Rare Disease Resource Library

Advocacy, Insurance, PDF, Policy,

May 12, 2025

Advocacy Priority: Medicaid

Advocates, Patient & Caregiver, Insurance, Legislative Advocacy, Regulatory, Webinar, Policy,

November 27, 2023

Medicaid Unwinding

Patient & Caregiver, Insurance, Infographic, PDF,

October 11, 2023

Guide to Medicare Open Enrollment for 2024

Advocates, Patient & Caregiver, Patient Organizations, Students & Volunteers, Insurance, Research & Drug Development, Understanding Rare Disease, Educational Video, Education, Policy,

September 28, 2022

What does an insurance plan cover?

Advocates, Patient & Caregiver, Patient Organizations, Advocacy, Insurance, Research & Drug Development, Understanding Rare Disease, Educational Video, Education,

How to Make Your Health Insurance Work For You