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Home / Patient Organizations / Patient Organizations
Foundation For Sarcoidosis Research
Miembro NORD
Teléfono: 312-341-0500 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Sarcoidosis
https://rarediseases.org/es/organizations/foundation-for-sarcoidosis-research-fsr/
Ver perfil >
Foundation for Spinal Cord Injury Prevention, Care and Cure
Correo electrónico: [email protected] Fax: 810-714-0354
https://rarediseases.org/es/organizations/foundation-for-spinal-cord-injury-prevention-care-and-cure/
Ver perfil >
Foundation for the Study of Infant Deaths
Teléfono: 207-802-3200 Correo electrónico: [email protected] Fax: 870-787-0725
Enfermedades raras relacionadas: Sudden Infant Death Syndrome
https://rarediseases.org/es/organizations/foundation-for-the-study-of-infant-deaths/
Ver perfil >
Foundation for Thymic Cancer Research
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/foundation-for-thymic-cancer-research/
Ver perfil >
Foundation for USP7 Related Diseases
Correo electrónico: [email protected]
Enfermedades raras relacionadas: USP7-Related Diseases
https://rarediseases.org/es/organizations/foundation-for-usp7-related-diseases/
Ver perfil >
Foundation for Women’s Cancer
Teléfono: 312-578-1439 Correo electrónico: [email protected] Fax: 312-578-9769
Enfermedades raras relacionadas: Ovarian Cancer, Síndrome de cáncer hereditario de mama y/o de ovario
https://rarediseases.org/es/organizations/foundation-for-womens-cancer/
Ver perfil >
Foundation To Fight H-Abc
Miembro NORD
Teléfono: 240-472-2770 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/foundation-to-fight-h-abc/
Ver perfil >
Foundation: Non-profit, Rare Focused
https://rarediseases.org/es/organizations/foundation-non-profit-rare-focused/
Ver perfil >
FOXG1 Research Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/foxg1-research-foundation/
Ver perfil >
Fragile X Association of Michigan
Teléfono: 313-381-2834 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Fragile X Syndrome
https://rarediseases.org/es/organizations/fragile-x-association-of-michigan/
Ver perfil >
Fragile X Society
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Fragile X Syndrome
https://rarediseases.org/es/organizations/fragile-x-society/
Ver perfil >
FRAXA Research Foundation
Teléfono: 978-462-1866 Correo electrónico: [email protected] Fax: 978-463-9985
Enfermedades raras relacionadas: Fragile X Syndrome
https://rarediseases.org/es/organizations/fraxa-research-foundation/
Ver perfil >
Frederick R Corne Foundation
Teléfono: 419-407-6425 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/frederick-r-corne-foundation/
Ver perfil >
Friedreich’s Ataxia Research Alliance (Fara)
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Ataxia de Friedreich, Ataxia con deficiencia de vitamina E
https://rarediseases.org/es/organizations/friedreichs-ataxia-research-alliance-fara/
Ver perfil >
Friends of Cancer Research
Teléfono: 202-944-6700 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Cáncer de pulmón de células pequeñas, Cáncer de uraco, Linfoma gástrico primario, ...
https://rarediseases.org/es/organizations/friends-of-cancer-research/
Ver perfil >
Friends of Disabled Adults and Children, Too! Inc.
Correo electrónico: [email protected] Fax: 770-491-0026
https://rarediseases.org/es/organizations/friends-of-disabled-adults-and-children-too-inc/
Ver perfil >
Friendship That Gives
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/friendship-that-gives/
Ver perfil >
Frontotemporal Dementia Support Group
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/frontotemporal-dementia-support-group/
Ver perfil >
FSH-Muscular Dystrophy Support Group
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/fsh-muscular-dystrophy-support-group/
Ver perfil >
FSHD Society
Teléfono: 781-301-6060 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Facioscapulohumeral Muscular Dystrophy
https://rarediseases.org/es/organizations/fshd-society/
Ver perfil >
Fundaci�n FOP
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/fundacii%c2%bdn-fop/
Ver perfil >
Fundación Alfa-1 de Puerto Rico
Teléfono: 787-747-6270 Correo electrónico: [email protected] Fax: 787-747-6270
https://rarediseases.org/es/organizations/fundacii%c2%bdn-alfa-1-de-puerto-rico/
Ver perfil >
Fundacion Distonia (Dystonia)
Teléfono: 562-226-8874 Correo electrónico: [email protected] Fax: 562-226-7346
https://rarediseases.org/es/organizations/fundacion-distonia-dystonia/
Ver perfil >
G6PD Deficiency Association [Associazione Italiana Favismo, onlus]
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Glucose-6-Phosphate Dehydrogenase Deficiency
https://rarediseases.org/es/organizations/g6pd-deficiency-association-associazione-italiana-favismo-onlus/
Ver perfil >
GA GALT
https://rarediseases.org/es/organizations/ga-galt/
Ver perfil >
GADA CANADA
Teléfono: 905-826-3223 Correo electrónico: [email protected] Fax: 905-826-2125
