Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Cystic Fibrosis, Fibrosis quística
https://rarediseases.org/es/organizations/bonnell-foundation-living-with-cystic-fibrosis/
Miembro NORD
Teléfono:
425-894-8448
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Pfeiffer Syndrome, Muenke Syndrome, Síndrome de Muenke, ...
https://rarediseases.org/es/organizations/born-a-hero-research-foundation/
Enfermedades raras relacionadas:
Neurotrophic Keratitis, Corneal Dystrophies
https://rarediseases.org/es/organizations/boston-foundation-for-sight/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Ogilvie syndrome, Hirschsprung Disease, Imperforate Anus, ...
https://rarediseases.org/es/organizations/bowel-group-for-kids-inc/
Enfermedades raras relacionadas:
Craniopharyngioma, Glioma, Juvenile Pilocytic Astrocytoma, ...
https://rarediseases.org/es/organizations/brain-tumor-foundation-for-children-inc/
Correo electrónico:
[email protected]
Fax: 519-642-7192
Enfermedades raras relacionadas:
Chordoma, Turcot Syndrome
https://rarediseases.org/es/organizations/brain-tumour-foundation-of-canada/
Miembro NORD
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/breath-of-hope-ri/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Fryns Syndrome
https://rarediseases.org/es/organizations/breath-of-hope-inc/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Organizing Pneumonia, Neumonía organizada
https://rarediseases.org/es/organizations/breathtakers-ob-trust/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Generalized Arterial Calcification of Infancy, Autosomal Recessive Hypophosphatemic Rickets Type 2, Autosomal Recessive Hypophosphatemic Rickets Type 2, ...
https://rarediseases.org/es/organizations/brighter-hope-foundation/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Macular Degeneration, Alzheimer’s Disease
https://rarediseases.org/es/organizations/brightfocus-foundation/
Correo electrónico:
[email protected]
Fax: 163-263-5313
Enfermedades raras relacionadas:
Acoustic Neuroma
https://rarediseases.org/es/organizations/british-acoustic-neuroma-association/
Enfermedades raras relacionadas:
Hepatitis D, Fibrolamellar Carcinoma, Hepatocellular Carcinoma, ...
https://rarediseases.org/es/organizations/british-liver-trust/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Post Polio Syndrome
https://rarediseases.org/es/organizations/british-polio-fellowship/
Teléfono:
147-436-9231
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Hepatoerythropoietic Porphyria, X-Linked Protoporphyria, Variegate Porphyria, ...
https://rarediseases.org/es/organizations/british-porphyria-association/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/british-sja%c2%b6grenaes-syndrome-association/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Primary Lymphedema
https://rarediseases.org/es/organizations/brylans-feat-foundation/
Miembro NORD
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/cacna1a-foundation/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/cacna1e-international/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
CADASIL
https://rarediseases.org/es/organizations/cadasil-eradication-project/
Enfermedades raras relacionadas:
CADASIL
https://rarediseases.org/es/organizations/cadasil-together-we-have-hope/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Congenital Adrenal Hyperplasia
https://rarediseases.org/es/organizations/cah-support-group/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/camk2-therapeutics-network/
Miembro NORD
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/camk2-therapeutics-network-2/
Teléfono:
847-361-3292
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Acute Eosinophilic Pneumonia, Chronic Eosinophilic Pneumonia, Eosinophilic Esophagitis, ...
https://rarediseases.org/es/organizations/campaign-urging-research-for-eosinophilic-disease-cured/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Leigh Syndrome
https://rarediseases.org/es/organizations/campbell-burns-metabolic-trust/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/canadian-addison-society/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Angelman Syndrome, Síndrome de Angelman
https://rarediseases.org/es/organizations/canadian-angelman-syndrome-society/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Pompe Disease, Enfermedad de Pompe
https://rarediseases.org/es/organizations/canadian-association-of-pompe/
Enfermedades raras relacionadas:
Primary Central Nervous System Lymphoma, Testicular Cancer, Post-Transplant Lymphoproliferative Disease, ...
https://rarediseases.org/es/organizations/canadian-cancer-society/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/canadian-cmtc-foundation/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Cystic Fibrosis, Fibrosis quística
https://rarediseases.org/es/organizations/canadian-cystic-fibrosis-foundation/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/canadian-ectodermal-dysplasia-syndromes-association/
Teléfono:
905-628-8251
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/canadian-families-with-galactosemia/
Enfermedades raras relacionadas:
Fanconi Anemia, Anemia de Fanconi
https://rarediseases.org/es/organizations/canadian-fanconi-anemia-research-fund/
Enfermedades raras relacionadas:
Ferroportin Disease, Juvenile Hemochromatosis, Classic Hereditary Hemochromatosis ...
https://rarediseases.org/es/organizations/canadian-hemochromatosis-society/
Enfermedades raras relacionadas:
Factor X Deficiency, Factor XI Deficiency, Factor VII Deficiency, ...
https://rarediseases.org/es/organizations/canadian-hemophilia-society/
Enfermedades raras relacionadas:
Hepatopulmonary Syndrome
https://rarediseases.org/es/organizations/canadian-hepatopulmonary-syndrome-program/
Enfermedades raras relacionadas:
WHIM Syndrome, Leukocyte Adhesion Deficiency Syndromes, Autosomal Dominant Hyper IgE Syndrome, ...
https://rarediseases.org/es/organizations/canadian-immunodeficiencies-patient-organization/
Enfermedades raras relacionadas:
Hepatitis D, Fibrolamellar Carcinoma, Hepatocellular Carcinoma, ...
https://rarediseases.org/es/organizations/canadian-liver-foundation/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Lymphedema-Distichiasis Syndrome, Yellow Nail Syndrome, Primary Lymphedema, ...
https://rarediseases.org/es/organizations/canadian-lymphedema-framework/
Miembro NORD
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/canadian-organization-for-rare-disorders-cord/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Osteogenesis Imperfecta, Osteogénesis imperfecta
https://rarediseases.org/es/organizations/canadian-osteogenesis-imperfecta-society/
