Published August 31, 2017 by NORD
Hurricane Harvey has left thousands rid of their belongings and forced out of their homes. For individuals living with a rare disease, the impact of such natural disasters can be …
Continue reading “Downloadable Hurricane Harvey Emergency Relief Resources”
Read morePublished August 21, 2017 by NORD
Washington, D.C., August 21, 2017—Peter L. Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, …
Read morePublished August 15, 2017 by NORD
Register now for the NORD Rare Summit to advance the dialogue on issues of unprecedented importance to the rare disease community.
Read morePublished August 3, 2017 by NORD
Washington, D.C., August 3, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response …
Read morePublished July 28, 2017 by NORD
Washington, D.C., July 28, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the …
Continue reading “NORD Issues Statement on the Latest ACA Repeal and Replace Developments”
Read morePublished July 20, 2017 by NORD
A note from Paul Melmeyer, NORD’s Director of Federal Policy, on where healthcare reform stands as of today and how to get involved. As part of our “Days of Action …
Continue reading “The BCRA and Healthcare Reform: NORD’s Latest Update”
Read morePublished July 20, 2017 by NORD
Washington, D.C. July 19, 2017 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, has announced two keynote …
Read morePublished July 13, 2017 by NORD
Washington, D.C., July 13, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the …
Read morePublished July 12, 2017 by NORD
Washington, D.C., July 12, 2017 – The National Health Council (NHC) and the National Organization for Rare Disorders (NORD) commend the House of Representatives for passing the FDA Reauthorization Act (FDARA) …
Read morePublished June 30, 2017 by NORD
NORD releases Summer 2017 Legislative Tracker showing that bills that are being tracked that will affect people with rare diseases.
Read more
Your gift today fuels progress in the lab, in clinics, on Capitol Hill and for rare families who can’t wait another year for answers.
Please complete this form to access the requested resource.