February 3, 2014
TOPIC: Advocacy, Featured News, Patients & Members
Building on Policy Momentum
Posted by Paul Melmeyer
The rare disease community has seen several policy wins in the past few months, some of which may have gone unnoticed. First, in November, Congress passed the National Pediatric Research Network Act as part of the PREEMIE Reauthorization Act. President Obama signed the measure into law on November 27th. (more…)