisory Council in Your State

Advocates, Patient Organizations, Students & Volunteers, Advocacy, Legislative Advocacy, Rare Disease Advisory Councils (RDAC), Educational Video, Webinar, Policy,

Webinar Recording: Advocating for a Rare Disease Advisory Council in your State

Advocates, Patient Organizations, Students & Volunteers, Advocacy, Legislative Advocacy, Rare Disease Advisory Councils (RDAC), PDF, Policy,

Toolkit: Implementing a Rare Disease Advisory Council in Your State

Advocates, Patient Organizations, Students & Volunteers, Legislative Advocacy, Rare Disease Advisory Councils (RDAC), PDF, Policy,

Toolkit: Creating an RDAC in Your State

Advocates, Patient Organizations, Students & Volunteers, Advocacy, Legislative Advocacy, Rare Disease Advisory Councils (RDAC), Educational Video, Webinar, Policy,

Recording: RDAC Stakeholders Meeting