June 17, 2015
Today, the National Organization for Rare Disorders (NORD), Biotechnology Industry Organization (BIO), and Ernst & Young released “Impact of the Orphan Drug Tax Credit on Treatments for Rare Diseases,” a new white paper examining the role of the Orphan Drug Tax Credit (ODTC) on rare disease drug discovery. Patients share their experiences in profiles that accompany this study. Read… Read More
TOPIC: Patient Stories
When a psychiatrist diagnosed Robyn Fell’s toddler on the Autism spectrum, she was in shock. “It’s not that I was in denial,” she explained, “my son, Zan, did have many unusual behaviors.” A personality that included an insatiable obsession with certain toys, an inability to accept changes in routines and a gift for remembering names and events long after… Read More
Beau Biden, former Attorney General of the State of Delaware and son of Vice President Joe Biden, passed away on Saturday, May 30, due to brain cancer.