Published May 28, 2015 by NORD
Madrid and Washington, D.C.—May 28, 2015—The global voice for rare disease patients launches today. More than 60 patient representatives from 30 countries are gathering in Madrid, …
Read morePublished May 21, 2015 by NORD
NORD President and CEO Peter L. Saltonstall today issued the following statement on the approval by the House Energy and Commerce Committee of the 21st Century Cures legislative initiative and …
Continue reading “NORD Issues Statement on Today’s Approval of the 21st Century Cures Initiative”
Read morePublished April 28, 2015 by NORD
Paul Melmeyer, NORD’s Assistant Director of Public Policy, attended the FDA’s public meeting on Chagas Disease Patient-Focused Drug Development on April 28. Chagas is a rare parasitic disease (read NORD’s …
Continue reading “FDA Public Meeting on Chagas Disease Patient-Focused Drug Development”
Read morePublished December 23, 2014 by NORD
The day Joshua Frase was born, his parents Alison and Paul, were given grave news about their newborn’s life
Read morePublished December 23, 2014 by NORD
I’m honored to be speaking at the NORD Breakthrough Summit on Rare Diseases and Orphan Products in October
Read morePublished December 23, 2014 by NORD
Vanessa Devore’s father, Octavio Armenta was never diagnosed, and neither was her grandfather. Hailing from Guadalajara, Mexico, she represents a legacy of fighters against an unknown disease, as the pioneer in her …
Continue reading “Multiple Endocrine Neoplasia Type 1: One Family’s Fight”
Read morePublished December 23, 2014 by NORD
On February 20th, 2013, Eliza and John Rista of Huntersville, North Carolina were blessed with an uncomplicated pregnancy, and a healthy, full-term baby boy weighing 8 pounds and 6 ounces. …
Continue reading “Taking Action for ACD”
Read morePublished December 18, 2014 by NORD
The day Joshua Frase was born, his parents Alison and Paul, were given grave news about…
Read morePublished November 5, 2014 by NORD
Vanessa Devore’s father, Octavio Armenta was never diagnosed, and neither was her grandfather. Hailing from Guadalajara, Mexico, she represents a legacy of fighters against an unknown disease, as the pioneer in her …
Continue reading “Multiple Endocrine Neoplasia Type 1: One Family’s Fight”
Read morePublished October 7, 2014 by NORD
On February 20th, 2013, Eliza and John Rista of Huntersville, North Carolina were blessed with an uncomplicated pregnancy, and a healthy, full-term baby boy weighing 8 pounds and 6 ounces. …
Continue reading “Taking Action for ACD”
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