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December 18, 2014

TOPIC: Advocacy, Events, Featured News, Industry, Medical, Patients & Members, Press Releases, Research

The Will to Live and the Strength for a Cure

Posted at December 12, 2014 05:54 am by admin

The day Joshua Frase was born, his parents Alison and Paul, were given grave news about their newborn’s life – he most likely would not survive that day. His weakened muscles could not function normally which affected his ability to breathe on his own. Miraculously, Joshua survived, and when he was three-months old, a muscle biopsy revealed he had… Read More

November 5, 2014

TOPIC: Advocacy, Featured News, Patients & Members, Research

Multiple Endocrine Neoplasia Type 1: One Family’s Fight

Posted at November 11, 2014 03:15 pm by

Vanessa Devore’s father, Octavio Armenta was never diagnosed, and neither was her grandfather. Hailing from Guadalajara, Mexico, she represents a legacy of fighters against an unknown disease, as the pioneer… Read More

October 7, 2014

TOPIC: Advocacy, Featured News, Medical, Patients & Members, Research

Taking Action for ACD

Posted at October 10, 2014 02:37 pm by

On February 20th, 2013, Eliza and John Rista of Huntersville, North Carolina were blessed with an uncomplicated pregnancy, and a healthy, full-term baby boy weighing 8 pounds and 6 ounces. “Around midnight on the day of my son’s birth, my husband and… Read More

September 16, 2014

TOPIC: Advocacy, Featured News, Industry, Medical, Patients & Members, Research

Living with Blood Cancer

Posted at September 9, 2014 05:09 pm by

Editor’s note: The following blog is being published to highlight Blood Cancer Awareness Month and MPN Awareness Day.  

I was diagnosed with essential thrombocythemia (ET) at age 16 after collapsing in my high school cafeteria. At that time, lab results showed I had a platelet count of over 1 million and my world was forever changed. During the last… Read More