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Home / Patient Organizations / Patient Organizations
Washington State Department of Social and Health Services
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/washington-state-department-of-social-and-health-services/
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Washington State Fathers Network
Teléfono: 425-653-4286 Correo electrónico: [email protected] Fax: 425-747-1069
https://rarediseases.org/es/organizations/washington-state-fathers-network/
Ver perfil >
Washington University School of Medicine
Teléfono: 314-362-8180 Fax: 314-362-8159
https://rarediseases.org/es/organizations/washington-university-school-of-medicine/
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We Choose Happy
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/we-choose-happy/
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Weaver Syndrome Network
Teléfono: 425-747-5382 Correo electrónico: [email protected] Fax: 425-235-6225
Enfermedades raras relacionadas: Síndrome de Weaver
https://rarediseases.org/es/organizations/weaver-syndrome-network/
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Wegner Health Sciences Information Center
Teléfono: 605-357-1400 Correo electrónico: [email protected] Fax: 605-357-1490
https://rarediseases.org/es/organizations/wegner-health-sciences-information-center/
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Weill Cornell Medical College – Division of Pediatric Genetics
Teléfono: 646-962-2205 Correo electrónico: [email protected] Fax: 646-962-0273
https://rarediseases.org/es/organizations/weill-cornell-medical-college-division-of-pediatric-genetics/
Ver perfil >
Well Spouse Association
Teléfono: 732-577-8899 Correo electrónico: [email protected] Fax: 732-577-8644
https://rarediseases.org/es/organizations/well-spouse-association/
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West Central Missouri Community Action Agency
Teléfono: 660-476-2185 Correo electrónico: [email protected] Fax: 660-476-5529
https://rarediseases.org/es/organizations/west-central-missouri-community-action-agency/
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Westchester Self-Help-Clearinghouse
Teléfono: 914-761-0600 Correo electrónico: [email protected] Fax: 914-761-5859
https://rarediseases.org/es/organizations/westchester-self-help-clearinghouse/
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Wheelchairnet
Teléfono: 412-586-6908 Correo electrónico: [email protected] Fax: 412-586-6910
https://rarediseases.org/es/organizations/wheelchairnet/
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Who is Amy?
Teléfono: 303-917-9888 Correo electrónico: [email protected] Fax: 720-536-4661
https://rarediseases.org/es/organizations/who-is-amy/
Ver perfil >
Wilhelm Foundation
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/wilhelm-foundation/
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Williams Syndrome Association
Miembro NORD
Teléfono: 248-244-2229 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Williams
https://rarediseases.org/es/organizations/williams-syndrome-association/
Ver perfil >
Williams Syndrome Family of Hope
Teléfono: 229-256-9545
Enfermedades raras relacionadas: Síndrome de Williams
https://rarediseases.org/es/organizations/williams-syndrome-family-of-hope/
Ver perfil >
Williams Syndrome Foundation
Correo electrónico: [email protected] Fax: 173-236-0178
Enfermedades raras relacionadas: Síndrome de Williams
https://rarediseases.org/es/organizations/williams-syndrome-foundation/
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Wilson Disease Association
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Enfermedad de Wilson
https://rarediseases.org/es/organizations/wilson-disease-association/
Ver perfil >
Wings of Hope
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/wings-of-hope/
Ver perfil >
WIRED4LIFE
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/wired4life/
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Wisconsin Chiari Center
https://rarediseases.org/es/organizations/wisconsin-chiari-center/
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Wolf Hirschhorn Syndrome Trust for the UK and Ireland
Teléfono: 845-603-5338 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Wolf-Hirschhorn
https://rarediseases.org/es/organizations/wolf-hirschhorn-syndrome-trust-for-the-uk-and-ireland/
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Wolfram Syndrome UK
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Wolfram
https://rarediseases.org/es/organizations/wolfram-syndrome-uk/
Ver perfil >
WonderBaby.org
Teléfono: 617-923-1241 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/wonderbaby-org/
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World Alliance of PItuitary Organizations
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Deficiencia de arginina vasopresina
https://rarediseases.org/es/organizations/world-alliance-of-pituitary-organizations/
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World Arnold Chiari Malformation Association
Teléfono: 610-353-4737 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Syringobulbia, Syringomyelia, Chiari Malformations ...
