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Home / Patient Organizations / Patient Organizations
Gerontological Society of America
Teléfono: 202-842-1275 Correo electrónico: [email protected] Fax: 202-842-1150
https://rarediseases.org/es/organizations/gerontological-society-of-america/
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GFPD
https://rarediseases.org/es/organizations/gfpd/
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Gilda Radner Familial Ovarian Cancer Registry
Teléfono: 716-845-4503 Correo electrónico: [email protected] Fax: 716-845-8266
https://rarediseases.org/es/organizations/gilda-radner-familial-ovarian-cancer-registry/
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GIST Cancer Research Fund
Teléfono: 845-634-6060 Correo electrónico: [email protected] Fax: 845-634-1174
Enfermedades raras relacionadas: Tumores del estroma gastrointestinal
https://rarediseases.org/es/organizations/gist-cancer-research-fund/
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GIST Support International
Teléfono: 215-340-9374 Correo electrónico: [email protected] Fax: 215-340-1630
Enfermedades raras relacionadas: Tumores del estroma gastrointestinal
https://rarediseases.org/es/organizations/gist-support-international/
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Give an Hour
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/give-an-hour/
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Glanzmann’s Research Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/glanzmanns-research-foundation/
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Glaucoma Research Foundation
Teléfono: 415-986-3162 Correo electrónico: [email protected] Fax: 415-986-3763
Enfermedades raras relacionadas: Síndrome de megalocórnea-discapacidad intelectual, Síndrome de Cogan-Reese, Aniridia Cerebellar Ataxia Mental Deficiency, ...
https://rarediseases.org/es/organizations/glaucoma-research-foundation/
Ver perfil >
GliaConnect
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/gliaconnect/
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Glioblastoma Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/glioblastoma-foundation/
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Global and Regional Asperger’s Syndrome Partnership (GRASP)
Teléfono: 888-474-7277 Correo electrónico: [email protected] Fax: 888-474-7277
https://rarediseases.org/es/organizations/global-and-regional-aspergers-syndrome-partnership-grasp/
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Global DARE Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Refsum Disease
https://rarediseases.org/es/organizations/global-dare-foundation/
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Global Fibrosis Foundation
Teléfono: 727-433-8180 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Nephrogenic Systemic Fibrosis, Idiopathic Pulmonary Fibrosis, Scleroderma, ...
https://rarediseases.org/es/organizations/global-fibrosis-foundation/
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Global FKRP Registry
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Congenital Muscular Dystrophy, Síndrome de Walker Warburg, Limb-Girdle Muscular Dystrophies ...
https://rarediseases.org/es/organizations/global-fkrp-registry/
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Global Foundation for Peroxisomal Disorders
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Zellweger Spectrum Disorders
https://rarediseases.org/es/organizations/global-foundation-for-peroxisomal-disorders/
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Global Genes
Teléfono: 949-248-7273
https://rarediseases.org/es/organizations/global-genes/
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Global Healthy Living Foundation (GHLF)
Teléfono: 845-348-0400 Correo electrónico: [email protected] Fax: 845-348-0210
Enfermedades raras relacionadas: Fibromyalgia
https://rarediseases.org/es/organizations/global-healthy-living-foundation-ghlf/
Ver perfil >
Global Hydranencephaly Foundation
https://rarediseases.org/es/organizations/global-hydranencephaly-foundation/
Ver perfil >
Global Liver Institute
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/global-liver-institute/
Ver perfil >
Glut1 Deficiency Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de deficiencia del transportador de glucosa tipo 1
https://rarediseases.org/es/organizations/glut1-deficiency-foundation/
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Gluten Intolerance Group of North America
Teléfono: 253-833-6655 Correo electrónico: [email protected] Fax: 253-833-6675
Enfermedades raras relacionadas: Enfermedad Celíaca Refractaria, Celiac Disease, Dermatitis Herpetiformis ...
https://rarediseases.org/es/organizations/gluten-intolerance-group-of-north-america/
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GNB1 Advocacy Group, Inc.
