Published June 29, 2017 by NORD
Washington, D.C., June 29, 2017 — The following statement was issued today by Peter L. Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD), following the FDA’s announcement …
Continue reading “NORD Issues Statement on the FDA’s Orphan Drug Modernization Plan”
Read morePublished June 27, 2017 by NORD
Washington, D.C., June 27, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response …
Read morePublished June 22, 2017 by NORD
Washington, D.C., June 22, 2017 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding …
Continue reading “NORD Issues Statement on the Better Care Reconciliation Act of 2017”
Read morePublished June 20, 2017 by NORD
Washington, D.C., June 20, 2017 – The National Organization for Rare Disorders (NORD), an independent nonprofit organization representing the 30 million Americans with rare diseases, has launched a nationwide campaign to …
Read morePublished May 10, 2017 by NORD
Washington, D.C., May 10, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement on the confirmation by the …
Continue reading “NORD Issues Statement on Confirmation of New FDA Commissioner, Dr. Scott Gottlieb”
Read morePublished May 4, 2017 by NORD
Washington, D.C., May 4, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response …
Continue reading “NORD Issues Statement on Today’s Passage of the American Health Care Act”
Read morePublished May 2, 2017 by NORD
WASHINGTON, D.C., May 2, 2017–Seven patient advocacy organizations today laid out a joint set of principles to guide any efforts that seek to change the process of accessing unapproved therapies …
Read morePublished May 1, 2017 by NORD
Washington (May 1, 2017) – On behalf of more than one hundred million Americans battling chronic and other major health conditions, a coalition of 10 patient organizations remains united in …
Continue reading “Leading Patient Advocacy Groups Stand Together to Oppose American Health Care Act”
Read morePublished May 1, 2017 by NORD
CALL TO ACTION: Congress could vote this week – please take a minute to phone your legislators and ask them to vote no (click) Washington, D.C., May 1, 2017—The National …
Read morePublished April 5, 2017 by NORD
Lawmakers are currently considering legislation to reauthorize FDA user fees. The FDA largely relies on user fees to operate and review innovative drugs, biologics, and devices. Not only does this …
Continue reading “Advocacy Alert: Tell Congress to Act Now and Pass FDA User Fee Agreements”
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