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Home / Patient Organizations / Patient Organizations
NEHI Research Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Hiperplasia de células neuroendocrinas de la infancia
https://rarediseases.org/es/organizations/nehi-research-foundation/
Ver perfil >
Nemaline Myopathy Support Group
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Miopatía nemalínica
https://rarediseases.org/es/organizations/nemaline-myopathy-support-group/
Ver perfil >
NephCure
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Nefropatía por IgA, Glomeruloesclerosis Focal y Segmentaria, C3 Glomerulopathy ...
https://rarediseases.org/es/organizations/nephcure-kidney-international-inc/
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Nephraware
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/nephraware/
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NET (Neuroendocrine Tumor) Research Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Neoplasias Neuroendocrinas Pancreáticas (pNENs), Carcinoid Syndrome, Pheochromocytoma/Paraganglioma ...
https://rarediseases.org/es/organizations/net-neuroendocrine-tumor-research-foundation/
Ver perfil >
Neuroacanthocytosis Advocacy USA, Inc.
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Neuroacanthocytosis
https://rarediseases.org/es/organizations/neuroacanthocytosis-advocacy-usa-inc/
Ver perfil >
Neuroblastoma Children’s Cancer Society
Teléfono: 847-605-1245 Correo electrónico: [email protected] Fax: 847-605-0705
Enfermedades raras relacionadas: Neuroblastoma
https://rarediseases.org/es/organizations/neuroblastoma-childrens-cancer-society/
Ver perfil >
Neurofibromatosis Clinic at Texas Children’s Hospital
Teléfono: 832-822-4280 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Neurofibromatosis 1
https://rarediseases.org/es/organizations/neurofibromatosis-clinic-at-texas-childrens-hospital/
Ver perfil >
Neurofibromatosis Midwest
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/neurofibromatosis-midwest/
Ver perfil >
Neurofibromatosis Network
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Neurofibromatosis 1, Schwannomatosis relacionada con NF2
https://rarediseases.org/es/organizations/neurofibromatosis-network/
Ver perfil >
Neurofibromatosis Northeast
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Neurofibromatosis 1, Schwannomatosis relacionada con NF2
https://rarediseases.org/es/organizations/neurofibromatosis-northeast/
Ver perfil >
Neurogenetic Surgery Center at Massachusetts General Hospital
Teléfono: 617-726-5732 Correo electrónico: [email protected] Fax: 617-724-9620
https://rarediseases.org/es/organizations/neurogenetic-surgery-center-at-massachusetts-general-hospital/
Ver perfil >
Neuroleptic Malignant Syndrome Information Service, Inc.
Teléfono: 607-674-7920 Correo electrónico: [email protected] Fax: 607-674-7910
Enfermedades raras relacionadas: Malignant Hyperthermia
https://rarediseases.org/es/organizations/neuroleptic-malignant-syndrome-information-service-inc/
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Neurological Institute of New York
Teléfono: 212-305-2500 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/neurological-institute-of-new-york/
Ver perfil >
Neuromuscular Disease Foundation (NDF)
Teléfono: 310-721-1605 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Miopatía por GNE
https://rarediseases.org/es/organizations/neuromuscular-disease-foundation-ndf/
Ver perfil >
Neuropathy Association
https://rarediseases.org/es/organizations/neuropathy-association/
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Neuropathy Trust
https://rarediseases.org/es/organizations/neuropathy-trust/
Ver perfil >
Neuroscience Research Australia
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/neuroscience-research-australia/
Ver perfil >
Nevada PEP
Teléfono: 702-388-8899 Correo electrónico: [email protected] Fax: 702-388-2966
https://rarediseases.org/es/organizations/nevada-pep/
Ver perfil >
Nevus Network
Teléfono: 419-853-4525 Correo electrónico: [email protected] Fax: 405-377-3403
Enfermedades raras relacionadas: Giant Congenital Melanocytic Nevus, Nevus Sebaceus Syndrome, Cutis Marmorata Telangiectatica Congenita, ...
https://rarediseases.org/es/organizations/nevus-network/
Ver perfil >
Nevus Outreach Inc
Miembro NORD
Teléfono: 918-331-0595 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/nevus-outreach-inc-2/
Ver perfil >
Nevus Outreach, Inc.
