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Home / Patient Organizations / Patient Organizations
Human Genome Project Information Web Site
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/human-genome-project-information-web-site/
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Human Growth Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/human-growth-foundation-2/
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Human Growth Foundation
Teléfono: 516-671-4041 Correo electrónico: [email protected] Fax: 516-671-4055
Enfermedades raras relacionadas: Recessive Multiple Epiphyseal Dysplasia, Síndrome de Bloom, Síndrome de Ellis-Van Creveld, ...
https://rarediseases.org/es/organizations/human-growth-foundation/
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Hunter’s Hope Foundation, Inc.
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Leucodistrofia metacromática, Enfermedad de Pelizaeus-Merzbacher, Xantomatosis cerebrotendinosa (CTX), ...
https://rarediseases.org/es/organizations/hunters-hope-foundation-inc/
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Hunters cmt4b3 Research Foundation Inc
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Charcot-Marie-Tooth Disease
https://rarediseases.org/es/organizations/hunters-cmt4b3-research-foundation-inc/
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Huntington Society of Canada
Teléfono: 519-749-7063 Correo electrónico: [email protected] Fax: 519-749-8965
Enfermedades raras relacionadas: Huntington’s Disease
https://rarediseases.org/es/organizations/huntington-society-of-canada/
Ver perfil >
Huntington’s Association of South Africa
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Huntington’s Disease
https://rarediseases.org/es/organizations/huntingtons-association-of-south-africa/
Ver perfil >
Huntington’s Disease Association of New Zealand
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Huntington’s Disease
https://rarediseases.org/es/organizations/huntingtons-disease-association-of-new-zealand/
Ver perfil >
Huntington’s Disease Society of America
Teléfono: 212-242-1968 Correo electrónico: [email protected] Fax: 212-239-3430
Enfermedades raras relacionadas: Huntington’s Disease
https://rarediseases.org/es/organizations/huntingtons-disease-society-of-america/
Ver perfil >
Huntington’s Disease Society of America – Connecticut Affiliate
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Huntington’s Disease
https://rarediseases.org/es/organizations/huntingtons-disease-society-of-america-connecticut-affiliate/
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Huntington’s Disease Youth Organization
Teléfono: 782-179-9554 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Huntington’s Disease
https://rarediseases.org/es/organizations/huntingtons-disease-youth-organization/
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Huntington’s Disease Youth Organization (HDYO)
https://rarediseases.org/es/organizations/huntingtons-disease-youth-organization-hdyo/
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Hydrocephalus Association
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Walker Warburg, L1 Syndrome, Encephalocele, ...
https://rarediseases.org/es/organizations/hydrocephalus-association/
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Hydrocephalus Canada
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Spina Bifida, Hydrocephalus
https://rarediseases.org/es/organizations/hydrocephalus-canada/
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Hydrocephalus Support Group, Inc.
Teléfono: 636-532-8228 Correo electrónico: [email protected] Fax: 314-251-5871
Enfermedades raras relacionadas: Nanismo de Mulibrey, Chiari Malformations, Hydrocephalus, ...
