RareCare®

NORD’s Patient Assistance Programs



Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.

Acute Lymphocytic Leukemia Premium Copay Assistance
Closed
Phone: 844-251-7425 Fax: 203-267-0847
Alpha-1 Antitrypsin Deficiency Premium Copay Assistance
Temporarily Waitlisting
Phone: 855-567-3721 Fax: 203-349-3192
AT-01 Imaging Study Travel Assistance
Referral Required
Phone: 203-242-0497 Fax: 475-470-8977
AT-05 Study Travel Assistance
Referral Required
Phone: 203-701-7934 Fax: 203-266-1046
atypical Hemolytic Uremic Syndrome (aHUS) Medical Assistance
Accepting new applications and re-enrollments for current year
Phone: 203-616-4326 Fax: 203-405-0528
Resource(s): aHUS-PAP-FAQ-10-2020
Barth Syndrome Travel Assistance Fund
Referral Required
Related Rare Diseases: Barth Syndrome
Cerebrotendinous Xanthomatosis (CTX) Premium Copay Assistance
Accepting new applications and re-enrollments for current year
Phone: 800-999-6673 Fax: 203-349-8431
CGD Copay Assistance
Accepting new applications and re-enrollments for current year
Phone: 855-201-5096 Fax: 203-486-8462
Resource(s): CGD-PAP, CGD-PAP-Spanish
CGD Medical Assistance
Accepting new applications and re-enrollments for current year
Phone: 855-201-5096 Fax: 203-486-8462
Resource(s): CGD-PAP, CGD-PAP-Spanish
Cushings Syndrome Medical Assistance
Accepting new applications and re-enrollments for current year
Phone: 855-864-4018 Fax: 203-517-0978
Related Rare Diseases: Cushing Syndrome
Cushings Syndrome Premium Copay Assistance
Accepting new applications and re-enrollments for current year
Phone: 855-864-4018 Fax: 203-517-0978
Related Rare Diseases: Cushing Syndrome
Cystinosis Copay Assistance
Accepting new applications and re-enrollments for current year
Related Rare Diseases: Cystinosis, Cistinosis
Cystinosis Medical Assistance
Accepting new applications and re-enrollments for current year
Related Rare Diseases: Cystinosis, Cistinosis
Cystinuria Medical Assistance
Accepting new applications and re-enrollments for current year
Phone: 866-218-7975 Fax: 203-405-8778
Cystinuria Premium Copay Assistance
Accepting new applications and re-enrollments for current year
Phone: 866-218-7975 Fax: 203-405-8778
DISC-1459-501 EPP Study Travel & Lodging Assistance
Referral Required
Phone: 203-263-9188 Fax: 203-621-3238
Duchenne Muscular Dystrophy Medical Assistance
Temporarily Waitlisting
Phone: 866-218-8172 Fax: 203-263-9597
Resource(s): DMD-PAP
Duchenne Muscular Dystrophy Premium Copay Assistance
Temporarily Waitlisting
Phone: 866-218-8172 Fax: 203-263-9597
Resource(s): DMD-PAP
Fabry Disease Medical Assistance
Accepting new applications for current year
Phone: 203-433-2455 Fax: 203-643-2020
Related Rare Diseases: Fabry Disease, Leucodistrofia, RYR1-Related Diseases ...
Fabry Disease Premium Copay Assistance
Accepting new applications for current year
Phone: 203-433-2455 Fax: 203-643-2020
Related Rare Diseases: Fabry Disease, Leucodistrofia, Leukodystrophy ...
Resource(s): Fabry_PAP_PremCopay
Gaucher’s Disease Premium Copay Assistance
Not yet accepting applications for current year
Hemophilia Emergency Relief
Temporarily Waitlisting
Phone: 203-514-7192 Fax: 475-204-3597
Related Rare Diseases: Acquired Hemophilia, Hemophilia A, Hemophilia B, ...
Hunter Syndrome Medical Assistance
Accepting new applications and re-enrollments for current year
Hunter Syndrome Premium Copay Assistance
Accepting new applications and re-enrollments for current year
Phone: 866-828-8902 Fax: 203-349-8446
Related Rare Diseases: Hypophosphatasia
Hypophosphatasia (HPP) Medical Assistance
Accepting new applications and re-enrollments for current year
Phone: 866-828-8902 Fax: 203-349-8446
Related Rare Diseases: Hypophosphatasia
Resource(s): HPP-PAP
Hypophosphatasia (HPP) Premium Copay Assistance
Accepting new applications and re-enrollments for current year
Phone: 866-828-8902 Fax: 203-349-8446
Related Rare Diseases: Hypophosphatasia
Resource(s): HPP-PAP
IgA Nephropathy Medical Assistance
Accepting new applications and re-enrollments for current year
Related Rare Diseases: IgA Nephropathy, Síndrome urofacial
IgA Nephropathy Premium Copay Assistance
Accepting new applications and re-enrollments for current year
Related Rare Diseases: IgA Nephropathy, Síndrome urofacial