December 2, 2014
TOPIC: Uncategorized
Featured NORD Member Org: CTF
Posted by Christina Jensen
TOPIC: Uncategorized
TOPIC: Featured News, Industry, Patients & Members
The National Organization for Rare Disorders (NORD) focused a spotlight on individuals and families who display great courage as they live with rare diseases at its Portraits of Courage Celebration last night.
TOPIC: Featured News, Medical, Patients & Members, Research
TOPIC: Featured News, Medical, Patients & Members, Research
TOPIC: Advocacy, Featured News, Patients & Members, Research
Vanessa Devore’s father, Octavio Armenta was never diagnosed, and neither was her grandfather. Hailing from Guadalajara, Mexico, she represents a legacy of fighters against an unknown disease, as the pioneer… Read More
