Remember The Girls
2024 Member
About Remember The Girls
Remember The Girls aims to break the stigma facing females impacted by X-linked conditions by providing them with tools to seek support, engage with research, and access family planning options, as well as by advocating for increased attention of medical professionals to the physical, emotional, and reproductive needs of this community.
Related Rare Diseases:
- Distrofia muscular de Duchenne
- Atrofia muscular espinal
- Síndrome de alfa talasemia-discapacidad intelectual ligada al cromosoma X
- Síndrome de Alport
- Síndrome de Kabuki
- Enfermedad de Danon
- Diabetes insípida nefrogénica
- Deficiencia del transportador de células de hormona tiroidea específica de MCT8
- Enfermedad de Kennedy
- Displasia espondiloepifisaria tardía ligada al cromosoma X
- Coroideremia
- Síndrome de Simpson-Golabi-Behmel
- Síndrome de Opitz G/BBB ligado al cromosoma X
- Enfermedad granulomatosa crónica
- Síndrome de Aarskog
- Síndrome de Snyder-Robinson
- Enfermedad de Pelizaeus-Merzbacher
- Retinitis Pigmentaria
- X-Linked Adrenoleukodystrophy
- Agammaglobulinemia
- WAS Related Disorders
- MECP2 Duplication Syndrome
- Partial Androgen Insensitivity Syndrome
- Barth Syndrome
- Muscular Dystrophy, Becker
- Coffin Lowry Syndrome
- X-linked Retinoschisis
- Creatine Transporter Deficiency
- Dent Disease
- Dyskeratosis Congenita
- Emery Dreifuss Muscular Dystrophy
- Fabry Disease
- Fragile X Syndrome
- Glucose-6-Phosphate Dehydrogenase Deficiency
- Acquired Hemophilia
- Glycogen Storage Disease Type IX
- Mucopolysaccharidosis Type II
- Hyper IgM Syndromes
- Familial Hypophosphatemia
- Ichthyosis, X Linked
- Lesch Nyhan Syndrome
- Lowe syndrome
- X linked Lymphoproliferative Syndrome
- L1 Syndrome
- Menkes Disease
- X-Linked Myotubular Myopathy
- Norrie Disease
- Ocular Albinism
- Ornithine Transcarbamylase Deficiency
- Otopalatodigital Syndrome Type I and II
- X-Linked Protoporphyria
- Severe Combined Immunodeficiency