United Leukodystrophy Foundation

The United Leukodystrophy Foundation (ULF) is a voluntary, non-profit organization dedicated to helping children and adults with leukodystrophy and assisting the family members, caregivers, and professionals who serve them. Leukodystrophy is a group of rare, progressive diseases that affect the white matter of the brain. Established in 1982, the United Leukodystrophy Foundation is committed to the identification, treatment, and cure of all leukodystrophies through programs of education, advocacy, research, and service. The foundation also provides appropriate referrals, including support groups; promotes professional and patient education; and offers a variety of educational and support materials. These include a regular newsletter, brochures, and audiovisual aids.