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Home / Patient Organizations / Patient Organizations
American Spinal Injury Association
Teléfono: 404-355-9772 Correo electrónico: [email protected] Fax: 404-355-1826
Enfermedades raras relacionadas: Brown Séquard Syndrome, Syringobulbia
https://rarediseases.org/es/organizations/american-spinal-injury-association/
Ver perfil >
American Thoracic Society
Teléfono: 212-315-8600 Correo electrónico: [email protected] Fax: 212-315-6498
https://rarediseases.org/es/organizations/american-thoracic-society/
Ver perfil >
American Tinnitus Association
Teléfono: 503-248-9985 Correo electrónico: [email protected] Fax: 503-248-0024
Enfermedades raras relacionadas: Tinnitus, Neurinoma acústico
https://rarediseases.org/es/organizations/american-tinnitus-association/
Ver perfil >
American Trauma Society
Teléfono: 703-538-3544 Correo electrónico: [email protected] Fax: 703-241-5603
https://rarediseases.org/es/organizations/american-trauma-society/
Ver perfil >
American Urological Association, Inc.
Teléfono: 410-689-3700 Correo electrónico: [email protected] Fax: 410-689-3800
https://rarediseases.org/es/organizations/american-urological-association-inc/
Ver perfil >
American Vitiligo Research Foundation, Inc.
Teléfono: 727-461-3899 Correo electrónico: [email protected] Fax: 727-461-4796
https://rarediseases.org/es/organizations/american-vitiligo-research-foundation-inc/
Ver perfil >
AmeriFace
Teléfono: 702-769-9264 Correo electrónico: [email protected] Fax: 702-341-5351
Enfermedades raras relacionadas: Síndrome trico-dento-óseo, Síndrome de Treacher Collins, Síndrome de Binder, ...
https://rarediseases.org/es/organizations/ameriface/
Ver perfil >
Amniotic Fluid Embolism Foundation (AFE Foundation)
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Embolia de líquido amniótico
https://rarediseases.org/es/organizations/amniotic-fluid-embolism-foundation-afe-foundation/
Ver perfil >
Amtrak Special Needs & Accessibility
Teléfono: 202-906-3000
https://rarediseases.org/es/organizations/amtrak-special-needs-accessibility/
Ver perfil >
Amyloidosis Research Consortium, Inc. (ARC)
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Amiloidosis
https://rarediseases.org/es/organizations/amyloidosis-research-consortium-inc-arc/
Ver perfil >
Amyloidosis Support Groups
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Amiloidosis
https://rarediseases.org/es/organizations/amyloidosis-support-groups/
Ver perfil >
Anal Cancer Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/anal-cancer-foundation/
Ver perfil >
Anaphylaxis Campaign
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/anaphylaxis-campaign/
Ver perfil >
Angel Flight of New England
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/angel-flight-of-new-england/
Ver perfil >
Angel Flight Southeast, Inc.
Teléfono: 352-326-0761 Correo electrónico: [email protected] Fax: 352-326-9630
https://rarediseases.org/es/organizations/angel-flight-southeast-inc/
Ver perfil >
Angel View Crippled Children’s Foundation, Inc.
Teléfono: 760-329-6471 Correo electrónico: [email protected] Fax: 760-324-9024
https://rarediseases.org/es/organizations/angel-view-crippled-childrens-foundation-inc/
Ver perfil >
Angelman Syndrome Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Angelman
https://rarediseases.org/es/organizations/angelman-syndrome-foundation/
Ver perfil >
Angelman Syndrome Support Education and Research Trust
Teléfono: 300-999-0102 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Angelman
https://rarediseases.org/es/organizations/angelman-syndrome-support-education-and-research-trust/
Ver perfil >
Aniridia Network UK
Correo electrónico: [email protected]
Enfermedades raras relacionadas: WAGR Syndrome/11p Deletion Syndrome, Isolated Aniridia, Tumor de Wilms ...
https://rarediseases.org/es/organizations/aniridia-network-uk/
Ver perfil >
Annabelle’s Challenge
Enfermedades raras relacionadas: Síndromes de Ehlers-Danlos
https://rarediseases.org/es/organizations/annabelles-challenge/
Ver perfil >
Anorchidism Support Group
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/anorchidism-support-group/
Ver perfil >
Answering T.T.P. (Thrombotic Thrombocytopenic Purpura) Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Púrpura trombótica trombocitopénica
https://rarediseases.org/es/organizations/answering-t-t-p-thrombotic-thrombocytopenic-purpura-foundation/
Ver perfil >
Any Baby Can of San Antonio
Teléfono: 210-227-0170 Correo electrónico: [email protected] Fax: 210-227-0812
https://rarediseases.org/es/organizations/any-baby-can-of-san-antonio/
Ver perfil >
Apbd Research Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Adult Polyglucosan Body Disease, Andersen Disease (GSD IV), Leucodistrofia ...
