Batten Disease

Batten Disease Premium & Copay Assistance

NORD’s Batten Disease Patient Assistance Program offers financial support to pay for out-of-pocket healthcare costs that are directly related to the care and treatment of this diagnosis.

Any US citizen or resident of six months or more with a diagnosis of Batten disease who meets the financial eligibility criteria (or their caregiver) may apply.

Awards are issued for a calendar year. Patients are encouraged to reapply annually if continued assistance is needed.

Examples of expenses NORD can assist with include:

• Medical office visit or consult
• Health insurance premiums, deductibles, and copayments
• Out-of-pocket cost for medications prescribed by your physician
• Out-of-pocket costs for lab services or radiological services
• Physician prescribed supportive therapies such as physical, occupational, speech therapies or nutrition services
• Home nursing costs
• Durable medical equipment

Batten Disease Emergency Relief

NORD also offers a Batten Disease Emergency Relief program that can help patients and caregivers pay for unexpected or emergency non-medical expenses that are essential for daily life.

Examples of these types of expenses include:

• The cost of repairs for a car, home, or major appliances
• Unexpected utility costs or bills that cannot be afforded due to lost wages from time off related to illness or caregiving
• Other types of emergency requests will be considered on an individual basis

• Email [email protected] with questions or for help with your application.
• View the NORD Rare Disease Report for this condition, which includes a list of other organizations that may offer support for patients.