Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
POLR2A-Related Disorder
https://rarediseases.org/es/organizations/as-healthy-as-possible/
Enfermedades raras relacionadas:
Mesothelioma
https://rarediseases.org/es/organizations/asbestos-disease-awareness-organization/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/ashermans-syndrome-online-community/
Enfermedades raras relacionadas:
Congenital Myasthenic Syndromes
https://rarediseases.org/es/organizations/asociacion-de-sindrome-miastenico-congenito-congenital-myasthenic-syndrome-association/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Empty Nose Syndrome, Síndrome de Nariz Vacía
https://rarediseases.org/es/organizations/asociacion-espanola-de-sindrome-de-nariz-vacia/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Myhre Syndrome
https://rarediseases.org/es/organizations/asociacion-sindrome-de-myhre-espana/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/association-congolaise-du-vitiligo/
Teléfono:
414-918-9002
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Bladder Exstrophy-Epispadias-Cloacal Exstrophy Complex
https://rarediseases.org/es/organizations/association-for-bladder-exstrophy-community/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/association-for-children-with-a-disability/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Arginine: Glycine Amidinotransferase Deficiency, Guanidinoacetate Methyltransferase Deficiency, Creatine Transporter Deficiency, ...
https://rarediseases.org/es/organizations/association-for-creatine-deficiencies-acd/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Progressive Supranuclear Palsy, Corticobasal Degeneration, Frontotemporal Degeneration, ...
https://rarediseases.org/es/organizations/association-for-frontotemporal-degeneration-aftd/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Adult Polyglucosan Body Disease, Danon Disease, Pompe Disease, ...
https://rarediseases.org/es/organizations/association-for-glycogen-storage-disease-agsd/
Teléfono:
300-123-2790
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Adult Polyglucosan Body Disease, Pompe Disease, Glycogen Storage Disease Type VI, ...
https://rarediseases.org/es/organizations/association-for-glycogen-storage-disease-uk-ltd/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Zollinger-Ellison Syndrome, Multiple Endocrine Neoplasia Type 2, Multiple Endocrine Neoplasia Type 1, ...
https://rarediseases.org/es/organizations/association-for-multiple-endocrine-neoplasia-disorders-amend/
Miembro NORD
Teléfono:
812-329-0312
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Multiple Endocrine Neoplasia Type 2, Multiple Endocrine Neoplasia Type 1
https://rarediseases.org/es/organizations/association-of-multiple-endocrine-neoplasia-disorders-usa/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/association-francophone-ds-glycogenoses/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/association-fransaise-contre-lamylose/
Fax: 301-770-1949
Enfermedades raras relacionadas:
Primary Central Nervous System Lymphoma, Mantle Cell Lymphoma, Linfoma primario del sistema nervioso central ...
https://rarediseases.org/es/organizations/association-of-cancer-care-centers/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Cyclic Vomiting Syndrome, Ogilvie syndrome, Short Bowel Syndrome, ...
https://rarediseases.org/es/organizations/association-of-gastrointestinal-motility-disorders-inc-agmd/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Chromosome 14 Ring
https://rarediseases.org/es/organizations/associazione-internazionale-ring-14/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/associazione-italiana-mucopolisaccaridosi-e-malattie-affini/
Teléfono:
202-466-7643
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Cold Urticaria, Aquagenic Urticaria
https://rarediseases.org/es/organizations/asthma-and-allergy-foundation-of-america-inc/
Miembro NORD
Teléfono:
207-881-8080
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Bohring-Opitz Syndrome, Shashi-Pena Syndrome, ASXL3-Related Disorder, ...
https://rarediseases.org/es/organizations/asxl-rare-research-endowment-arre-foundation/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/atad3a-patient-advocacy-alliance/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/ataxia-telangiectasia-childrens-project-inc/
Enfermedades raras relacionadas:
Ataxia Telangiectasia, Ataxia Telangiectasia
https://rarediseases.org/es/organizations/ataxia-telangiectasia-childrens-project-inc-a-t/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Ataxia Telangiectasia, Ataxia Telangiectasia
https://rarediseases.org/es/organizations/ataxia-telangiectasia-society-uk/
Teléfono:
303-733-7324
Fax: 303-733-6211
https://rarediseases.org/es/organizations/atlantis-community-inc/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Oculo-Auriculo-Vertebral Spectrum
https://rarediseases.org/es/organizations/atresia-microtia-online-e-mail-support-group/
Enfermedades raras relacionadas:
Atypical Hemolytic Uremic Syndrome
https://rarediseases.org/es/organizations/atypical-hus-foundation/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/austin-1st-foundation/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Autoimmune Blistering Diseases, Mucous Membrane Pemphigoid, Dermatitis Herpetiformis, ...
https://rarediseases.org/es/organizations/australasian-blistering-diseases-foundation/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/autism-research-institute/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Warm Autoimmune Hemolytic Anemia, Systemic Scleroderma, Miller Fisher Syndrome, ...
https://rarediseases.org/es/organizations/autoimmune-association/
Miembro NORD
Teléfono:
919-602-1484
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/autoimmune-encephalitis-alliance-ae-alliance/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Autoimmune Hepatitis
https://rarediseases.org/es/organizations/autoimmune-hepatitis-association-aiha/
Miembro NORD
Teléfono:
415-831-8782
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Recurrent Pericarditis, Autoinflammation with Infantile Enterocolitis, Tumor Necrosis Factor Receptor-Associated Periodic Syndrome, ...
https://rarediseases.org/es/organizations/autoinflammatory-alliance/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Orthostatic Hypotension, Multiple System Atrophy
https://rarediseases.org/es/organizations/autonomic-disorders-consortium/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Hypophosphatasia
https://rarediseases.org/es/organizations/avalon-foundation/
Enfermedades raras relacionadas:
Gastroschisis, Gastrosquisis
https://rarediseases.org/es/organizations/averys-angels-gastroschisis-foundation/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Microvillus Inclusion Disease
https://rarediseases.org/es/organizations/averys-hope/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
XYY Syndrome, 47, XXX (Trisomy X), 47, XXY (Klinefelter Syndrome), ...
https://rarediseases.org/es/organizations/axys/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/babys-breath/
Fax: 212-682-6156
Enfermedades raras relacionadas:
Kufor Rakeb Syndrome
https://rarediseases.org/es/organizations/bachmann-strauss-dystonia-parkinson-foundation/
Enfermedades raras relacionadas:
Arachnoiditis
https://rarediseases.org/es/organizations/backcare-the-charity-for-healthier-backs/
