Patient Organizations - Page 4 of 48 - National Organization for Rare Disorders

American Heart Association

Teléfono: 214-784-7212 Correo electrónico: [email protected] Fax: 214-784-1307

Enfermedades raras relacionadas: Miocardiopatía de Takotsubo, Truncus Arteriosus, Trastornos relacionados con NDUFB11, ...

https://rarediseases.org/es/organizations/american-heart-association/

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American Hospital Association

Teléfono: 312-422-3000 Correo electrónico: [email protected] Fax: 312-422-4700

https://rarediseases.org/es/organizations/american-hospital-association/

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American Institute of Stress

Teléfono: 682-239-6823 Correo electrónico: [email protected] Fax: 817-394-0593

https://rarediseases.org/es/organizations/american-institute-of-stress/

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American Juvenile Arthritis Organization

Teléfono: 404-965-7624 Correo electrónico: [email protected] Fax: 404-872-9559

Enfermedades raras relacionadas: Ankylosing Spondylitis, Lupus, Artritis idiopática juvenil asociada a entesitis ...

https://rarediseases.org/es/organizations/american-juvenile-arthritis-organization/

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American Kidney Fund, Inc.

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Deficiencia de N-Acetilglutamato Sintetasa, Síndrome de Gitelman, Síndrome de Bartter, ...

https://rarediseases.org/es/organizations/american-kidney-fund-inc/

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American Leprosy Missions

Teléfono: 864-271-7040 Correo electrónico: [email protected] Fax: 864-271-7062

Enfermedades raras relacionadas: Lepra

https://rarediseases.org/es/organizations/american-leprosy-missions/

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American Liver Foundation

Fax: 212-483-8179

Enfermedades raras relacionadas: Fibrolamellar Carcinoma, Hepatocellular Carcinoma, Autoimmune Hepatitis, ...

https://rarediseases.org/es/organizations/american-liver-foundation/

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American Lung Association

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Pediatric Non-Small Cell Lung Cancer, Fibrosis quística, Cáncer de pulmón de células pequeñas, ...

https://rarediseases.org/es/organizations/american-lung-association/

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American Lung Association in Connecticut, East Hartford

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-lung-association-in-connecticut-east-hartford/

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American Medical Association

Teléfono: 312-464-5000 Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-medical-association/

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American Medical Association DoctorFinder

https://rarediseases.org/es/organizations/american-medical-association-doctorfinder/

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American Medical Women’s Association

Teléfono: 703-234-4069 Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-medical-womens-association/

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American Migraine Foundation

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-migraine-foundation/

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American Multiple Endocrine Neoplasia Support

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-multiple-endocrine-neoplasia-support/

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American Neurological Association

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-neurological-association/

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American Nystagmus Network, Inc.

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Benign Paroxysmal Positional Vertigo

https://rarediseases.org/es/organizations/american-nystagmus-network-inc/

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American Occupational Therapy Association, Inc.

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-occupational-therapy-association-inc/

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American Organ Transplant Association

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Barth Syndrome, Eisenmenger Syndrome

https://rarediseases.org/es/organizations/american-organ-transplant-association/

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American Orthopaedic Society for Sports Medicine

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-orthopaedic-society-for-sports-medicine/

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American Otological Society

Teléfono: 410-955-7381 Correo electrónico: [email protected] Fax: 410-955-0035

https://rarediseases.org/es/organizations/american-otological-society/

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American Partnership for Eosinophilic Disorders (APFED)

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Acute Eosinophilic Pneumonia, Eosinofilia pulmonar simple, Granulomatosis Eosinofílica con Poliangeítis, ...

https://rarediseases.org/es/organizations/american-partnership-for-eosinophilic-disorders-apfed/

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American Pediatric Association

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-pediatric-association/

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American Porphyria Foundation

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Hepatoerythropoietic Porphyria, Porfiria Variegata, Porfiria ALAD, ...

https://rarediseases.org/es/organizations/american-porphyria-foundation-apf/

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American Printing House for the Blind

Teléfono: 502-895-2405 Correo electrónico: [email protected] Fax: 502-899-2274

Enfermedades raras relacionadas: Retinitis Pigmentaria

https://rarediseases.org/es/organizations/american-printing-house-for-the-blind/

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American Psychiatric Association

Teléfono: 202-682-6000 Correo electrónico: [email protected] Fax: 202-682-6850

https://rarediseases.org/es/organizations/american-psychiatric-association/

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American Psychoanalytic Association

