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October 26, 2016

TOPIC: Press Releases, Medical

NORD Publishes Physician Guide to Cutaneous T-Cell Lymphoma

Posted by Jennifer Huron

Washington, D.C., October 26, 2016—As part of its ongoing series to promote physician awareness of rare diseases, the National Organization for Rare Disorders has published The NORD Physician Guide to Cutaneous T-Cell Lymphoma (CTCL). This new resource is available free online to medical professionals around the world.

As the primary advocacy organization in the U.S. for people who… Read More

October 17, 2016

TOPIC: Events

FDA Commissioner Dr. Robert Califf Delivers Keynote Address at NORD Summit

Posted by Jennifer Huron

FDA Commissioner Dr. Robert Califf delivered the following keynote address today at NORD’s 2016 Rare Diseases and Orphan Products Breakthrough Summit.  The Summit was attended by 600 people from all areas of rare diseases.  NORD, the leading independent nonprofit dedicated to helping people with rare diseases, hosts the 2-day event… Read More

October 14, 2016

TOPIC: Press Releases, Featured News, Events, Patient Stories

Nominations Open for NORD’s 2017 Rare Impact Awards

Posted by Jennifer Huron

Washington, D.C., October 14, 2016—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today announced it is accepting nominations for the 2017 Rare Impact Awards.

Submissions are now open online at www.rareimpact.org/awards.  Submissions will close on Friday, January 13, 2017.

The 2017 Rare Impact Awards continues NORD’s 31-year tradition… Read More

October 5, 2016

TOPIC: Press Releases, Featured News, Events

Rare Diseases & Orphan Products Breakthrough Summit Speakers

Posted by Jennifer Huron

RareSummit_Logo_RGB_smallWashington, D.C., October 5, 2016 – NORD, the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today announced the three keynote speakers for its 2016 Rare Diseases & Orphan Products Breakthrough Summit to be held Oct. 17-18 in Arlington, VA.

Read More

September 30, 2016

TOPIC: Uncategorized

President Obama Signs Advancing Hope Act

Posted by Jennifer Huron

 

white-houseWashington, D.C., September 30, 2016 – Today, President Obama signed the Advancing Hope Act (S. 1878), extending the Rare Pediatric Disease Priority Review Voucher (PRV) program until December 31.

“On behalf of the 15 million children with rare diseases, we thank the President for signing the Advancing Hope Act so… Read More