Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Ehlers Danlos Syndrome, Síndromes de Ehlers-Danlos
https://rarediseases.org/es/organizations/ehlers-danlos-support-group-uk/
Miembro NORD
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/einstok-born-studningsfelag/
Correo electrónico:
[email protected]
Fax: 604-904-0809
Enfermedades raras relacionadas:
West Nile Encephalitis, Simian B Virus Infection, Subacute Sclerosing Panencephalitis ...
https://rarediseases.org/es/organizations/encephalitis-global/
Enfermedades raras relacionadas:
West Nile Encephalitis, Simian B Virus Infection, Rasmussen Encephalitis, ...
https://rarediseases.org/es/organizations/encephalitis-international/
Enfermedades raras relacionadas:
Alexander Disease
https://rarediseases.org/es/organizations/end-alexander-disease-foundation/
Miembro NORD
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/end-axd/
Enfermedades raras relacionadas:
Craniopharyngioma, Primary Hyperparathyroidism, Familial Isolated Hypoparathyroidism, ...
https://rarediseases.org/es/organizations/endocrine-society/
Enfermedades raras relacionadas:
Catamenial Pneumothorax
https://rarediseases.org/es/organizations/endometriosis-association/
Enfermedades raras relacionadas:
Catamenial Pneumothorax
https://rarediseases.org/es/organizations/endometriosis-research-center/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Congenital Fibrosis of the Extraocular Muscles
https://rarediseases.org/es/organizations/engle-laboratory-at-childrens-hospital-boston/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/eos-network-eosinophilic-diseases-charity/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/eosinophilic-rare-disease-cooperative/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/epidermoid-brain-tumor-society/
Fax: 905-513-9461
Enfermedades raras relacionadas:
Congenital Bilateral Perisylvian Syndrome, Progressive Myoclonus Epilepsy, Landau Kleffner Syndrome, ...
https://rarediseases.org/es/organizations/epilepsy-canada/
Enfermedades raras relacionadas:
MEF2C Deficiency, KCNB1 Encephalopathy, Arginine: Glycine Amidinotransferase Deficiency, ...
https://rarediseases.org/es/organizations/epilepsy-foundation/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/epilepsy-foundation-of-victoria/
Enfermedades raras relacionadas:
Fibromyalgia, Ulcerative Colitis, Lupus ...
https://rarediseases.org/es/organizations/erythema-nodosum-yahoo-support-group/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Erythromelalgia, Eritromelalgia
https://rarediseases.org/es/organizations/erythromelalgia-association/
Teléfono:
617-525-8249
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
X-Linked Protoporphyria, Erythropoietic Protoporphyria and X-Linked Protoporphyria
https://rarediseases.org/es/organizations/erythropoietic-protoporphyria-research-and-education-fund/
Enfermedades raras relacionadas:
Barrett Esophagus
https://rarediseases.org/es/organizations/esophageal-cancer-awareness-association-inc/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Ataxia with Vitamin E Deficiency, Ataxia con deficiencia de vitamina E
https://rarediseases.org/es/organizations/euro-ataxia/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Congenital Myasthenic Syndromes, Centronuclear Myopathy, Congenital Muscular Dystrophy, ...
https://rarediseases.org/es/organizations/european-alliance-of-neuromuscular-disorders-associations/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Chromosome 11, Partial Monosomy 11q, Síndrome de Jacobsen (monosomía parcial 11q)
https://rarediseases.org/es/organizations/european-chromosome-11q-network/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Multiple Sulfatase Deficiency, Leukodystrophy, Zellweger Spectrum Disorders, ...
https://rarediseases.org/es/organizations/european-leukodystrophy-association/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/european-multiple-system-atrophy-study-group/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Chanarin-Dorfman Syndrome, Sjögren-Larsson Syndrome, Harlequin Ichthyosis, ...
https://rarediseases.org/es/organizations/european-network-for-ichthyosis-eni/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Complete DiGeorge Syndrome, CARD9 Deficiency, WHIM Syndrome, ...
https://rarediseases.org/es/organizations/european-society-for-immunodeficiencies/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Pityriasis Rubra Pilaris, Pitiriasis Rubra Pilaris
https://rarediseases.org/es/organizations/eurordis-rare-diseases-europe/
Correo electrónico:
https://www.myempd.com/contact
https://rarediseases.org/es/organizations/extramammary-pagets-disease-empd/
Enfermedades raras relacionadas:
Keratoconus, Corneal Dystrophies
https://rarediseases.org/es/organizations/eye-bank-association-of-america/
Correo electrónico:
[email protected]
Fax: 212-888-4030
Enfermedades raras relacionadas:
Ocular Melanoma, Choroideremia, Macular Degeneration, ...
https://rarediseases.org/es/organizations/eye-cancer-foundation/
Enfermedades raras relacionadas:
Ocular Melanoma, Retinoblastoma
https://rarediseases.org/es/organizations/eye-cancer-network/
Teléfono:
407-484-4947
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/eye-on-vision-foundation/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/f-i-r-m-o-fondazione-raffaella-becagli/
Enfermedades raras relacionadas:
Fabry Disease
https://rarediseases.org/es/organizations/fabry-support-information-group-2/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Melnick Needles Syndrome, Adams-Oliver Syndrome, Trismus-Pseudocamptodactyly Syndrome, ...
https://rarediseases.org/es/organizations/faces-the-national-craniofacial-association/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Trigeminal Neuralgia
https://rarediseases.org/es/organizations/tna-the-facial-pain-association/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/fahr-beyond/
Correo electrónico:
[email protected]
Fax: 760-227-9471
https://rarediseases.org/es/organizations/fair-foundation/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Pure Autonomic Failure, Dysautonomia, Familial
https://rarediseases.org/es/organizations/familial-dysautonomia-foundation-inc/
Teléfono:
919-969-1414
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/familial-dysautonomia-hope-foundation/
Enfermedades raras relacionadas:
Turcot Syndrome, Familial Adenomatous Polyposis
https://rarediseases.org/es/organizations/familial-gi-cancer-registry/