https://rarediseases.org/es/organizations/world-arnold-chiari-malformation-association/
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World Federation for Mental Health
Teléfono: 703-490-6926 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/world-federation-for-mental-health/
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World Federation of Hemophilia
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Hemofilia B adquirida, Factor XI Deficiency, Factor VII Deficiency, ...
https://rarediseases.org/es/organizations/world-federation-of-hemophilia/
Ver perfil >
World Health Organization (WHO)
Enfermedades raras relacionadas: Tularemia, Viruela, Mionecrosis Clostridial, ...
https://rarediseases.org/es/organizations/world-health-organization-who/
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World Life Foundation
Fax: 817-285-0216
https://rarediseases.org/es/organizations/world-life-foundation/
Ver perfil >
Worldwide Cancer Research
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/worldwide-cancer-research/
Ver perfil >
Worldwide Disability Solutions Group
Teléfono: 408-996-1010 Correo electrónico: [email protected] Fax: 408-862-5260
https://rarediseases.org/es/organizations/worldwide-disability-solutions-group/
Ver perfil >
Worldwide Syringomyelia & Chiari Task Force, Inc.
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/worldwide-syringomyelia-chiari-task-force-inc/
Ver perfil >
Worster-Drought Syndrome Support Group
Teléfono: 207-608-8700 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/worster-drought-syndrome-support-group/
Ver perfil >
Xeroderma Pigmentosum Society, Inc.
Correo electrónico: [email protected]
Enfermedades raras relacionadas: De Sanctis Cacchione Syndrome, Xeroderma Pigmentosum
https://rarediseases.org/es/organizations/xeroderma-pigmentosum-society-inc/
Ver perfil >
Xeroderma Pigmentosum Support Group
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/xeroderma-pigmentosum-support-group/
Ver perfil >
Xia-Gibbs Society
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/xia-gibbs-society/
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XLH Network, Inc
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Familial Hypophosphatemia, Raquitismo por deficiencia de vitamina D
https://rarediseases.org/es/organizations/xlh-network-inc/
Ver perfil >
XLID98 Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Trastorno del desarrollo intelectual sindrómico ligado al cromosoma X tipo Turner
https://rarediseases.org/es/organizations/xlid98-foundation/
Ver perfil >
XLP Research Trust
Correo electrónico: [email protected]
Enfermedades raras relacionadas: X linked Lymphoproliferative Syndrome
https://rarediseases.org/es/organizations/xlp-research-trust/
Ver perfil >
XP Family Support Group
Enfermedades raras relacionadas: Xeroderma Pigmentosum
https://rarediseases.org/es/organizations/xp-family-support-group/
Ver perfil >
XP Society
https://rarediseases.org/es/organizations/xp-society/
Ver perfil >
Xtraordinary Joy
Enfermedades raras relacionadas: Mucopolysaccharidosis Type II, Fragile X Syndrome
https://rarediseases.org/es/organizations/xtraordinary-joy/
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XXYY Project
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Klinefelter (47,XXY) y otras variantes
https://rarediseases.org/es/organizations/xxyy-project/
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Yale Child Study Center
Correo electrónico: [email protected] Fax: 203-785-7402
https://rarediseases.org/es/organizations/yale-child-study-center/
Ver perfil >
Yash Gandhi Foundation Finding a Cure for I-Cell
https://rarediseases.org/es/organizations/yash-gandhi-foundation-finding-a-cure-for-i-cell/
Ver perfil >
Yellow Brick Road Project
Miembro NORD
Teléfono: 914-374-1053 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/yellow-brick-road-project/
Ver perfil >
Young Women’s Breast Cancer Program
Teléfono: 314-454-5076 Correo electrónico: [email protected] Fax: 314-454-8051
https://rarediseases.org/es/organizations/young-womens-breast-cancer-program/
Ver perfil >
YWHAG Research Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/ywhag-research-foundation/
Ver perfil >
ZC4H2 Research Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/zc4h2-research-foundation/
Ver perfil >
Zero to Three
Teléfono: 202-638-1144 Correo electrónico: [email protected] Fax: 202-638-0851
https://rarediseases.org/es/organizations/zero-to-three/
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