Rare Disease News

Rare Action™ Road Tour, Salt Lake City, UT

Published August 7, 2015 by NORD

Greetings from Salt Lake City (Day 2), As promised, I’m happy to introduce you to NORD’s State Ambassador for Utah, Gina Szajnuk. Say hello, Gina: “I am the mother of three children …

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Rare Action™ Road Tour, Denver, CO

Published August 3, 2015 by NORD

Greetings from Denver, As the road tour heads further west, the distances between stops grow longer and longer. More time in the car means less time to blog. But, 10 hours and 632 …

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Taking Rare Action™ on the Road

Published August 3, 2015 by NORD

Follow the cross-country road tour that introduces the NORD State Ambassadors and promotes the Rare Action Network™.

Rare Action™ Road Tour, Oklahoma City, OK

Published July 30, 2015 by NORD

Greetings from Oklahoma, The awesome folks in the NORD marketing department created the snazzy logo and imagery that you see above (and in all previous posts). Driving through Oklahoma today, …

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Rare Action™ Road Tour, Houston, TX

Published July 28, 2015 by NORD

Howdy from Houston, The drive from Mobile, Alabama was a bit of a nightmare. The I-10 was jammed for hours so I finally thought, “hey, lets just take some byways …

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Rare Action™ Road Tour, Tallahassee, FL

Published July 28, 2015 by NORD

Greetings from Tallahassee, As Einstein famously postulated, time is relative. I will make use of this fact to take you back in time to my visit to Tallahassee, Florida (schedules …

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