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Home / Patient Organizations / Patient Organizations
Health Resource and Services Administration
Teléfono: 703-821-8955 Correo electrónico: [email protected] Fax: 703-821-2098
https://rarediseases.org/es/organizations/health-resource-and-services-administration/
Ver perfil >
Health Resource Center for Women with Disabilities
Teléfono: 312-908-7997 Correo electrónico: [email protected] Fax: 312-908-1087
https://rarediseases.org/es/organizations/health-resource-center-for-women-with-disabilities/
Ver perfil >
Hearing Health Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Wildervanck, Neurinoma acústico, Jervell and Lange-Nielsen Syndrome, ...
https://rarediseases.org/es/organizations/hearing-health-foundation/
Ver perfil >
Hearing Loss Association of America
Teléfono: 301-657-2248 Correo electrónico: [email protected] Fax: 301-913-9413
Enfermedades raras relacionadas: Beta-manosidosis, Johanson-Blizzard Syndrome, Rosenberg Chutorian Syndrome, ...
https://rarediseases.org/es/organizations/hearing-loss-association-of-america/
Ver perfil >
Heart and Stroke Foundation of Canada
Teléfono: 613-569-4361 Correo electrónico: [email protected] Fax: 613-569-3278
https://rarediseases.org/es/organizations/heart-and-stroke-foundation-of-canada/
Ver perfil >
Heart Foundation of Australia
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/heart-foundation-of-australia/
Ver perfil >
Helen Keller National Center for Deaf-Blind Youths and Adults
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome CHARGE, Rubella, Síndrome de Usher ...
https://rarediseases.org/es/organizations/helen-keller-national-center-for-deaf-blind-youths-and-adults/
Ver perfil >
Help Hope Live
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Eisenmenger Syndrome
https://rarediseases.org/es/organizations/help-hope-live/
Ver perfil >
Helping Hands for GAND (HHFG)
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/helping-hands-for-gand-hhfg/
Ver perfil >
Helping Hands: Monkey Helpers for the Disabled
Teléfono: 617-787-4419 Correo electrónico: [email protected] Fax: 617-787-5665
https://rarediseases.org/es/organizations/helping-hands-monkey-helpers-for-the-disabled/
Ver perfil >
Hemangioma Support System
Teléfono: 920-336-9399
Enfermedades raras relacionadas: Cardiofaciocutaneous Syndrome, Fenómeno de Kasabach-Merritt
https://rarediseases.org/es/organizations/hemangioma-support-system/
Ver perfil >
Hemihypertrophy Support
Teléfono: 757-615-3686 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Cutis Marmorata Telangiectatica Congenita, Síndrome de Proteus
https://rarediseases.org/es/organizations/hemihypertrophy-support/
Ver perfil >
Hemispherectomy Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Sturge-Weber, Hemimegalencephaly, Encefalitis de Rasmussen, ...
https://rarediseases.org/es/organizations/hemispherectomy-foundation/
Ver perfil >
Hemophilia Federation of America
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Hemofilia B adquirida, Factor XI Deficiency, Factor VII Deficiency, ...
https://rarediseases.org/es/organizations/hemophilia-federation-of-america/
Ver perfil >
Hemophilia Foundation of Southern California
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Acquired Hemophilia A, Hemofilia B adquirida, Factor XIII Deficiency, ...
https://rarediseases.org/es/organizations/hemophilia-foundation-of-southern-california/
Ver perfil >
Henshaws Society for Blind People
Teléfono: 161-872-1234 Correo electrónico: [email protected] Fax: 161-848-9889
https://rarediseases.org/es/organizations/henshaws-society-for-blind-people/
Ver perfil >
Hepatitis B Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Hepatitis D
https://rarediseases.org/es/organizations/hepatitis-b-foundation/
Ver perfil >
Hepatitis C Society of Canada
Teléfono: 905-524-0212 Correo electrónico: [email protected] Fax: 905-524-0224
https://rarediseases.org/es/organizations/hepatitis-c-society-of-canada/
Ver perfil >
Hepatitis Foundation International
Teléfono: 301-622-4200 Correo electrónico: [email protected] Fax: 301-622-4702
Enfermedades raras relacionadas: Neonatal Cholestasis
https://rarediseases.org/es/organizations/hepatitis-foundation-international/
Ver perfil >
Hereditary Disease Foundation, Inc.