Enfermedades raras relacionadas: Síndrome de Marfan, Síndrome de Shprintzen-Goldberg
https://rarediseases.org/es/organizations/gada-canada/
Ver perfil >
Galactosaemia Support Group
Teléfono: 121-378-5143 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Glucose-Galactose Malabsorption, Galactosemia
https://rarediseases.org/es/organizations/galactosaemia-support-group/
Ver perfil >
Galactosemia Foundation
Teléfono: 804-651-0330 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Galactosemia
https://rarediseases.org/es/organizations/galactosemia-foundation/
Ver perfil >
Gallaudet University Genetics Program
Teléfono: 202-651-5258 Correo electrónico: [email protected] Fax: 202-651-5258
https://rarediseases.org/es/organizations/gallaudet-university-genetics-program/
Ver perfil >
Gallbladder Cancer Foundation
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/gallbladder-cancer-foundation/
Ver perfil >
Garrod Association of Canada
Teléfono: 613-737-7600 Correo electrónico: pchakraborty at cheo.on.ca Fax: 613-738-4822
https://rarediseases.org/es/organizations/garrod-association-of-canada/
Ver perfil >
Gastro-Intestinal Research Foundation
Teléfono: 312-332-1350 Correo electrónico: [email protected] Fax: 312-332-4757
Enfermedades raras relacionadas: Pediatric Crohn’s Disease, Ulcerative Colitis
https://rarediseases.org/es/organizations/gastro-intestinal-research-foundation/
Ver perfil >
Gastroparesis Patient Association for Cures and Treatments, Inc.
Enfermedades raras relacionadas: Chronic Intestinal Pseudo-Obstruction, Gastroparesis
https://rarediseases.org/es/organizations/gastroparesis-patient-association-for-cures-and-treatments-inc/
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Gaucher Community Alliance (GCA)
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Enfermedad de Gaucher
https://rarediseases.org/es/organizations/gaucher-community-alliance-gca/
Ver perfil >
Gauchers Association (UK)
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Enfermedad de Gaucher
https://rarediseases.org/es/organizations/gauchers-association-uk/
Ver perfil >
GBS/CIDP Foundation International
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Neuropatía motora multifocal, Chronic Inflammatory Demyelinating Polyneuropathy, Síndrome de Guillain Barre, ...
https://rarediseases.org/es/organizations/gbs-cidp-foundation-international/
Ver perfil >
Gene People
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/gene-people/
Ver perfil >
GeneTests
Teléfono: 206-221-4674 Correo electrónico: [email protected] Fax: 206-221-4679
https://rarediseases.org/es/organizations/genetests/
Ver perfil >
Genetic Alliance
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Enfermedad de Pelizaeus-Merzbacher
https://rarediseases.org/es/organizations/genetic-alliance/
Ver perfil >
Genetic Alliance Australia
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/genetic-alliance-australia/
Ver perfil >
Genetic Alliance UK
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/genetic-alliance-uk/
Ver perfil >
Genetic and Rare Conditions Site
Teléfono: 913-588-6022 Correo electrónico: [email protected] Fax: 913-588-4060
https://rarediseases.org/es/organizations/genetic-and-rare-conditions-site/
Ver perfil >
Genetic and Rare Diseases (GARD) Information Center
Teléfono: 301-251-4925 Fax: 301-251-4911
Enfermedades raras relacionadas: Oncocitoma renal, Síndrome de la arteria mesentérica superior, Síndrome de Walker Warburg, ...
https://rarediseases.org/es/organizations/genetic-and-rare-diseases-gard-information-center/
Ver perfil >
Genetic and Rare Disorders Organisation
Correo electrónico: [email protected] or [email protected]
Enfermedades raras relacionadas: Oncocitoma renal
https://rarediseases.org/es/organizations/genetic-and-rare-disorders-organisation/
Ver perfil >
Genetic Disease Foundation
Teléfono: 212-659-6704 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/genetic-disease-foundation/
Ver perfil >
Genetic Support Network of Victoria
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/genetic-support-network-of-victoria/
Ver perfil >
Genetics Center, Inc.
Teléfono: 631-862-3620 Correo electrónico: [email protected] Fax: 631-862-3622
https://rarediseases.org/es/organizations/genetics-center-inc/
Ver perfil >
Geneva Centre for Autism
Teléfono: 416-322-7877 Correo electrónico: [email protected] Fax: 416-322-5894
https://rarediseases.org/es/organizations/geneva-centre-for-autism/
Ver perfil >
George Washington University HEATH Resource Center
Teléfono: 202-973-0904 Correo electrónico: [email protected] Fax: 202-973-0908
https://rarediseases.org/es/organizations/george-washington-university-heath-resource-center/
Ver perfil >
Georgetown University Medical Center
Teléfono: 202-687-0100 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/georgetown-university-medical-center/
Ver perfil >
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