Patient Organizations - Page 18 of 48 - National Organization for Rare Disorders

Foundation for Peripheral Neuropathy

Teléfono: 847-883-9942 Correo electrónico: [email protected] Fax: 847-883-9960

Enfermedades raras relacionadas: KIF1A-Related Disorder, Multifocal Motor Neuropathy, Hereditary Sensory and Autonomic Neuropathy Type 1E, ...

https://rarediseases.org/es/organizations/foundation-for-peripheral-neuropathy/

Ver perfil >

Foundation For Prader-Willi Research (FPWR)

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Prader-Willi Syndrome, Síndrome de Prader-Willi

https://rarediseases.org/es/organizations/foundation-for-prader-willi-research-fpwr/

Ver perfil >

Foundation for Research on Rare Diseases and Disorders

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/foundation-for-research-on-rare-diseases-and-disorders/

Ver perfil >

Foundation For Sarcoidosis Research

Miembro NORD

Teléfono: 312-341-0500 Correo electrónico: [email protected]

Enfermedades raras relacionadas: Sarcoidosis

https://rarediseases.org/es/organizations/foundation-for-sarcoidosis-research-fsr/

Ver perfil >

Foundation for Spinal Cord Injury Prevention, Care and Cure

Correo electrónico: [email protected] Fax: 810-714-0354

https://rarediseases.org/es/organizations/foundation-for-spinal-cord-injury-prevention-care-and-cure/

Ver perfil >

Foundation for the Study of Infant Deaths

Teléfono: 207-802-3200 Correo electrónico: [email protected] Fax: 870-787-0725

Enfermedades raras relacionadas: Sudden Infant Death Syndrome

https://rarediseases.org/es/organizations/foundation-for-the-study-of-infant-deaths/

Ver perfil >

Foundation for Thymic Cancer Research

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/foundation-for-thymic-cancer-research/

Ver perfil >

Foundation for USP7 Related Diseases

Correo electrónico: [email protected]

Enfermedades raras relacionadas: USP7-Related Diseases

https://rarediseases.org/es/organizations/foundation-for-usp7-related-diseases/

Ver perfil >

Foundation for Women’s Cancer

Teléfono: 312-578-1439 Correo electrónico: [email protected] Fax: 312-578-9769

Enfermedades raras relacionadas: Ovarian Cancer, Hereditary Breast and Ovarian Cancer Syndrome

https://rarediseases.org/es/organizations/foundation-for-womens-cancer/

Ver perfil >

Foundation To Fight H-Abc

Miembro NORD

Teléfono: 240-472-2770 Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/foundation-to-fight-h-abc/

Ver perfil >

Foundation: Non-profit, Rare Focused

https://rarediseases.org/es/organizations/foundation-non-profit-rare-focused/

Ver perfil >

FOXG1 Research Foundation

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/foxg1-research-foundation/

Ver perfil >

Fragile X Association of Michigan

Teléfono: 313-381-2834 Correo electrónico: [email protected]

Enfermedades raras relacionadas: Fragile X Syndrome

https://rarediseases.org/es/organizations/fragile-x-association-of-michigan/

Ver perfil >

Fragile X Society

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Fragile X Syndrome

https://rarediseases.org/es/organizations/fragile-x-society/

Ver perfil >

FRAXA Research Foundation

Teléfono: 978-462-1866 Correo electrónico: [email protected] Fax: 978-463-9985

Enfermedades raras relacionadas: Fragile X Syndrome

https://rarediseases.org/es/organizations/fraxa-research-foundation/

Ver perfil >

Frederick R Corne Foundation

Teléfono: 419-407-6425 Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/frederick-r-corne-foundation/

Ver perfil >

Friedreich’s Ataxia Research Alliance (Fara)

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Ataxia with Vitamin E Deficiency, Ataxia con deficiencia de vitamina E, Friedreich’s Ataxia ...

https://rarediseases.org/es/organizations/friedreichs-ataxia-research-alliance-fara/

Ver perfil >

Friends of Cancer Research

Teléfono: 202-944-6700 Correo electrónico: [email protected]

Enfermedades raras relacionadas: Primary Central Nervous System Lymphoma, Meningioma, Glioma, ...

https://rarediseases.org/es/organizations/friends-of-cancer-research/

Ver perfil >

Friends of Disabled Adults and Children, Too! Inc.

Correo electrónico: [email protected] Fax: 770-491-0026

https://rarediseases.org/es/organizations/friends-of-disabled-adults-and-children-too-inc/

Ver perfil >

Friendship That Gives

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/friendship-that-gives/

Ver perfil >

Frontotemporal Dementia Support Group

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/frontotemporal-dementia-support-group/

Ver perfil >

FSH-Muscular Dystrophy Support Group

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/fsh-muscular-dystrophy-support-group/

Ver perfil >

FSHD Society

Teléfono: 781-301-6060 Correo electrónico: [email protected]

Enfermedades raras relacionadas: Facioscapulohumeral Muscular Dystrophy

https://rarediseases.org/es/organizations/fshd-society/

Ver perfil >

Fundaciï¿½n FOP

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/fundacii%c2%bdn-fop/

Ver perfil >

Fundación Alfa-1 de Puerto Rico

Teléfono: 787-747-6270 Correo electrónico: [email protected] Fax: 787-747-6270

https://rarediseases.org/es/organizations/fundacii%c2%bdn-alfa-1-de-puerto-rico/

Ver perfil >

Fundacion Distonia (Dystonia)

