Published September 21, 2015 by NORD
Member Spotlight: HLRCC Family Alliance
Read morePublished September 16, 2015 by NORD
Theme: Patient Voice Slogan: Join us in making the voice of rare diseases heard It’s here! As the official sponsor and host of Rare Disease Day in the U.S., NORD …
Continue reading “Rare Disease Day 2016 Theme and Slogan Announced!”
Read morePublished September 16, 2015 by NORD
Theme: Patient Voice Slogan: Join us in making the voice of rare diseases heard As the official sponsor and host of Rare Disease Day in the U.S., NORD is excited …
Continue reading “Rare Disease Day 2016 Theme and Slogan Announced”
Read morePublished September 15, 2015 by NORD
This past week, the National Organization for Rare Disorders (NORD) was named “charity of the week” by The Week magazine. Each charity featured in The Week has earned a four-star …
Continue reading “NORD Named Charity of the Week By The Week Magazine”
Read morePublished September 14, 2015 by NORD
Member Spotlight: This organization works to support women with Lymphangioleiomyomatosis (LAM).
Read morePublished September 11, 2015 by NORD
Meet Irelynn! She is 11 years old and was recently crowned Miss Pre-Teen Connecticut. Her platform for pageants is pancreatic cancer and she has been raising awareness for NORD’s member …
Continue reading “Miss Pre-Teen Connecticut Visits NORD”
Read morePublished September 8, 2015 by NORD
Member Spotlight: The Sturge-Weber Foundation seeks to educate the medical community, government agencies, and the general public.
Read morePublished September 3, 2015 by NORD
This blog post was written by Lisa Yue, Children’s Cardioymyopathy Foundation’s Founding Executive Director. When one thinks of heart disease, adults usually come to mind. The reality is children …
Read morePublished September 2, 2015 by NORD
A few months ago, NORD and our members hosted a “Meet the Patients” event at the annual conference of the American Medical Student Association (AMSA). We were thrilled with the …
Continue reading “NORD’S Free Student Membership: Sign up Today!”
Read morePublished August 31, 2015 by NORD
Next month, millions of Americans will tune in to watch the Miss America Pageant, airing live on ABC on September 13, 2015, from Atlantic City, New Jersey. We were excited …
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