Be a Hero-Help NORD Help Patients Obtain Life-Saving Treatments
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When you or a beloved family member is facing serious illness, the last thing you need to be concerned with is how you will pay for the medication.
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Published December 4, 2015 by NORD
When you or a beloved family member is facing serious illness, the last thing you need to be concerned with is how you will pay for the medication.
Read morePublished December 2, 2015 by NORD
Education has always been a key component of NORD’s mission and this year we expanded our outreach to two vitally important audiences – medical professionals and students preparing for health-related …
Continue reading “Be a Hero: Help NORD Educate Current and Future Medical Professionals”
Read morePublished November 20, 2015 by NORD
Next week, a Food and Drug Administration panel of experts will hold the first of two meetings to review two drugs designed to slow the muscle wasting effects associated with Duchenne …
Read morePublished November 17, 2015 by NORD
The National Organization for Rare Disorders (NORD) today urged the Senate HELP Committee to move quickly to advance the confirmation of Robert Califf, M.D., as the next Commissioner of the …
Continue reading “NORD Supports Nomination of Dr. Califf for FDA Commissioner”
Read morePublished November 9, 2015 by NORD
Laurie and Chuck Eallonardo were thrilled at the birth of their twins, Jenna and Caden. Laurie felt happy and relieved that she had been able to carry them for 38 …
Continue reading “Giving Spotlight: Parents Thank NORD for Saving Daughter’s Life”
Read morePublished October 22, 2015 by NORD
Announcing NORD’s State Progress Report, a Roadmap for State Improvement.
Read morePublished October 12, 2015 by NORD
Date: February 29, 2016 Global Theme: Patient Voice Global Slogan: Join us in making the voice of rare diseases heard By definition, each rare disease affects a small segment of …
Continue reading “Raise Your Voice: Rare Disease Day 2016 is Coming”
Read morePublished October 5, 2015 by NORD
While the approximately 7,000 known rare diseases run the full spectrum of symptoms and experience, rare disease patients encounter many common obstacles. Rare patients face incredible difficulty finding safe and …
Continue reading “The Undiagnosed: Orphans of the Rare Disease Community”
Read morePublished September 29, 2015 by NORD
The following statement was issued by Peter L. Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD), on yesterday’s approval of the Ensuring Access to Clinical Trials …
Read morePublished September 21, 2015 by NORD
As part of the American Plasma Users Coalition (A-PLUS), NORD and several of its member organizations submitted letters to Department of Health and Human Services Secretary Sylvia Mathews Burwell and …
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