Rubinstein-Taybi Syndrome, UK Support Group
Enfermedades raras relacionadas: Rubinstein-Taybi Syndrome
https://rarediseases.org/es/organizations/rubinstein-taybi-syndrome-uk-support-group/
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RUNX1 Research Program
Enfermedades raras relacionadas: Trastorno plaquetario familiar con neoplasia mieloide asociada
https://rarediseases.org/es/organizations/runx1-research-program/
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Rush University Medical Center
Teléfono: 312-942-5000
https://rarediseases.org/es/organizations/rush-university-medical-center/
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SADS UK (Sudden Arrhythmic Death Syndrome)
Teléfono: 127-781-1215
Enfermedades raras relacionadas: Síndrome de QT Corto, Síndrome de Andersen-Tawil, Timothy Syndrome, ...
https://rarediseases.org/es/organizations/sads-uk-sudden-arrhythmic-death-syndrome/
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Sail To Prevail
Teléfono: 401-849-8898 Fax: 401-849-8898
https://rarediseases.org/es/organizations/sail-to-prevail/
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Salla Treatment And Research
Enfermedades raras relacionadas: Trastorno de depósito de ácido siálico libre
https://rarediseases.org/es/organizations/salla-treatment-and-research/
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Sam Day Foundation
https://rarediseases.org/es/organizations/sam-day-foundation/
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SAMHSA’s Center for Substance Abuse Prevention
https://rarediseases.org/es/organizations/samhsas-center-for-substance-abuse-prevention/
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San Diego Brachial Plexus Network
Teléfono: 866-877-7004 Fax: 844-221-2821
https://rarediseases.org/es/organizations/san-diego-brachial-plexus-network/
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San Diego Regional Center for the Developmental Disabilities
Teléfono: 858-576-2996 Fax: 858-576-2873
https://rarediseases.org/es/organizations/san-diego-regional-center-for-the-developmental-disabilities/
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SANE Australia
https://rarediseases.org/es/organizations/sane-australia/
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Sanfilippo Children’s Foundation
Enfermedades raras relacionadas: Mucopolisacaridosis tipo III
https://rarediseases.org/es/organizations/sanfilippo-childrens-foundation/
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Sanfilippo Foundation Switzerland
Enfermedades raras relacionadas: Mucopolisacaridosis tipo III
https://rarediseases.org/es/organizations/sanfilippo-foundation-switzerland/
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Sarcoidosis & Lyme Disease Support Australia
https://rarediseases.org/es/organizations/sarcoidosis-lyme-disease-support-australia/
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Sarcoidosis Center
Teléfono: 901-761-5877 Fax: 901-761-2280
https://rarediseases.org/es/organizations/sarcoidosis-center/
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Sarcoidosis Online Sites (S.O.S.)
Teléfono: 239-945-2414
https://rarediseases.org/es/organizations/sarcoidosis-online-sites-s-o-s/
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Sarcoma Alliance
Teléfono: 415-381-7236 Fax: 415-381-7235
Enfermedades raras relacionadas: Sarcoma alveolar de partes blandas, Leiomyosarcoma, Mesenchymal Chondrosarcoma, ...
https://rarediseases.org/es/organizations/sarcoma-alliance/
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Sarcoma Alliance for Research through Collaboration
https://rarediseases.org/es/organizations/sarcoma-alliance-for-research-through-collaboration/
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Sarcoma Foundation of America
Enfermedades raras relacionadas: Sarcoma alveolar de partes blandas, Leiomyosarcoma, Mesenchymal Chondrosarcoma, ...
https://rarediseases.org/es/organizations/sarcoma-foundation-of-america/
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SATB2 Gene Foundation
Miembro NORD
Teléfono: 678-832-9133
https://rarediseases.org/es/organizations/satb2-gene-foundation/
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Save Babies Through Screening Foundation
Teléfono: 610-251-9876 Fax: 610-647-5757
Enfermedades raras relacionadas: Short Chain Acyl CoA Dehydrogenase Deficiency, Homocystinuria due to Cystathionine Beta-Synthase Deficiency, Tyrosinemia Type 1, ...
https://rarediseases.org/es/organizations/save-babies-through-screening-foundation/
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SBS Cure Project
Enfermedades raras relacionadas: Síndrome del intestino corto
https://rarediseases.org/es/organizations/sbs-cure-project/
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SCA27b Ataxia Foundation
Enfermedades raras relacionadas: Ataxias espinocerebelosas autosómicas dominantes
https://rarediseases.org/es/organizations/sca27b-ataxia-foundation/
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Scarring Alopecia Foundation (SAF)
Miembro NORD
Enfermedades raras relacionadas: Cicatricial Alopecia
https://rarediseases.org/es/organizations/scarring-alopecia-foundation-saf/
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Schepens Eye Research Institute
Teléfono: 617-912-0100 Fax: 617-912-0101
Enfermedades raras relacionadas: Chandler’s Syndrome, Síndrome de Duane, Eales Disease, ...
