Published July 13, 2017 by NORD
Washington, D.C., July 13, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the …
Read morePublished July 12, 2017 by NORD
Washington, D.C., July 12, 2017 – The National Health Council (NHC) and the National Organization for Rare Disorders (NORD) commend the House of Representatives for passing the FDA Reauthorization Act (FDARA) …
Read morePublished June 30, 2017 by NORD
NORD releases Summer 2017 Legislative Tracker showing that bills that are being tracked that will affect people with rare diseases.
Read morePublished June 29, 2017 by NORD
Update: June 29, 2017–Today, H 239, a bill that would establish a Rare Disease Adviosry Council and provide Pennsylvania’s 1.2 million rare disease patients with a voice in the state …
Continue reading “Rare Disease Advisory Council Bill Moves through Pennsylvania House”
Read morePublished June 29, 2017 by NORD
Washington, D.C., June 29, 2017 — The following statement was issued today by Peter L. Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD), following the FDA’s announcement …
Continue reading “NORD Issues Statement on the FDA’s Orphan Drug Modernization Plan”
Read morePublished June 27, 2017 by NORD
Washington, D.C., June 27, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response …
Read morePublished June 22, 2017 by NORD
Washington, D.C., June 22, 2017 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding …
Continue reading “NORD Issues Statement on the Better Care Reconciliation Act of 2017”
Read morePublished June 20, 2017 by NORD
Washington, D.C., June 20, 2017 – The National Organization for Rare Disorders (NORD), an independent nonprofit organization representing the 30 million Americans with rare diseases, has launched a nationwide campaign to …
Read morePublished May 10, 2017 by NORD
Washington, D.C., May 10, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement on the confirmation by the …
Continue reading “NORD Issues Statement on Confirmation of New FDA Commissioner, Dr. Scott Gottlieb”
Read morePublished May 4, 2017 by NORD
Washington, D.C., May 4, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response …
Continue reading “NORD Issues Statement on Today’s Passage of the American Health Care Act”
Read more
Your gift today fuels progress in the lab, in clinics, on Capitol Hill and for rare families who can’t wait another year for answers.
Please complete this form to access the requested resource.