Patient Organizations - Page 3 of 48 - National Organization for Rare Disorders

American Academy of Neurology

Teléfono: 612-928-6100 Correo electrónico: [email protected] Fax: 612-454-2746

https://rarediseases.org/es/organizations/american-academy-of-neurology/

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American Academy of Ophthalmology – The Eye M.D. Association

Teléfono: 415-561-8500 Correo electrónico: [email protected] Fax: 415-561-8533

https://rarediseases.org/es/organizations/american-academy-of-ophthalmology-the-eye-m-d-association/

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American Academy of Orthopaedic Surgeons

Teléfono: 847-823-7186 Correo electrónico: [email protected] Fax: 847-823-8125

Enfermedades raras relacionadas: Displasia epifisaria hemimélica

https://rarediseases.org/es/organizations/american-academy-of-orthopaedic-surgeons/

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American Academy of Pediatric Dentistry

Teléfono: 312-337-2169 Fax: 312-337-6329

https://rarediseases.org/es/organizations/american-academy-of-pediatric-dentistry/

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American Academy of Pediatrics

Teléfono: 847-434-4000 Correo electrónico: [email protected] Fax: 847-434-8000

https://rarediseases.org/es/organizations/american-academy-of-pediatrics/

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American Academy of Physical Medicine And Rehabilitation

Teléfono: 847-737-6000 Correo electrónico: [email protected] Fax: 847-737-6001

https://rarediseases.org/es/organizations/american-academy-of-physical-medicine-and-rehabilitation/

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American Art Therapy Association, Inc.

Teléfono: 703-548-5860 Correo electrónico: [email protected] Fax: 703-783-8468

https://rarediseases.org/es/organizations/american-art-therapy-association-inc/

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American Association for Cancer Research

Teléfono: 215-440-9300 Correo electrónico: [email protected] Fax: 215-440-9313

https://rarediseases.org/es/organizations/american-association-for-cancer-research/

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American Association for Continuity of Care

Teléfono: 860-586-7525 Correo electrónico: [email protected] Fax: 860-586-7550

https://rarediseases.org/es/organizations/american-association-for-continuity-of-care/

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American Association for Geriatric Psychiatry

Teléfono: 301-654-7850 Correo electrónico: [email protected] Fax: 301-654-4137

https://rarediseases.org/es/organizations/american-association-for-geriatric-psychiatry/

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American Association for Klinefelter Syndrome Information and Support

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-association-for-klinefelter-syndrome-information-and-support/

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American Association of Clinical Endocrinologists

Teléfono: 904-353-7878 Fax: 904-353-8185

https://rarediseases.org/es/organizations/american-association-of-clinical-endocrinologists/

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American Association of Gynecologic Laparoscopists

Teléfono: 714-503-6200 Fax: 714-503-6201

https://rarediseases.org/es/organizations/american-association-of-gynecologic-laparoscopists/

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American Association of Immunologists

Teléfono: 301-634-7178 Correo electrónico: [email protected] Fax: 301-634-7887

https://rarediseases.org/es/organizations/american-association-of-immunologists/

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American Association of Kidney Patients

Teléfono: 813-636-8100 Correo electrónico: [email protected] Fax: 813-636-8122

Enfermedades raras relacionadas: Esclerosis Peritoneal Encapsulante, Síndrome de Liddle, Acidosis Tubular Renal Distal Primaria, ...

https://rarediseases.org/es/organizations/american-association-of-kidney-patients-2/

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American Association of Neurological Surgeons

Teléfono: 847-378-0500 Correo electrónico: [email protected] Fax: 847-378-0600

Enfermedades raras relacionadas: Síndrome de la regresión caudal

https://rarediseases.org/es/organizations/american-association-of-neurological-surgeons/

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American Association of Orthodontists

Teléfono: 314-993-1700 Correo electrónico: [email protected] Fax: 314-997-1745

https://rarediseases.org/es/organizations/american-association-of-orthodontists/

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American Association of Suicidology

Teléfono: 202-237-2280 Fax: 202-237-2282

https://rarediseases.org/es/organizations/american-association-of-suicidology/

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American Association of the Deaf-Blind

Teléfono: 301-495-4403 Correo electrónico: [email protected] Fax: 301-495-4404

https://rarediseases.org/es/organizations/american-association-of-the-deaf-blind/

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American Association of Tissue Banks

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-association-of-tissue-banks/

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American Bar Association Commission on Mental and Physical Disability Law

Teléfono: 202-662-1570 Correo electrónico: [email protected] Fax: 202-442-3439

https://rarediseases.org/es/organizations/american-bar-association-commission-on-mental-and-physical-disability-law/

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American Behcet’s Disease Association (ABDA)

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Síndrome de Behçet

https://rarediseases.org/es/organizations/american-behcets-disease-association-abda/

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American Board of Medical Specialties

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-board-of-medical-specialties/

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American Board of Ophthalomology

Teléfono: 610-664-1175 Correo electrónico: [email protected] Fax: 610-664-6503

https://rarediseases.org/es/organizations/american-board-of-ophthalomology/

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American Board of Psychiatry and Neurology, Inc.

Teléfono: 847-229-6500 Correo electrónico: [email protected] Fax: 847-229-6600

https://rarediseases.org/es/organizations/american-board-of-psychiatry-and-neurology-inc/

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American Bronchoesophagological Association

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-bronchoesophagological-association/

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American Cancer Society, Inc.