https://rarediseases.org/es/organizations/hydrocephalus-support-group-inc/
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Hyper IgM Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Hyper IgM Syndromes
https://rarediseases.org/es/organizations/hyper-igm-foundation/
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Hyperacusis Network
Teléfono: 920-866-3377 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/hyperacusis-network/
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Hypermobility Syndrome Association
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/hypermobility-syndrome-association/
Ver perfil >
Hypersomnia Foundation
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/hypersomnia-foundation/
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Hypertrophic Cardiomyopathy Association
Correo electrónico: [email protected] Fax: 973-983-7870
Enfermedades raras relacionadas: Pediatric Cardiomyopathy, Miocardiopatía hipertrófica obstructiva
https://rarediseases.org/es/organizations/hypertrophic-cardiomyopathy-association/
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HypoPara Support & Advocacy Inc
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Hypoparathyroidism
https://rarediseases.org/es/organizations/hypopara-support-advocacy-inc/
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Hypoparathyroidism Association
Miembro NORD
Teléfono: 214-929-1986 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Hypoparathyroidism
https://rarediseases.org/es/organizations/hypoparathyroidism-association/
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I AM ALS
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/i-am-als/
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I AM HEARD Coalition
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/i-am-heard-coalition/
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I-ACT for Children
https://rarediseases.org/es/organizations/i-act-for-children/
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IamHH
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Kallmann Syndrome
https://rarediseases.org/es/organizations/iamhh/
Ver perfil >
IDream For a Cure
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/idream-for-a-cure/
Ver perfil >
iFace
Teléfono: 845-450-0275 Correo electrónico: [email protected] Fax: 845-450-0276
https://rarediseases.org/es/organizations/iface/
Ver perfil >
IGA Nephropathy Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Nefropatía por IgA
https://rarediseases.org/es/organizations/iga-nephropathy-foundation/
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IGA Nephropathy Foundation
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/iga-nephropathy-foundation-2/
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IgG4ward! Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/igg4ward-foundation/
Ver perfil >
IIHD
https://rarediseases.org/es/organizations/iihd/
Ver perfil >
IL PBC SUPPORT GROUP
Teléfono: 630-632-5073 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/il-pbc-support-group/
Ver perfil >
Ileostomy and Internal Pouch Support Group
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/ileostomy-and-internal-pouch-support-group/
Ver perfil >
Illness Challenge Foundation
Miembro NORD
Teléfono: 400-040-8772 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/illness-challenge-foundation/
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Imerman Angels One-on-One Cancer Support
https://rarediseases.org/es/organizations/imerman-angels-one-on-one-cancer-support/
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Immune Deficiency Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Atimia congénita, Condrodisplasia Metafisaria Tipo McKusick, Síndrome de Netherton, ...
https://rarediseases.org/es/organizations/immune-deficiency-foundation/
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Immunization Action Coalition
Teléfono: 651-647-9009 Correo electrónico: [email protected] Fax: 651-647-9131
https://rarediseases.org/es/organizations/immunization-action-coalition/
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In Need of Diagnosis, Inc. (INOD)
Teléfono: 407-894-9190 Correo electrónico: [email protected] Fax: 407-898-4234
https://rarediseases.org/es/organizations/in-need-of-diagnosis-inc-inod/
Ver perfil >
In-Depth Diagnostics
https://rarediseases.org/es/organizations/in-depth-diagnostics/
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INAD Warriors, Inc.
Correo electrónico: [email protected]
Enfermedades raras relacionadas: PLA2G6-Associated Neurodegeneration
https://rarediseases.org/es/organizations/inad-warriors-inc/
Ver perfil >
INADcure Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: PLA2G6-Associated Neurodegeneration
https://rarediseases.org/es/organizations/inadcure-foundation/
Ver perfil >
InclusiVibe Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/inclusivibe-foundation/
Ver perfil >
Incontinentia Pigmenti International Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/incontinentia-pigmenti-international-foundation/
Ver perfil >
Indian Health Service
Teléfono: 505-837-4245 Correo electrónico: [email protected] Fax: 505-837-4257
https://rarediseases.org/es/organizations/indian-health-service/
Ver perfil >
Indian Organization For Rare Diseases
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/indian-organization-for-rare-diseases/
Ver perfil >
Indian Prader Willi Syndrome Association
https://rarediseases.org/es/organizations/indian-prader-willi-syndrome-association/
Ver perfil >
Indo US Organization for Rare Diseases
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/indo-us-organization-for-rare-diseases/
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Indoor Air Quality Information Clearinghouse
Teléfono: 202-343-9370 Correo electrónico: [email protected] Fax: 202-343-2394
https://rarediseases.org/es/organizations/indoor-air-quality-information-clearinghouse/
Ver perfil >
IndoUSRare
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/indousrare-2/
Ver perfil >
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