Patient Organizations - Page 5 of 48 - National Organization for Rare Disorders

American Society of Tropical Medicine and Hygiene

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-society-of-tropical-medicine-and-hygiene/

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American Speech-Language-Hearing Association

Teléfono: 301-296-5700 Correo electrónico: [email protected] Fax: 301-296-8580

Enfermedades raras relacionadas: Fountain Syndrome, Gerstmann Syndrome, CHARGE Syndrome, ...

https://rarediseases.org/es/organizations/american-speech-language-hearing-association/

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American Spinal Injury Association

Teléfono: 404-355-9772 Correo electrónico: [email protected] Fax: 404-355-1826

Enfermedades raras relacionadas: Brown Séquard Syndrome, Syringobulbia

https://rarediseases.org/es/organizations/american-spinal-injury-association/

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American Thoracic Society

Teléfono: 212-315-8600 Correo electrónico: [email protected] Fax: 212-315-6498

https://rarediseases.org/es/organizations/american-thoracic-society/

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American Tinnitus Association

Teléfono: 503-248-9985 Correo electrónico: [email protected] Fax: 503-248-0024

Enfermedades raras relacionadas: Tinnitus, Acoustic Neuroma

https://rarediseases.org/es/organizations/american-tinnitus-association/

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American Trauma Society

Teléfono: 703-538-3544 Correo electrónico: [email protected] Fax: 703-241-5603

https://rarediseases.org/es/organizations/american-trauma-society/

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American Urological Association, Inc.

Teléfono: 410-689-3700 Correo electrónico: [email protected] Fax: 410-689-3800

https://rarediseases.org/es/organizations/american-urological-association-inc/

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American Vitiligo Research Foundation, Inc.

Teléfono: 727-461-3899 Correo electrónico: [email protected] Fax: 727-461-4796

https://rarediseases.org/es/organizations/american-vitiligo-research-foundation-inc/

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AmeriFace

Teléfono: 702-769-9264 Correo electrónico: [email protected] Fax: 702-341-5351

Enfermedades raras relacionadas: Adams-Oliver Syndrome, Trismus-Pseudocamptodactyly Syndrome, Branchio Oculo Facial Syndrome, ...

https://rarediseases.org/es/organizations/ameriface/

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Amniotic Fluid Embolism Foundation (AFE Foundation)

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Amniotic Fluid Embolism

https://rarediseases.org/es/organizations/amniotic-fluid-embolism-foundation-afe-foundation/

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Amtrak Special Needs & Accessibility

Teléfono: 202-906-3000

https://rarediseases.org/es/organizations/amtrak-special-needs-accessibility/

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Amyloidosis Research Consortium, Inc. (ARC)

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Amyloidosis

https://rarediseases.org/es/organizations/amyloidosis-research-consortium-inc-arc/

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Amyloidosis Support Groups

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Amyloidosis

https://rarediseases.org/es/organizations/amyloidosis-support-groups/

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Anal Cancer Foundation

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/anal-cancer-foundation/

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Anaphylaxis Campaign

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/anaphylaxis-campaign/

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Angel Flight of New England

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/angel-flight-of-new-england/

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Angel Flight Southeast, Inc.

Teléfono: 352-326-0761 Correo electrónico: [email protected] Fax: 352-326-9630

https://rarediseases.org/es/organizations/angel-flight-southeast-inc/

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Angel View Crippled Children’s Foundation, Inc.

Teléfono: 760-329-6471 Correo electrónico: [email protected] Fax: 760-324-9024

https://rarediseases.org/es/organizations/angel-view-crippled-childrens-foundation-inc/

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Angelman Syndrome Foundation

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Angelman Syndrome, Síndrome de Angelman

https://rarediseases.org/es/organizations/angelman-syndrome-foundation/

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Angelman Syndrome Support Education and Research Trust

Teléfono: 300-999-0102 Correo electrónico: [email protected]

Enfermedades raras relacionadas: Angelman Syndrome, Síndrome de Angelman

https://rarediseases.org/es/organizations/angelman-syndrome-support-education-and-research-trust/

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Aniridia Network UK

Correo electrónico: [email protected]

Enfermedades raras relacionadas: WAGR Syndrome/11p Deletion Syndrome, Isolated Aniridia, Wilms’ Tumor, ...

https://rarediseases.org/es/organizations/aniridia-network-uk/

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Annabelle’s Challenge

Enfermedades raras relacionadas: Ehlers Danlos Syndrome, Síndromes de Ehlers-Danlos

https://rarediseases.org/es/organizations/annabelles-challenge/

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Anorchidism Support Group

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/anorchidism-support-group/

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Answering T.T.P. (Thrombotic Thrombocytopenic Purpura) Foundation

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Thrombotic Thrombocytopenic Purpura

https://rarediseases.org/es/organizations/answering-t-t-p-thrombotic-thrombocytopenic-purpura-foundation/