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Trastorno relacionado con GNB1
https://rarediseases.org/es/organizations/gnb1-advocacy-group-inc/
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goldenhar Family Support Group
Teléfono: 158-071-4042 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/goldenhar-family-support-group/
Ver perfil >
goldenhar Syndrome Support Network Society
Correo electrónico: [email protected] Fax: 702-341-5351
Enfermedades raras relacionadas: Oculo-Auriculo-Vertebral Spectrum
https://rarediseases.org/es/organizations/goldenhar-syndrome-support-network-society/
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Gorlin Syndrome Alliance
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome del carcinoma basocelular nevoide
https://rarediseases.org/es/organizations/gorlin-syndrome-alliance/
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Gorlin Syndrome Group
Enfermedades raras relacionadas: Síndrome del carcinoma basocelular nevoide
https://rarediseases.org/es/organizations/gorlin-syndrome-group/
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GPT2Deficiency.org
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Deficiencia de GPT2
https://rarediseases.org/es/organizations/gpt2deficiency-org/
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Grace Science Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Deficiencia de NGLY1
https://rarediseases.org/es/organizations/grace-science-foundation/
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Graves’ Disease & Thyroid Foundation
Teléfono: 877-643-3123 Correo electrónico: [email protected] Fax: 877-643-3123
Enfermedades raras relacionadas: Graves’ Disease, Enfermedad ocular tiroidea
https://rarediseases.org/es/organizations/graves-disease-thyroid-foundation/
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Greyhound Customers with Disabilities Travel Assistance
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/greyhound-customers-with-disabilities-travel-assistance/
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Grin2B Foundation
Miembro NORD
Teléfono: 818-800-0470 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Trastornos relacionados con GRIN
https://rarediseases.org/es/organizations/grin2b-foundation/
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Guide Dogs of America
Teléfono: 818-362-5834 Correo electrónico: [email protected] Fax: 818-362-6870
https://rarediseases.org/es/organizations/guide-dogs-of-america/
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Guiding Eyes for the Blind, Inc.
Teléfono: 914-245-4024 Correo electrónico: [email protected] Fax: 914-245-1609
Enfermedades raras relacionadas: Leber Hereditary Optic Neuropathy
https://rarediseases.org/es/organizations/guiding-eyes-for-the-blind-inc/
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Guillain-Barre & Associated Inflammatory Neuropathies
Teléfono: 152-946-9910 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Guillain Barre
https://rarediseases.org/es/organizations/guillain-barre-associated-inflammatory-neuropathies/
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Guillain-Barre Syndrome Foundation of Canada, Inc.
Teléfono: 905-640-0073 Correo electrónico: [email protected] Fax: 905-640-9815
Enfermedades raras relacionadas: Chronic Inflammatory Demyelinating Polyneuropathy, Síndrome de Guillain Barre
https://rarediseases.org/es/organizations/guillain-barre-syndrome-foundation-of-canada-inc/
Ver perfil >
Gut Check Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Mionecrosis Clostridial
https://rarediseases.org/es/organizations/gut-check-foundation/
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Guthy-Jackson Charitable Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Neuromyelitis Optica Spectrum Disorder
https://rarediseases.org/es/organizations/guthy-jackson-charitable-foundation/
Ver perfil >
Hairy Cell Leukemia Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Hairy Cell Leukemia
https://rarediseases.org/es/organizations/hairy-cell-leukemia-foundation/
Ver perfil >
Hajdu Cheney Syndrome Support Group
Enfermedades raras relacionadas: Síndrome de Hajdu Cheney
https://rarediseases.org/es/organizations/hajdu-cheney-syndrome-support-group/
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Hannah’s Hope Fund
Teléfono: 518-383-9053 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Giant Axonal Neuropathy
https://rarediseases.org/es/organizations/hannahs-hope-fund/
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Harvard Brain Tissue Resource Center
Teléfono: 617-855-2400 Correo electrónico: [email protected] Fax: 617-855-3199
Enfermedades raras relacionadas: Craneofaringioma, Astrocytoma, Anaplastic Astrocytoma, ...
https://rarediseases.org/es/organizations/harvard-brain-tissue-resource-center/
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Hastings Center
Teléfono: 845-424-4040 Correo electrónico: [email protected] Fax: 845-424-4545
https://rarediseases.org/es/organizations/hastings-center/
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HCU Network America
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Homocystinuria due to Cystathionine Beta-Synthase Deficiency
https://rarediseases.org/es/organizations/hcu-network-america/
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HCU Network Australia
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Homocystinuria due to Cystathionine Beta-Synthase Deficiency
https://rarediseases.org/es/organizations/hcu-network-australia/
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Headlines – Craniofacial Support Group
Teléfono: 145-485-0557 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Primary Craniosynostosis, Pfeiffer Syndrome, Saethre Chotzen Syndrome, ...
https://rarediseases.org/es/organizations/headlines-craniofacial-support-group/
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Healing Exchange Brain Trust
Teléfono: 877-252-8480 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/healing-exchange-brain-trust/
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Healing the Children Northeast, Inc.
Teléfono: 860-355-1828 Correo electrónico: [email protected] Fax: 860-350-6634
https://rarediseases.org/es/organizations/healing-the-children-northeast-inc/
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Health Agency of Canada
https://rarediseases.org/es/organizations/health-agency-of-canada/
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Health Connect of South Dakota
Teléfono: 605-371-1000 Correo electrónico: [email protected] Fax: 605-335-5514
https://rarediseases.org/es/organizations/health-connect-of-south-dakota/
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Health Information Network
Teléfono: 206-784-5655 Correo electrónico: [email protected] Fax: 203-784-3240
https://rarediseases.org/es/organizations/health-information-network/
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