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Home / Patient Organizations / Patient Organizations
PKS Kids
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Pallister Killian Mosaic Syndrome
https://rarediseases.org/es/organizations/pks-kids/
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Plan For Rare Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/plan-for-rare-foundation/
Ver perfil >
PLAN Institute for Caring Citizenship
Teléfono: 604-439-9566 Correo electrónico: [email protected] Fax: 604-439-7001
Enfermedades raras relacionadas: Cerebral Palsy, Esclerosis Múltiple
https://rarediseases.org/es/organizations/plan-institute-for-caring-citizenship/
Ver perfil >
Plasminogen Deficiency Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Deficiencia congénita de plasminógeno tipo I
https://rarediseases.org/es/organizations/plasminogen-deficiency-foundation/
Ver perfil >
Platelet Disorder Support Association
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: May Hegglin Anomaly, Henoch-Schönlein Purpura, Trombocitopenia inmune ...
https://rarediseases.org/es/organizations/platelet-disorder-support-association/
Ver perfil >
PLGA Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Glioma, Craneofaringioma, Juvenile Pilocytic Astrocytoma, ...
https://rarediseases.org/es/organizations/plga-foundation/
Ver perfil >
PMD Family Support
Enfermedades raras relacionadas: Enfermedad de Pelizaeus-Merzbacher
https://rarediseases.org/es/organizations/pmd-family-support/
Ver perfil >
PMD Foundation
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/pmd-foundation-2/
Ver perfil >
PMD Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Enfermedad de Pelizaeus-Merzbacher
https://rarediseases.org/es/organizations/pmd-foundation/
Ver perfil >
PMG Awareness Organization
https://rarediseases.org/es/organizations/pmg-awareness-organization/
Ver perfil >
PMG Awareness Organization, Inc.
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/pmg-awareness-organization-inc/
Ver perfil >
PMLD Support Group
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Enfermedad de Pelizaeus-Merzbacher
https://rarediseases.org/es/organizations/pmld-support-group/
Ver perfil >
PMP Pals’ Network
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Goblet Cell Adenocarcinoma, Cáncer del apéndice, Mesothelioma, ...
https://rarediseases.org/es/organizations/pmp-pals-network/
Ver perfil >
PNH Research and Support Foundation
Correo electrónico: [email protected] Fax: 888-582-9993
https://rarediseases.org/es/organizations/pnh-research-and-support-foundation/
Ver perfil >
Pompe Alliance
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/pompe-alliance/
Ver perfil >
Pompe Support Network
Enfermedades raras relacionadas: Enfermedad de Pompe
https://rarediseases.org/es/organizations/pompe-support-network/
Ver perfil >
Pompe Warrior Foundation
https://rarediseases.org/es/organizations/pompe-warrior-foundation/
Ver perfil >
Portuguese Association for CDG
https://rarediseases.org/es/organizations/portuguese-association-for-cdg/
Ver perfil >
Post-Polio Health International
Teléfono: 314-534-0475 Correo electrónico: [email protected] Fax: 314-534-5070
Enfermedades raras relacionadas: Post Polio Syndrome
https://rarediseases.org/es/organizations/post-polio-health-international/
Ver perfil >
Postpartum Support International
Teléfono: 503-894-9453 Correo electrónico: [email protected] Fax: 503-894-9452
https://rarediseases.org/es/organizations/postpartum-support-international/
Ver perfil >
Potentials Foundation, INC
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/potentials-foundation-inc/
Ver perfil >
Potocki-Lupski Syndrome Outreach Foundation, Inc
Teléfono: 214-435-8288 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/potocki-lupski-syndrome-outreach-foundation-inc/
Ver perfil >
Prader-Willi France
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Prader-Willi
https://rarediseases.org/es/organizations/prader-willi-france/
Ver perfil >
Prader-Willi Syndrome Association (UK)
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Prader-Willi
https://rarediseases.org/es/organizations/prader-willi-syndrome-association-uk/
Ver perfil >
Prader-Willi Syndrome Association (USA)
Miembro NORD
Teléfono: 941-312-0400 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Prader-Willi
https://rarediseases.org/es/organizations/prader-willi-syndrome-association-usa/
Ver perfil >
Preeclampsia Foundation
Teléfono: 321-421-6957 Correo electrónico: [email protected] Fax: 321-821-0450
https://rarediseases.org/es/organizations/preeclampsia-foundation/
Ver perfil >
President’s Committee for People with Intellectual Disabilities
https://rarediseases.org/es/organizations/presidents-committee-for-people-with-intellectual-disabilities/
Ver perfil >
Prevent Blindness America
Teléfono: 312-363-6001 Correo electrónico: [email protected] Fax: 312-363-6052
Enfermedades raras relacionadas: Congenital Fibrosis of the Extraocular Muscles, Síndrome de Cogan-Reese, Chandler’s Syndrome, ...