Teléfono: 404-320-3333

Enfermedades raras relacionadas: Neoplasia endocrina múltiple tipo 2, Cáncer de pulmón de células pequeñas, Cáncer de uraco, ...

https://rarediseases.org/es/organizations/american-cancer-society-inc/

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American Celiac Society – Dietary Support Coalition

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-celiac-society-dietary-support-coalition/

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American Childhood Cancer Organization

Teléfono: 301-962-3520 Correo electrónico: [email protected] Fax: 301-962-3521

Enfermedades raras relacionadas: Glioblastoma, Glioma, Pediatric Non-Small Cell Lung Cancer, ...

https://rarediseases.org/es/organizations/american-childhood-cancer-organization/

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American Chronic Pain Association

Correo electrónico: [email protected] Fax: 916-652-8190

Enfermedades raras relacionadas: Dolor ocular neuropático/nociplásico, Thoracic Outlet Syndrome, Central Pain Syndrome, ...

https://rarediseases.org/es/organizations/american-chronic-pain-association/

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American Cleft Palate-Craniofacial Association

Teléfono: 919-933-9044 Correo electrónico: [email protected] Fax: 919-933-9604

Enfermedades raras relacionadas: Miller Syndrome, Displasia con huesos incurvados asociada al gen FGFR2, Síndrome de hidantoína fetal, ...

https://rarediseases.org/es/organizations/american-cleft-palate-craniofacial-association/

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American College of Chest Physicians

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-college-of-chest-physicians/

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American College of Emergency Physicians

Teléfono: 972-550-0911 Correo electrónico: [email protected] Fax: 972-580-2816

https://rarediseases.org/es/organizations/american-college-of-emergency-physicians/

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American College of Gastroenterology

Teléfono: 301-263-9000

https://rarediseases.org/es/organizations/american-college-of-gastroenterology/

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American College of Medical Genetics

Teléfono: 301-718-9603 Correo electrónico: [email protected] Fax: 301-718-9604

https://rarediseases.org/es/organizations/american-college-of-medical-genetics/

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American College of Physicians – Internal Medicine

Teléfono: 215-351-2600

https://rarediseases.org/es/organizations/american-college-of-physicians-internal-medicine/

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American College of Rheumatology

Teléfono: 404-633-3777 Correo electrónico: [email protected] Fax: 404-633-1870

https://rarediseases.org/es/organizations/american-college-of-rheumatology/

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American College of Surgeons

Teléfono: 312-202-5000 Correo electrónico: [email protected] Fax: 312-202-5001

https://rarediseases.org/es/organizations/american-college-of-surgeons/

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American Congress of Obstetricians and Gynecologists

Teléfono: 202-638-5577 Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-congress-of-obstetricians-and-gynecologists/

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American Congress of Rehabilitation Medicine

Teléfono: 317-471-8760 Correo electrónico: [email protected] Fax: 317-471-8762

https://rarediseases.org/es/organizations/american-congress-of-rehabilitation-medicine/

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American Council for Headache Education

Teléfono: 856-423-0043 Correo electrónico: [email protected] Fax: 856-423-0082

Enfermedades raras relacionadas: Cluster Headache, Migraña hemipléjica

https://rarediseases.org/es/organizations/american-council-for-headache-education/

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American Council of the Blind

Teléfono: 202-467-5081 Correo electrónico: [email protected] Fax: 202-465-5085

Enfermedades raras relacionadas: Síndrome de megalocórnea-discapacidad intelectual, Amaurosis congénita de Leber, Retinitis Pigmentaria, ...

https://rarediseases.org/es/organizations/american-council-of-the-blind/

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American Council on Rural Special Education

Teléfono: 304-293-3450 Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-council-on-rural-special-education/

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American Dental Association

Teléfono: 312-440-2500 Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/american-dental-association/

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American Diabetes Association

Teléfono: 703-549-1500 Correo electrónico: [email protected] Fax: 703-549-6995

Enfermedades raras relacionadas: Mandibuloacral Dysplasia, Ataxia de Friedreich, Lipodistrofia adquirida, ...

https://rarediseases.org/es/organizations/american-diabetes-association/

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American Epilepsy Society

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Febrile Infection-Related Epilepsy Syndrome (FIRES), Síndrome de Lennox-Gastaut, Trastorno del neurodesarrollo relacionado con SETD1B, ...

https://rarediseases.org/es/organizations/american-epilepsy-society/

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American Foundation for the Blind

Teléfono: 212-502-7600 Correo electrónico: [email protected] Fax: 888-545-8331

Enfermedades raras relacionadas: Síndrome CHARGE, Amaurosis congénita de Leber, Retinitis Pigmentaria, ...

https://rarediseases.org/es/organizations/american-foundation-for-the-blind/

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American Gastroenterological Association

Teléfono: 301-654-2055 Correo electrónico: [email protected] Fax: 301-654-5920

https://rarediseases.org/es/organizations/american-gastroenterological-association/

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American Geriatrics Society

Teléfono: 212-308-1414 Correo electrónico: [email protected] Fax: 212-832-8646

https://rarediseases.org/es/organizations/american-geriatrics-society/

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American Hearing Research Foundation

Teléfono: 630-617-5079 Correo electrónico: [email protected] Fax: 630-563-9181

Enfermedades raras relacionadas: Tinnitus

https://rarediseases.org/es/organizations/american-hearing-research-foundation/

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