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NORD Rare Disease Centers of Excellence


Overview

The NORD Rare Disease Center of Excellence(CoE) program brings together teams of clinical experts in a nationwide network of cutting-edge facilities, with the goal to provide standards of specialized care and disease management for people living with rare disease and their families.

Offering a transformative approach to care, the program addresses an unmet need for collaboration across the medical community that will help fuel an era of faster diagnoses, new treatment guidelines, best practices, and knowledge sharing. Patients will be able to access 31 designated centers nationwide, with each center offering access to the best possible coordinated multi-specialty clinical care and diagnostic opportunities for rare diseases.

NORD’s Rare Disease CoE Program is the first-ever designation program dedicated to all rare diseases and the patients impacted by them. The centers that form the NORD CoE network will work in partnership to share expertise, advance education, define standards and protocols, and shape the field of rare disease care, ultimately enabling rare disease patients to better navigate their diagnostic journey and find qualified medical homes for their complex medical conditions.

Learn more about the program by reading NORD’s press release on the launch of the program.