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August 6, 2015

TOPIC: Featured News

Rare Disease Report and NORD Announce Editorial Collaboration

Posted by Lisa Sencen

Today, Rare Disease Report®, the flagship property of Rare Disease Communications® (RDC), a growing healthcare communications and media company, and the National Organization for Rare Disorders  (NORD)®, the leading, independent nonprofit organization committed to the identification, treatment and cure of rare diseases, announced a new editorial collaboration.

The collaboration will frdrocus… Read More

August 5, 2015

TOPIC: Advocacy

NORD Signs Letter with Center for Responsible Science Calling for Changes at the FDA

Posted by Jennifer Huron

NORD joined a coalition of nonprofit advocacy organizations, technology developers and patient interest groups, led by the Center for Responsible Science (CRS), in calling for the FDA to update regulations that govern preclinical drug and device development.  The coalition filed an FDA Citizen Petition with the aim to streamline drug and device development to ensure safer and more… Read More