https://rarediseases.org/es/organizations/schepens-eye-research-institute/
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Schinzel-Giedion Syndrome Foundation
Enfermedades raras relacionadas: Schinzel Giedion Syndrome
https://rarediseases.org/es/organizations/schinzel-giedion-syndrome-foundation/
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Schiz Kidz Buddies – Schizencephaly Support Group
https://rarediseases.org/es/organizations/schiz-kidz-buddies-schizencephaly-support-group/
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Schizophrenia Society of Canada
Teléfono: 204-786-1616 Fax: 204-783-4898
https://rarediseases.org/es/organizations/schizophrenia-society-of-canada/
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Scleroderma and Raynaud’s UK
Enfermedades raras relacionadas: Esclerodermia sistémica, Scleroderma
https://rarediseases.org/es/organizations/scleroderma-and-raynauds-uk/
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Scleroderma Research Foundation
https://rarediseases.org/es/organizations/scleroderma-research-foundation/
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Scleroderma Super Starz FB/Insta Support Group Leader
https://rarediseases.org/es/organizations/scleroderma-super-starz-fb-insta-support-group-leader/
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Scottish Society for Autism
Teléfono: 125-972-0044 Fax: 125-972-0051
https://rarediseases.org/es/organizations/scottish-society-for-autism/
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SDSF
https://rarediseases.org/es/organizations/sdsf/
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Seattle Children’s Hospital
Teléfono: 206-987-2000 Fax: 206-526-2217
https://rarediseases.org/es/organizations/seattle-childrens-hospital/
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Second Wind Lung Transplant Association, Inc.
Teléfono: 512-847-9303
Enfermedades raras relacionadas: Idiopathic Pulmonary Fibrosis, Eisenmenger Syndrome, Lymphangioleiomyomatosis ...
https://rarediseases.org/es/organizations/second-wind-lung-transplant-association-inc/
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Selective Mutism Foundation, Inc.
https://rarediseases.org/es/organizations/selective-mutism-foundation-inc/
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Selective Mutism Group
Teléfono: 215-887-5748
https://rarediseases.org/es/organizations/selective-mutism-group/
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Self-Help Information Service of Nebraska
Teléfono: 402-476-9668 Fax: 402-434-3972
https://rarediseases.org/es/organizations/self-help-information-service-of-nebraska/
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Selfhelp
Teléfono: 212-836-1865 Fax: 212-956-1652
https://rarediseases.org/es/organizations/selfhelp/
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SeriousFun Children’s Network
Teléfono: 203-562-1203 Fax: 203-341-8707
https://rarediseases.org/es/organizations/seriousfun-childrens-network/
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SETBP1 Society
Miembro NORD
Enfermedades raras relacionadas: Trastorno de Haploinsuficiencia SETBP1
https://rarediseases.org/es/organizations/setbp1-society/
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Severe Chronic Neutropenia International Registry
Teléfono: 206-543-9749 Fax: 206-543-3668
https://rarediseases.org/es/organizations/severe-chronic-neutropenia-international-registry/
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Sexuality Information and Education Council of the U.S.
Teléfono: 212-819-9770 Fax: 212-819-9776
Enfermedades raras relacionadas: Bowenoid Papulosis, Proctitis
https://rarediseases.org/es/organizations/sexuality-information-and-education-council-of-the-u-s/
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Shaken Baby Alliance
Teléfono: 817-636-3727 Fax: 817-882-8687
https://rarediseases.org/es/organizations/shaken-baby-alliance/
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Shaping Foundations
https://rarediseases.org/es/organizations/shaping-foundations/
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SHARE – Self-Help For Women With Breast or Ovarian Cancer
Teléfono: 212-719-0364 Fax: 212-869-3431
Enfermedades raras relacionadas: Ovarian Cancer, Síndrome de cáncer hereditario de mama y/o de ovario, Paget’s Disease of the Breast ...
https://rarediseases.org/es/organizations/share-self-help-for-women-with-breast-or-ovarian-cancer/
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Share and Care Cockayne Syndrome Network, Inc.
Teléfono: 703-727-0404
Enfermedades raras relacionadas: Cockayne Syndrome, Tricotiodistrofia
https://rarediseases.org/es/organizations/share-and-care-cockayne-syndrome-network-inc/
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Share Pregnancy & Infant Loss Support, Inc.
Teléfono: 636-947-6164 Fax: 636-947-7486
Enfermedades raras relacionadas: Síndrome de Potter, Anencephaly, Sudden Infant Death Syndrome, ...
https://rarediseases.org/es/organizations/share-pregnancy-infant-loss-support-inc/
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Shine
Teléfono: 173-355-5988 Fax: 845-450-7755
Enfermedades raras relacionadas: Spina Bifida, Hydrocephalus
https://rarediseases.org/es/organizations/shine/
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Short Bowel Syndrome Foundation, Inc.
Teléfono: 402-770-0554 Fax: 402-323-3399
Enfermedades raras relacionadas: Síndrome del intestino corto
https://rarediseases.org/es/organizations/short-bowel-syndrome-foundation-inc/
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