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Giant Congenital Melanocytic Nevus, Nevus Sebaceus Syndrome, Blue Rubber Bleb Nevus syndrome ...
https://rarediseases.org/es/organizations/nevus-outreach-inc/
Ver perfil >
New Directions for People with Disabilities, Inc.
Teléfono: 805-967-2841 Correo electrónico: [email protected] Fax: 805-964-7344
https://rarediseases.org/es/organizations/new-directions-for-people-with-disabilities-inc/
Ver perfil >
New England Consortium of Metabolic Programs
Teléfono: 617-355-7346 Correo electrónico: [email protected] Fax: 617-730-0907
https://rarediseases.org/es/organizations/new-england-consortium-of-metabolic-programs/
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New England Hemophilia Association
Teléfono: 781-326-7645 Correo electrónico: [email protected] Fax: 781-329-5122
https://rarediseases.org/es/organizations/new-england-hemophilia-association/
Ver perfil >
New England Regional Genetics Group
Correo electrónico: [email protected] Fax: 781-444-0127
https://rarediseases.org/es/organizations/new-england-regional-genetics-group/
Ver perfil >
New Horizons Un-Limited, Inc.
Teléfono: 414-299-0124 Correo electrónico: [email protected] Fax: 414-347-1977
Enfermedades raras relacionadas: MECP2 Duplication Syndrome, Deficiencia de GM3 sintasa, Esclerosis Múltiple, ...
https://rarediseases.org/es/organizations/new-horizons-un-limited-inc/
Ver perfil >
New Jersey Self-Help Clearinghouse
Teléfono: 973-989-1122 Correo electrónico: [email protected] Fax: 973-989-1159
https://rarediseases.org/es/organizations/new-jersey-self-help-clearinghouse/
Ver perfil >
New York State Office for People with Developmental Disabilities
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/new-york-state-office-for-people-with-developmental-disabilities/
Ver perfil >
Newlife Foundation for Disabled Children
Teléfono: 154-346-2777 Correo electrónico: [email protected] Fax: 154-346-8999
Enfermedades raras relacionadas: Amniotic Band Syndrome
https://rarediseases.org/es/organizations/newlife-foundation-for-disabled-children/
Ver perfil >
Next Generation of Cystinosis
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Cistinosis
https://rarediseases.org/es/organizations/next-generation-of-cystinosis/
Ver perfil >
NF-2 Sharing Network
Teléfono: 410-461-2245 Fax: 410-461-2245
Enfermedades raras relacionadas: Schwannomatosis relacionada con NF2
https://rarediseases.org/es/organizations/nf-2-sharing-network/
Ver perfil >
NF2 BioSolutions
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Schwannomatosis relacionada con NF2
https://rarediseases.org/es/organizations/nf2-biosolutions/
Ver perfil >
Ngly1.org
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/ngly1-org/
Ver perfil >
NH Rare Disorders Association
https://rarediseases.org/es/organizations/nh-rare-disorders-association/
Ver perfil >
NICER Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Narcolepsy
https://rarediseases.org/es/organizations/nicer-foundation/
Ver perfil >
NICHD Brain and Tissue Bank for Developmental Disorders
Teléfono: 410-706-1755 Correo electrónico: [email protected] Fax: 410-706-2128
https://rarediseases.org/es/organizations/nichd-brain-and-tissue-bank-for-developmental-disorders/
Ver perfil >
Niemann-Pick Disease Group (UK)
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Enfermedad de Niemann-Pick Tipo C
https://rarediseases.org/es/organizations/niemann-pick-disease-group-uk/
Ver perfil >
NIH/Child Health and Human Development – Section on Endocrinology and Genetics
