TOPIC: Advocacy, Events, Get Involved
Save the date for Sept. 21-22 for a nationwide day of action! Join NORD and 300+ partner organizations as we ‘rally’ for medical research as part of the annual Rally for Medical Research Capitol Hill Day.
Federal funding for medical research is critical to the health and well-being of… Read More
TOPIC: Uncategorized
A recent article in the Financial Times (June 24, 2016) looked at the growing impact families have on medical research. According to the Center of Strategic Philanthropy at the Milken Institute, family foundations provide approximately 3 percent of all medical research funding in the U.S. Families also help bridge… Read More
TOPIC: Press Releases, Medical
As part of its ongoing series to promote physician awareness of rare diseases, the National Organization for Rare Disorders (NORD) has published a Physician Guide to Mitochondrial Myopathies, available free online to medical professionals around the world.
The NORD Physician Guide was written by two widely acknowledged experts on this topic, Dr. Michelangelo Mancuso of University… Read More
TOPIC: Events
The complete agenda for the 2016 Rare Diseases & Orphan Products Breakthrough Summit is just around the corner! We’re excited to share with you all that we’ve been working on – here’s a sneak peek of what’s new and
TOPIC: Advocacy, Get Involved
NORD has recently become a member of a coalition of patient groups in Oregon seeking to reduce out-of-pocket drug costs for patients.
The Oregon legislature recently created a Prescription Drug Cost Working Group which will be meeting for the first time this month.
As part of its participation in this… Read More
