NORD was glad to have the opportunity to submit comments to the National Institutes of Health (NIH) for its Strategic Plan, where we talked about the importance of programs for rare …
Greetings from Salt Lake City (Day 2), As promised, I’m happy to introduce you to NORD’s State Ambassador for Utah, Gina Szajnuk. Say hello, Gina: “I am the mother of three children …
Greetings from Salt Lake City, This is part 1 of 2 of two posts on SLC. Tomorrow I will post on our State Ambassador, Gina Szajnuk. Today, I’m happy to share a …
NORD joined a coalition of nonprofit advocacy organizations, technology developers and patient interest groups, led by the Center for Responsible Science (CRS), in calling for the FDA to update regulations that …
Greetings from Denver, As the road tour heads further west, the distances between stops grow longer and longer. More time in the car means less time to blog. But, 10 hours and 632 …