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Any Baby Can of San Antonio

Teléfono: 210-227-0170 Correo electrónico: [email protected] Fax: 210-227-0812

https://rarediseases.org/es/organizations/any-baby-can-of-san-antonio/

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Apbd Research Foundation

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Leukodystrophy, Adult Polyglucosan Body Disease, Andersen Disease (GSD IV), ...

https://rarediseases.org/es/organizations/apbd-research-foundation/

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APDS Rare Disease Coalition

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/apds-rare-disease-coalition/

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Apert Syndrome Support Group

Teléfono: 314-965-3356

https://rarediseases.org/es/organizations/apert-syndrome-support-group/

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Aphasia Hope Foundation

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/aphasia-hope-foundation/

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Aplastic Anemia & MDS International Foundation

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Myelodysplastic Syndromes, Paroxysmal Nocturnal Hemoglobinuria, Acquired Aplastic Anemia, ...

https://rarediseases.org/es/organizations/aplastic-anemia-mds-international-foundation/

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Aplastic Anemia & Myelodysplasia Association of Canada

Teléfono: 905-780-0698 Correo electrónico: [email protected] Fax: 905-780-1648

Enfermedades raras relacionadas: Myelodysplastic Syndromes, Acquired Aplastic Anemia

https://rarediseases.org/es/organizations/aplastic-anemia-myelodysplasia-association-of-canada/

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Appendicure

Correo electrónico: [email protected]

Enfermedades raras relacionadas: appendix carcinoma, Appendiceal Cancer and Tumors

https://rarediseases.org/es/organizations/appendicure/

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Appendix Cancer / Pseudomyxoma Peritonei (ACPMP) Research Foundation

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Appendiceal Cancer and Tumors, Goblet Cell Adenocarcinoma, Pseudomyxoma Peritonei ...

https://rarediseases.org/es/organizations/appendix-cancer-pseudomyxoma-peritonei-acpmp-research-foundation/

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Apraxia Kids

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/apraxia-kids/

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APS Foundation of America

Teléfono: 608-782-2626 Correo electrónico: [email protected] Fax: 608-782-6569

Enfermedades raras relacionadas: Asherson’s Syndrome, Antiphospholipid Syndrome, Lupus ...

https://rarediseases.org/es/organizations/aps-foundation-of-america/

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APS Support UK

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Antiphospholipid Syndrome

https://rarediseases.org/es/organizations/aps-support-uk/

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APS Type 1 Foundation

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Familial Isolated Hypoparathyroidism, Autoimmune Polyglandular Syndrome Type 1

https://rarediseases.org/es/organizations/aps-type-1-foundation/

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Ara Parseghian Medical Research Foundation

Teléfono: 520-577-5106 Correo electrónico: [email protected] Fax: 520-577-5212

Enfermedades raras relacionadas: Niemann Pick Disease Type C

https://rarediseases.org/es/organizations/ara-parseghian-medical-research-foundation/

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Arachnoiditis Nederland

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/arachnoiditis-nederland/

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ARCH National Respite Network

Teléfono: 919-490-5577 Correo electrónico: [email protected] Fax: 919-490-4905

https://rarediseases.org/es/organizations/arch-national-respite-network/

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Arginase 1 Deficiency Foundation

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Arginase-1 Deficiency

https://rarediseases.org/es/organizations/arginase-1-deficiency-foundation/

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Arizona Chronic Care Together

https://rarediseases.org/es/organizations/arizona-chronic-care-together/

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Arizona Network for PKU and Allied Disorders

https://rarediseases.org/es/organizations/arizona-network-for-pku-and-allied-disorders/

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ARPKD/CHF Alliance

Teléfono: 717-529-5555 Correo electrónico: [email protected] Fax: 800-807-9110

Enfermedades raras relacionadas: Congenital Hepatic Fibrosis, Caroli Disease, Autosomal Recessive Polycystic Kidney Disease ...

https://rarediseases.org/es/organizations/arpkd-chf-alliance/

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Arrivederci ALD

https://rarediseases.org/es/organizations/arrivederci-ald/

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Arthritis Foundation

Teléfono: 404-872-7100 Correo electrónico: [email protected]

Enfermedades raras relacionadas: Antisynthetase Syndrome, Familial Calcium Pyrophosphate Deposition Disease, Adult-Onset Still’s Disease, ...

https://rarediseases.org/es/organizations/arthritis-foundation/

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Arthritis Foundation I

https://rarediseases.org/es/organizations/arthritis-foundation-i/

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Arthritis Foundation of Australia

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/arthritis-foundation-of-australia/

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Arthritis Society

Teléfono: 416-979-7228 Correo electrónico: [email protected] Fax: 416-979-8366

Enfermedades raras relacionadas: Antisynthetase Syndrome, Adult-Onset Still’s Disease, Reactive Arthritis ...

https://rarediseases.org/es/organizations/arthritis-society/

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Arthrogryposis Multiplex Congenita Support, Inc.

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Gordon Syndrome, Arthrogryposis Multiplex Congenita

https://rarediseases.org/es/organizations/arthrogryposis-multiplex-congenita-support-inc/

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