Correo electrónico: [email protected] Fax: 212-928-2172
Enfermedades raras relacionadas: Huntington’s Disease
https://rarediseases.org/es/organizations/hereditary-disease-foundation-inc/
Ver perfil >
Hereditary Leiomyomatosis & Renal Cell Cancer Family Alliance
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/hereditary-leiomyomatosis-renal-cell-cancer-family-alliance/
Ver perfil >
Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC) Family Alliance
Teléfono: 617-277-5667 Correo electrónico: [email protected] Fax: 866-209-0288
Enfermedades raras relacionadas: Renal Cell Carcinoma
https://rarediseases.org/es/organizations/hereditary-leiomyomatosis-and-renal-cell-cancer-hlrcc-family-alliance/
Ver perfil >
Hereditary Neuropathy Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Dejerine-Sottas Syndrome, Charcot-Marie-Tooth Disease
https://rarediseases.org/es/organizations/hereditary-neuropathy-foundation/
Ver perfil >
Hereditary Tyrosinemia Group (Groupe Aide Aux Enfants Tyrosinemiques Du Quebec)
Teléfono: 418-548-1580 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/hereditary-tyrosinemia-group-groupe-aide-aux-enfants-tyrosinemiques-du-quebec/
Ver perfil >
Hermansky-Pudlak Syndrome Network, Inc. (HPS Network)
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Hermansky Pudlak
https://rarediseases.org/es/organizations/hermansky-pudlak-syndrome-network-inc-hps-network/
Ver perfil >
Heterotaxy Connection
Miembro NORD
Teléfono: 801-899-5153 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/heterotaxy-connection/
Ver perfil >
HFA
https://rarediseases.org/es/organizations/hfa/
Ver perfil >
Hide & Seek Foundation for Lysosomal Disease Research
Teléfono: 877-621-1122 Correo electrónico: [email protected] Fax: 866-215-8850
Enfermedades raras relacionadas: Lysosomal Storage Disorders, Enfermedad de Niemann-Pick Tipo C, Classic Infantile CLN1 Disease, ...
https://rarediseases.org/es/organizations/hide-seek-foundation-for-lysosomal-disease-research/
Ver perfil >
Hidradenitis Suppurativa Foundation, Inc
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Hidradenitis Suppurativa
https://rarediseases.org/es/organizations/hidradenitis-suppurativa-foundation-inc/
Ver perfil >
Histiocytosis Association of Canada
Teléfono: 250-764-6104 Correo electrónico: [email protected] Fax: 250-764-6104
Enfermedades raras relacionadas: Hemophagocytic Lymphohistiocytosis, Histiocitosis de células de Langerhans
https://rarediseases.org/es/organizations/histiocytosis-association-of-canada/
Ver perfil >
Histiocytosis Association, Inc.
Miembro NORD
Teléfono: 856-589-6606 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Hemophagocytic Lymphohistiocytosis, Histiocitosis de células de Langerhans, Rosai-Dorfman Disease, ...
https://rarediseases.org/es/organizations/histiocytosis-association-inc/
Ver perfil >
HITS (UK) Family Support Network
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Hypomelanosis of Ito
https://rarediseases.org/es/organizations/hits-uk-family-support-network/
Ver perfil >
HNRNP Family Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Trastorno relacionado a HNRNPU, Síndrome de Au-Kline, Trastorno del neurodesarrollo relacionado con SYNCRIP ...
https://rarediseases.org/es/organizations/hnrnp-family-foundation/
Ver perfil >
Homeless Resource Center
Correo electrónico: [email protected] Fax: 301-656-4012
https://rarediseases.org/es/organizations/homeless-resource-center/
Ver perfil >
Hong Kong Mucopolysaccharidoses & Rare Genetic Diseases Mutual Aid Group
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/hong-kong-mucopolysaccharidoses-rare-genetic-diseases-mutual-aid-group/
Ver perfil >
Hope After Loss, Inc.
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/hope-after-loss-inc/
Ver perfil >
Hope for Hemophilia
https://rarediseases.org/es/organizations/hope-for-hemophilia/
Ver perfil >
Hope For Hypothalamic Hamartomas
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Hypothalamic Hamartoma, Precocious Puberty, Síndrome de Pallister-Hall ...
https://rarediseases.org/es/organizations/hope-for-hypothalamic-hamartomas/
Ver perfil >
Hope for PDCD Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Pyruvate Dehydrogenase Complex Deficiency
https://rarediseases.org/es/organizations/hope-for-pdcd-foundation/
Ver perfil >
Hope for ULD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/hope-for-uld/
Ver perfil >
Hope in Focus
Miembro NORD
Teléfono: 860-266-6062 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Amaurosis congénita de Leber
https://rarediseases.org/es/organizations/hope-in-focus/
Ver perfil >
Horses of Hope Oregon
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/horses-of-hope-oregon/
Ver perfil >
Hospice Foundation of America
Teléfono: 202-457-5811 Correo electrónico: [email protected] Fax: 202-457-5815
https://rarediseases.org/es/organizations/hospice-foundation-of-america/
Ver perfil >
Hospitality Homes
Teléfono: 617-482-4338 Correo electrónico: [email protected] Fax: 617-582-7980
https://rarediseases.org/es/organizations/hospitality-homes/
Ver perfil >
House Ear Institute
Teléfono: 213-483-4431 Correo electrónico: [email protected] Fax: 213-483-8789
https://rarediseases.org/es/organizations/house-ear-institute/
Ver perfil >
Houston Sarcoidosis Support Group
https://rarediseases.org/es/organizations/houston-sarcoidosis-support-group/
Ver perfil >
HPV Cancers Alliance
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/hpv-cancers-alliance/
Ver perfil >
HRSA Information Center
Correo electrónico: [email protected] Fax: 703-821-2098
https://rarediseases.org/es/organizations/hrsa-information-center/
Ver perfil >
HSAN1E Society
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Hereditary Sensory and Autonomic Neuropathy Type 1E, Hereditary Sensory Neuropathy Type I
https://rarediseases.org/es/organizations/hsan1e-society/
Ver perfil >
Human Brain and Spinal Fluid Resource Center
Teléfono: 310-268-3536 Correo electrónico: [email protected] Fax: 310-268-4768
https://rarediseases.org/es/organizations/human-brain-and-spinal-fluid-resource-center/
Ver perfil >
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