Teléfono: 301-402-1998 Correo electrónico: [email protected] Fax: 301-402-2984
Enfermedades raras relacionadas: Síndrome de Rabson-Mendenhall
https://rarediseases.org/es/organizations/nih-child-health-and-human-development-section-on-endocrinology-and-genetics/
Ver perfil >
NIH/Clinical Trials
https://rarediseases.org/es/organizations/nih-clinical-trials/
Ver perfil >
NIH/Consensus Development Program
Teléfono: 888-644-2667 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/nih-consensus-development-program/
Ver perfil >
NIH/Institute on Alcohol Abuse and Alcoholism
Teléfono: 301-443-3860 Correo electrónico: [email protected] Fax: 301-443-7043
Enfermedades raras relacionadas: Fetal Alcohol Syndrome, Wernicke-Korsakoff Syndrome
https://rarediseases.org/es/organizations/nih-institute-on-alcohol-abuse-and-alcoholism/
Ver perfil >
NIH/National Asthma Education and Prevention Program
Teléfono: 301-592-8573 Correo electrónico: [email protected] Fax: 301-592-8563
https://rarediseases.org/es/organizations/nih-national-asthma-education-and-prevention-program/
Ver perfil >
NIH/National Center for Complementary and Alternative Medicine
Correo electrónico: [email protected] Fax: 866-464-3616
https://rarediseases.org/es/organizations/nih-national-center-for-complementary-and-alternative-medicine/
Ver perfil >
NIH/National Eye Institute
Teléfono: 301-496-5248 Correo electrónico: [email protected] Fax: 301-402-1065
Enfermedades raras relacionadas: Síndrome de megalocórnea-discapacidad intelectual, Trastorno del neurodesarrollo relacionado con TRPM3, Amaurosis congénita de Leber, ...
https://rarediseases.org/es/organizations/nih-national-eye-institute/
Ver perfil >
NIH/National Heart, Lung and Blood Institute
Teléfono: 301-592-8573 Correo electrónico: [email protected] Fax: 301-251-1223
Enfermedades raras relacionadas: Miocardiopatía de Takotsubo, Eosinofilia pulmonar simple, Cáncer de pulmón de células pequeñas, ...
https://rarediseases.org/es/organizations/nih-national-heart-lung-and-blood-institute/
Ver perfil >
NIH/National Heart, Lung and Blood Institute ~ Hematology Branch
Teléfono: 301-496-5093 Correo electrónico: [email protected] Fax: 301-496-8396
Enfermedades raras relacionadas: Anemia autoinmune hemolítica tipo caliente, Cold Agglutinin Disease, X linked Lymphoproliferative Syndrome, ...
https://rarediseases.org/es/organizations/nih-national-heart-lung-and-blood-institute-hematology-branch/
Ver perfil >
NIH/National Human Genome Research Institute
Teléfono: 301-402-0911 Fax: 301-402-2218
Enfermedades raras relacionadas: Propionic Acidemia, Síndrome oculocerebrorrenal
https://rarediseases.org/es/organizations/nih-national-human-genome-research-institute/
Ver perfil >
NIH/National Institute of Allergy and Infectious Diseases
Teléfono: 301-496-5717 Correo electrónico: [email protected] Fax: 301-402-3573
Enfermedades raras relacionadas: Tularemia, Viruela, Mionecrosis Clostridial, ...
https://rarediseases.org/es/organizations/nih-national-institute-of-allergy-and-infectious-diseases/
Ver perfil >
NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
Teléfono: 301-495-4484 Correo electrónico: [email protected] Fax: 301-718-6366
Enfermedades raras relacionadas: Chanarin-Dorfman Syndrome, Síndrome trico-dento-óseo, Síndrome Periódico Asociado al Receptor del Factor de Necrosis Tumoral (TRAPS), ...
https://rarediseases.org/es/organizations/nih-national-institute-of-arthritis-and-musculoskeletal-and-skin-diseases/
Ver perfil >
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