Teléfono: 212-752-0450 Correo electrónico: [email protected] Fax: 212-593-0571

https://rarediseases.org/es/organizations/american-psychoanalytic-association/

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American Rhinologic Society

Teléfono: 845-988-1631 Correo electrónico: [email protected] Fax: 845-986-1527

https://rarediseases.org/es/organizations/american-rhinologic-society/

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American RSDHope

Teléfono: 207-583-4589 Correo electrónico: [email protected] Fax: 207-583-4978

https://rarediseases.org/es/organizations/american-rsdhope/

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American Sexual Health Association

Teléfono: 919-361-8400 Correo electrónico: [email protected] Fax: 919-361-8425

https://rarediseases.org/es/organizations/american-sexual-health-association/

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American Sickle Cell Anemia Association

Teléfono: 216-229-8600 Correo electrónico: [email protected] Fax: 216-229-4500

Enfermedades raras relacionadas: Enfermedad de células falciformes

https://rarediseases.org/es/organizations/american-sickle-cell-anemia-association/

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American SIDS Institute

Teléfono: 239-431-5425 Correo electrónico: [email protected] Fax: 239-431-5536

Enfermedades raras relacionadas: Sudden Infant Death Syndrome

https://rarediseases.org/es/organizations/american-sids-institute/

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American Skin Association

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Bowen Disease

https://rarediseases.org/es/organizations/american-skin-association/

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American Sleep Apnea Association

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-sleep-apnea-association/

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American Society for Colposcopy and Cervical Pathology

Teléfono: 301-733-3640 Fax: 240-575-9880

https://rarediseases.org/es/organizations/american-society-for-colposcopy-and-cervical-pathology/

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American Society for Deaf Children

Teléfono: 866-895-4206 Correo electrónico: [email protected] Fax: 410-795-0965

Enfermedades raras relacionadas: Síndrome de Perrault, Síndrome de Treacher Collins, Síndrome de Wildervanck, ...

https://rarediseases.org/es/organizations/american-society-for-deaf-children/

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American Society For Dermatologic Surgery

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-society-for-dermatologic-surgery/

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American Society for Experimental NeuroTherapeutics

Teléfono: 860-586-7570 Correo electrónico: [email protected] Fax: 860-586-7550

https://rarediseases.org/es/organizations/american-society-for-experimental-neurotherapeutics/

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American Society for Gastrointestinal Endoscopy

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-society-for-gastrointestinal-endoscopy/

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American Society for Histocompatibility & Immunogenetics

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-society-for-histocompatibility-immunogenetics/

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American Society for Reproductive Medicine

Teléfono: 205-978-5000 Correo electrónico: [email protected] Fax: 205-978-5005

https://rarediseases.org/es/organizations/american-society-for-reproductive-medicine/

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American Society of Andrology

Teléfono: 847-619-4909 Correo electrónico: [email protected] Fax: 847-517-7229

https://rarediseases.org/es/organizations/american-society-of-andrology/

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American Society of Anesthesiologists

Teléfono: 847-825-5586 Correo electrónico: [email protected] Fax: 847-825-1692

https://rarediseases.org/es/organizations/american-society-of-anesthesiologists/

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American Society of Colon and Rectal Surgeons

Teléfono: 847-290-9184 Correo electrónico: [email protected] Fax: 847-290-9203

https://rarediseases.org/es/organizations/american-society-of-colon-and-rectal-surgeons/

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American Society of Dermatopathology

https://rarediseases.org/es/organizations/american-society-of-dermatopathology/

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American Society of Human Genetics

Teléfono: 301-634-7300 Correo electrónico: [email protected] Fax: 301-634-7079

https://rarediseases.org/es/organizations/american-society-of-human-genetics/

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American Society of Nephrology

Teléfono: 202-659-0599 Correo electrónico: [email protected] Fax: 202-637-9793

https://rarediseases.org/es/organizations/american-society-of-nephrology/

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American Society of Parenteral and Enteral Nutrition

Teléfono: 301-587-6315 Correo electrónico: [email protected] Fax: 301-587-2365

Enfermedades raras relacionadas: Atresia duodenal y estenosis duodenal, Síndrome del intestino corto

https://rarediseases.org/es/organizations/american-society-of-parenteral-and-enteral-nutrition/

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American Society of Plastic Surgeons

Teléfono: 847-228-9900 Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-society-of-plastic-surgeons/

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American Society of Transplantation

Teléfono: 856-439-9986 Correo electrónico: [email protected] Fax: 856-439-9982

https://rarediseases.org/es/organizations/american-society-of-transplantation/

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American Society of Tropical Medicine and Hygiene

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-society-of-tropical-medicine-and-hygiene/

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