https://rarediseases.org/es/organizations/apbd-research-foundation/
Ver perfil >
APDS Rare Disease Coalition
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/apds-rare-disease-coalition/
Ver perfil >
Apert Syndrome Support Group
Teléfono: 314-965-3356
https://rarediseases.org/es/organizations/apert-syndrome-support-group/
Ver perfil >
Aphasia Hope Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/aphasia-hope-foundation/
Ver perfil >
Aplastic Anemia & Myelodysplasia Association of Canada
Teléfono: 905-780-0698 Correo electrónico: [email protected] Fax: 905-780-1648
Enfermedades raras relacionadas: Myelodysplastic Syndromes, Acquired Aplastic Anemia
https://rarediseases.org/es/organizations/aplastic-anemia-myelodysplasia-association-of-canada/
Ver perfil >
Aplastic Anemia & MDS International Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Myelodysplastic Syndromes, Acquired Aplastic Anemia, Hemoglobinuria paroxística nocturna ...
https://rarediseases.org/es/organizations/aplastic-anemia-mds-international-foundation/
Ver perfil >
Appendicure
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/appendicure/
Ver perfil >
Appendix Cancer / Pseudomyxoma Peritonei (ACPMP) Research Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Goblet Cell Adenocarcinoma
https://rarediseases.org/es/organizations/appendix-cancer-pseudomyxoma-peritonei-acpmp-research-foundation/
Ver perfil >
Apraxia Kids
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/apraxia-kids/
Ver perfil >
APS Foundation of America
Teléfono: 608-782-2626 Correo electrónico: [email protected] Fax: 608-782-6569
Enfermedades raras relacionadas: Asherson’s Syndrome, Antiphospholipid Syndrome, Lupus ...
https://rarediseases.org/es/organizations/aps-foundation-of-america/
Ver perfil >
APS Support UK
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Antiphospholipid Syndrome
https://rarediseases.org/es/organizations/aps-support-uk/
Ver perfil >
APS Type 1 Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Familial Isolated Hypoparathyroidism, Autoimmune Polyglandular Syndrome Type 1
https://rarediseases.org/es/organizations/aps-type-1-foundation/
Ver perfil >
Ara Parseghian Medical Research Foundation
Teléfono: 520-577-5106 Correo electrónico: [email protected] Fax: 520-577-5212
Enfermedades raras relacionadas: Enfermedad de Niemann-Pick Tipo C
https://rarediseases.org/es/organizations/ara-parseghian-medical-research-foundation/
Ver perfil >
Arachnoiditis Nederland
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/arachnoiditis-nederland/
Ver perfil >
ARCH National Respite Network
Teléfono: 919-490-5577 Correo electrónico: [email protected] Fax: 919-490-4905
https://rarediseases.org/es/organizations/arch-national-respite-network/
Ver perfil >
Arginase 1 Deficiency Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Deficiencia de Arginasa-1
https://rarediseases.org/es/organizations/arginase-1-deficiency-foundation/
Ver perfil >
Arizona Chronic Care Together
https://rarediseases.org/es/organizations/arizona-chronic-care-together/
Ver perfil >
Arizona Network for PKU and Allied Disorders
https://rarediseases.org/es/organizations/arizona-network-for-pku-and-allied-disorders/
Ver perfil >
ARPKD/CHF Alliance
Teléfono: 717-529-5555 Correo electrónico: [email protected] Fax: 800-807-9110
Enfermedades raras relacionadas: Congenital Hepatic Fibrosis, Caroli Disease, Autosomal Recessive Polycystic Kidney Disease ...
https://rarediseases.org/es/organizations/arpkd-chf-alliance/
Ver perfil >
Arrivederci ALD
https://rarediseases.org/es/organizations/arrivederci-ald/
Ver perfil >
Arthritis Foundation
Teléfono: 404-872-7100 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Deposición familiar de pirofosfato cálcico, Enfermedad Mixta del Tejido Conectivo, Enfermedad de Still del adulto, ...
https://rarediseases.org/es/organizations/arthritis-foundation/
Ver perfil >
Arthritis Foundation I
https://rarediseases.org/es/organizations/arthritis-foundation-i/
Ver perfil >
Arthritis Foundation of Australia
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/arthritis-foundation-of-australia/
Ver perfil >
Arthritis Society
Teléfono: 416-979-7228 Correo electrónico: [email protected] Fax: 416-979-8366
Enfermedades raras relacionadas: Enfermedad de Still del adulto, Síndrome de Antisintetasa, Reactive Arthritis ...
https://rarediseases.org/es/organizations/arthritis-society/
Ver perfil >
Arthrogryposis Multiplex Congenita Support, Inc.
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Gordon Syndrome, Artrogriposis Múltiple Congénita
https://rarediseases.org/es/organizations/arthrogryposis-multiplex-congenita-support-inc/
Ver perfil >
As Healthy As Possible
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Trastorno relacionado con POLR2A
https://rarediseases.org/es/organizations/as-healthy-as-possible/
Ver perfil >
Asbestos Disease Awareness Organization
Teléfono: 310-251-7477 Correo electrónico: [email protected] Fax: 866-294-1550
Enfermedades raras relacionadas: Mesothelioma
https://rarediseases.org/es/organizations/asbestos-disease-awareness-organization/
Ver perfil >
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