The Arc of the United States
2000 Pennsylvania Avenue NW,
Suite 500
Washington, DC, USA
800-433-5255
About The Arc of the United States
The Arc of the United States is a national nonprofit advocating for and supporting people with intellectual and developmental disabilities (IDD) and their families. Many people with IDD have rare genetic conditions, developmental disabilities, or lifelong support needs, and The Arc works to ensure they have the rights, services, and opportunities they need to live fully in the community.
Founded in 1950 by parents who wanted better lives for their children with disabilities, The Arc promotes and protects the human and civil rights of people with IDD. Its work includes public policy advocacy, legal advocacy, grassroots advocacy, public education, and programs focused on education, healthcare, future planning, criminal justice, technology, travel, and community inclusion.
The Arc provides resources, fact sheets, and plain-language tools for people with disabilities, families, educators, service providers, healthcare professionals, and advocates. The Arc’s national office is based in Washington, DC, and works alongside a nationwide network of state and local chapters that provide services, support, and advocacy in communities across the United States.
Related Rare Diseases:
- Deficiencia de folato cerebral
- Síndrome CHARGE
- Síndrome de megalocórnea-discapacidad intelectual
- Síndrome de Cri du Chat
- Trastorno del neurodesarrollo y epilepsia relacionados con DNM1
- Trastorno del neurodesarrollo relacionado con TRPM3
- Deficiencia de GM3 sintasa
- Síndrome ADNP
- Deficiencia de glutatión sintetasa
- Síndrome ATR-16
- Deficiencia de semialdehído succínico deshidrogenasa
- Enfermedad de los Pequeños Vasos Cerebrales 1 con o sin Anomalías Oculares
- Trastornos Relacionados con COL4A1/A2
- Deficiencia de Triosefosfato Isomerasa
- Cromosoma 4 en anillo
- Síndrome de Smith-Magenis
- Síndrome de Sturge-Weber
- Trastorno de Haploinsuficiencia SETBP1
- Síndrome de KBG
- Síndrome de Pitt Hopkins
- Enfermedad de Wolman
- Síndrome de hidantoína fetal
- Trastornos relacionados con GRIN
- Trastorno de depósito de ácido siálico libre
- Síndrome fetal por carbamazepina
- Fountain Syndrome
- Classic Infantile CLN1 Disease
- KCNK9 Imprinting Syndrome
- Sepiapterin Reductase Deficiency
- MECP2 Duplication Syndrome
- Sporadic Porencephaly
- Lysosomal Storage Disorders
- Fucosidosis
- Costello Syndrome
- Laband Syndrome
- Nance-Horan Syndrome
- Trisomy 9p (Multiple Variants)
- Schindler disease
- Alternating Hemiplegia of Childhood
- Bannayan-Riley-Ruvalcaba Syndrome
- Cutis Marmorata Telangiectatica Congenita
- Filippi Syndrome
- Hypomelanosis of Ito
- Schinzel Giedion Syndrome
- Chromosome 15 Ring
- Chromosome 18q- Syndrome
- Chromosome 18 Ring
- Chromosome 9 Ring
- Chromosome 6 Ring
- Cardiofaciocutaneous Syndrome
- Dyggve Melchior Clausen syndrome
- Marinesco-Sjögren Syndrome
- Börjeson-Forssman-Lehman Syndrome
- Carpenter Syndrome
- Fragile X Syndrome
- Hyperprolinemia Type II
- Sjögren-Larsson Syndrome
- Meningitis
- Isolated Aniridia
- AIDS Dysmorphic Syndrome
- Pallister Killian Mosaic Syndrome
- Cerebrocostomandibular Syndrome
- Optic Nerve Hypoplasia
- Seckel Syndrome
- Homocystinuria due to Cystathionine Beta-Synthase Deficiency
- Rubinstein-Taybi Syndrome
- Coffin Lowry Syndrome
- Alpha-Mannosidosis
- Pyruvate Dehydrogenase Complex Deficiency
- Leigh Syndrome
- Leprechaunism
- Hydranencephaly
- Zellweger Spectrum Disorders
- Agenesis of Corpus Callosum
- Hartnup Disease
- Fetal Alcohol Syndrome
- Xeroderma Pigmentosum
- Saethre Chotzen Syndrome
- I Cell Disease
- Pseudo Hurler Polydystrophy
- Sialidosis
- Mucopolysaccharidosis Type I
- Rubella
- Toxoplasmosis
- Juvenile CLN3 Disease
- Lesch Nyhan Syndrome
- Retinopathy of Prematurity
- Trisomy 13 Syndrome
- Dubowitz Syndrome
- Rett Syndrome
- Pantothenate Kinase-Associated Neurodegeneration
- Carnosinemia
- Aicardi Syndrome
- Cornelia de Lange Syndrome
- Joubert Syndrome
- Hydrocephalus
- Síndrome de Angelman
- Síndrome de anomalías congénitas múltiples asociado al gen KAT6B
- Trastornos congénitos de la glicosilación (2021)
- Síndrome de Phelan-McDermid
- Sindrome de Sotos
- Síndrome de alfa talasemia-discapacidad intelectual ligada al cromosoma X
- Síndrome de Russell-Silver
- Síndrome de Kabuki
- Esclerosis tuberosa
- Encefalitis de Rasmussen
- Deficiencia de Arginasa-1
- Síndrome de Cohen
- Leucodistrofia
- Froelich Syndrome
- Trisomía 22 en mosaico
- Deficiencia de tetrahidrobiopterina
- Síndrome KAT6A
- Deficiencia del transportador de células de hormona tiroidea específica de MCT8
- Síndrome de Coffin Siris
- Síndrome de Williams
- Síndrome de Opitz G/BBB ligado al cromosoma X
- Lipodistrofia generalizada congénita
- Enfermedad de Tay Sachs
- Deficiencia de NGLY1
- Síndrome orofaciodigital
- Microsíndrome de Warburg
- Síndrome de Smith-Lemli-Opitz
- Pentasomía X
- Síndrome de Apert
- Síndrome del cromosoma 22q en anillo
- Trastorno del desarrollo intelectual sindrómico ligado al cromosoma X tipo Turner
- Mucopolisacaridosis tipo III
- Síndrome de Imagawa-Matsumoto
- Síndrome de megalencefalia-malformación capilar