https://rarediseases.org/es/organizations/prevent-blindness-america/
Ver perfil >
Primary Biliary Cholangitis Organization
Teléfono: 281-997-1516 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Primary Biliary Cholangitis
https://rarediseases.org/es/organizations/primary-biliary-cholangitis-organization/
Ver perfil >
Primary Ciliary Dyskinesia Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Discinesia ciliar primaria
https://rarediseases.org/es/organizations/primary-ciliary-dyskinesia-foundation/
Ver perfil >
Prion Alliance
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Enfermedad de Gerstmann Sträussler Scheinker, Insomnio familiar fatal, Enfermedad de Creutzfeldt-Jakob ...
https://rarediseases.org/es/organizations/prion-alliance/
Ver perfil >
PRISMS
https://rarediseases.org/es/organizations/prisms/
Ver perfil >
PRISMS (Parents & Researchers Interested in Smith-Magenis Syndrome)
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Smith-Magenis
https://rarediseases.org/es/organizations/prisms-parents-researchers-interested-in-smith-magenis-syndrome/
Ver perfil >
Professional Patient Advocates in Life Sciences (PPALS)
https://rarediseases.org/es/organizations/professional-patient-advocates-in-life-sciences-ppals/
Ver perfil >
Progeria Research Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Gottron, Síndrome de Wiedemann-Rautenstrauch, Mandibuloacral Dysplasia, ...
https://rarediseases.org/es/organizations/progeria-research-foundation/
Ver perfil >
Program for the Study of Neurodevelopment in Rare Disorders
Teléfono: 412-692-9955 Correo electrónico: [email protected] Fax: 412-692-9000
https://rarediseases.org/es/organizations/program-for-the-study-of-neurodevelopment-in-rare-disorders/
Ver perfil >
Progressive Familial Intrahepatic Cholestasis Advocacy and Resource Network
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Low Gamma-GT Familial Intrahepatic Cholestasis, Deficiencia de MDR3
https://rarediseases.org/es/organizations/progressive-familial-intrahepatic-cholestasis-advocacy-and-resource-network/
Ver perfil >
Progressive Familial Intrahepatic Cholestasis Web Group
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Low Gamma-GT Familial Intrahepatic Cholestasis, Deficiencia de MDR3
https://rarediseases.org/es/organizations/progressive-familial-intrahepatic-cholestasis-web-group/
Ver perfil >
Progressive Osseous Heteroplasia Association
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Fibrodisplasia osificante progresiva, Heteroplasia ósea progresiva
https://rarediseases.org/es/organizations/progressive-osseous-heteroplasia-association/
Ver perfil >
Progressive Supranuclear Palsy Association UK
Correo electrónico: [email protected] Fax: 132-732-2412
Enfermedades raras relacionadas: Progressive Supranuclear Palsy
https://rarediseases.org/es/organizations/progressive-supranuclear-palsy-association-uk/
Ver perfil >
Project 8p Foundation
Miembro NORD
Teléfono: 929-269-6801 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Chromosome 8, Monosomy 8p
https://rarediseases.org/es/organizations/project-8p-foundation/
Ver perfil >
Project 8p Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/project-8p-foundation-2/
Ver perfil >
Project Alive
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Mucopolysaccharidosis Type II
https://rarediseases.org/es/organizations/project-alive/
Ver perfil >
Project Alive
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/project-alive-2/
Ver perfil >
Project Assist (Nevada)
Teléfono: 702-688-2819 Fax: 702-688-2558
https://rarediseases.org/es/organizations/project-assist-nevada/
Ver perfil >
Project CASK
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/project-cask/
Ver perfil >
Project DOCC – Delivery of Chronic Care
Teléfono: 516-829-0786 Correo electrónico: [email protected] Fax: 516-498-1899
https://rarediseases.org/es/organizations/project-docc-delivery-of-chronic-care/
Ver perfil >
Project FAVA
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de sobrecrecimiento asociado al gen PIK3CA
https://rarediseases.org/es/organizations/project-fava/
Ver perfil >
Project Sleep
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Narcolepsy
https://rarediseases.org/es/organizations/project-sleep/
Ver perfil >
Project Sunshine
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/project-sunshine/
Ver perfil >
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