Teléfono: 562-226-8874 Correo electrónico: [email protected] Fax: 562-226-7346

https://rarediseases.org/es/organizations/fundacion-distonia-dystonia/

Ver perfil >

G6PD Deficiency Association [Associazione Italiana Favismo, onlus]

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Glucose-6-Phosphate Dehydrogenase Deficiency

https://rarediseases.org/es/organizations/g6pd-deficiency-association-associazione-italiana-favismo-onlus/

Ver perfil >

GA GALT

https://rarediseases.org/es/organizations/ga-galt/

Ver perfil >

GADA CANADA

Teléfono: 905-826-3223 Correo electrónico: [email protected] Fax: 905-826-2125

Enfermedades raras relacionadas: Shprintzen Goldberg Syndrome, Marfan Syndrome, Síndrome de Marfan, ...

https://rarediseases.org/es/organizations/gada-canada/

Ver perfil >

Galactosaemia Support Group

Teléfono: 121-378-5143 Correo electrónico: [email protected]

Enfermedades raras relacionadas: Glucose-Galactose Malabsorption, Galactosemia

https://rarediseases.org/es/organizations/galactosaemia-support-group/

Ver perfil >

Galactosemia Foundation

Teléfono: 804-651-0330 Correo electrónico: [email protected]

Enfermedades raras relacionadas: Galactosemia

https://rarediseases.org/es/organizations/galactosemia-foundation/

Ver perfil >

Gallaudet University Genetics Program

Teléfono: 202-651-5258 Correo electrónico: [email protected] Fax: 202-651-5258

https://rarediseases.org/es/organizations/gallaudet-university-genetics-program/

Ver perfil >

Gallbladder Cancer Foundation

Miembro NORD

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/gallbladder-cancer-foundation/

Ver perfil >

Garrod Association of Canada

Teléfono: 613-737-7600 Correo electrónico: pchakraborty at cheo.on.ca Fax: 613-738-4822

https://rarediseases.org/es/organizations/garrod-association-of-canada/

Ver perfil >

Gastro-Intestinal Research Foundation

Teléfono: 312-332-1350 Correo electrónico: [email protected] Fax: 312-332-4757

Enfermedades raras relacionadas: Pediatric Crohn’s Disease, Ulcerative Colitis

https://rarediseases.org/es/organizations/gastro-intestinal-research-foundation/

Ver perfil >

Gastroparesis Patient Association for Cures and Treatments, Inc.

Enfermedades raras relacionadas: Chronic Intestinal Pseudo-Obstruction, Gastroparesis

https://rarediseases.org/es/organizations/gastroparesis-patient-association-for-cures-and-treatments-inc/

Ver perfil >

Gaucher Community Alliance (GCA)

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Gaucher Disease

https://rarediseases.org/es/organizations/gaucher-community-alliance-gca/

Ver perfil >

Gauchers Association (UK)

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Gaucher Disease

https://rarediseases.org/es/organizations/gauchers-association-uk/

Ver perfil >

GBS/CIDP Foundation International

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Miller Fisher Syndrome, Multifocal Motor Neuropathy, Chronic Inflammatory Demyelinating Polyneuropathy, ...

https://rarediseases.org/es/organizations/gbs-cidp-foundation-international/

Ver perfil >

Gene People

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/gene-people/

Ver perfil >

GeneTests

Teléfono: 206-221-4674 Correo electrónico: [email protected] Fax: 206-221-4679

https://rarediseases.org/es/organizations/genetests/

Ver perfil >

Genetic Alliance

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Pelizaeus-Merzbacher Disease

https://rarediseases.org/es/organizations/genetic-alliance/

Ver perfil >

Genetic Alliance Australia

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/genetic-alliance-australia/

Ver perfil >

Genetic Alliance UK

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/genetic-alliance-uk/

Ver perfil >

Genetic and Rare Conditions Site

Teléfono: 913-588-6022 Correo electrónico: [email protected] Fax: 913-588-4060

https://rarediseases.org/es/organizations/genetic-and-rare-conditions-site/

Ver perfil >

Genetic and Rare Diseases (GARD) Information Center

Teléfono: 301-251-4925 Fax: 301-251-4911

Enfermedades raras relacionadas: Perivascular Epithelioid Cell Neoplasm, PIK3CA-Related Overgrowth Spectrum, Liddle Syndrome, ...

https://rarediseases.org/es/organizations/genetic-and-rare-diseases-gard-information-center/

Ver perfil >

Genetic and Rare Disorders Organisation

Correo electrónico: [email protected] or [email protected]

Enfermedades raras relacionadas: Oncocitoma renal

https://rarediseases.org/es/organizations/genetic-and-rare-disorders-organisation/

Ver perfil >

Genetic Disease Foundation

Teléfono: 212-659-6704 Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/genetic-disease-foundation/

Ver perfil >

Genetic Support Network of Victoria

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/genetic-support-network-of-victoria/

Ver perfil >

Genetics Center, Inc.

Teléfono: 631-862-3620 Correo electrónico: [email protected] Fax: 631-862-3622

https://rarediseases.org/es/organizations/genetics-center-inc/

Ver perfil >