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As a nonprofit organization, NORD relies upon the generous donations of individuals to maintain its programs and services, and fulfill its mission of improving the lives of all people affected by rare diseases.

How is NORD funded?

NORD’s primary sources of funding are grants and contracts, contributions, and an annual fund-raising event. Specific sources of revenue include:

  • administrative fees and grants for patient assistance programs
  • foundation and corporate grants
  • individual and organizational membership dues
  • conferences and events
  • philanthropic contributions from individuals, organizations, and companies


Financial Documentation

2020 Annual Report

2020 Audited Financials

2020 Form 990

2019 Annual Report

2019 Audited Financials

2018 Annual Report

2018 Audited Financials

2018 Form 990

IRS Letter of Determination of 501(c)3 Status

2017 Annual Report

2017 Audited Financials

2017 Form 990

2016 Annual Report

2016 Audited Financials

2016 Form 990 

2015 Form 990

2015 Annual Report

2014 Annual Report

2014 Audited Financials

2013 Annual Report

2013 Audited Financials

2012 Annual Report

2012 Audited Financials

2011 Audited Financials

How are donations used?

Donations are used to support NORD’s wide range of programs and services that serve patients and their caregivers and the organizations that serve them. Learn about NORD’s full breadth of programs.