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Home / Patient Organizations / Patient Organizations
Rare Genomics Institute
Teléfono: 650-468-0650 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/rare-genomics-institute/
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Rare Kidney Stone Consortium
Teléfono: 507-266-8265 Correo electrónico: [email protected] Fax: 507-255-0770
Enfermedades raras relacionadas: Dent Disease, Cystinuria, Hiperoxaluria primaria ...
https://rarediseases.org/es/organizations/rare-kidney-stone-consortium/
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Rare Kids Network
Teléfono: 855-588-7273 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/rare-kids-network/
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Rare Trait Hope Fund
Miembro NORD
Teléfono: 504-408-2611 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Aspartylglycosaminuria
https://rarediseases.org/es/organizations/rare-trait-hope-fund-2/
Ver perfil >
Rare Village Foundation
https://rarediseases.org/es/organizations/rare-village-foundation/
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RareDNA Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/raredna-foundation/
Ver perfil >
Raregivers Global
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/a-nonprofit-group-enriching-lives/
Ver perfil >
Rasmussen’s Syndrome and Hemispherectomy Support Network
Teléfono: 410-987-5221 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Encefalitis de Rasmussen
https://rarediseases.org/es/organizations/rasmussens-syndrome-and-hemispherectomy-support-network/
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RASopathies Network
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Costello Syndrome, Neurofibromatosis 1, Cardiofaciocutaneous Syndrome, ...
https://rarediseases.org/es/organizations/rasopathies-network/
Ver perfil >
Raymond A. Wood Foundation
Miembro NORD
Teléfono: 443-856-8173 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Obesidad Hipotalámica Adquirida, Craneofaringioma, Deficiencia de arginina vasopresina ...
https://rarediseases.org/es/organizations/raymond-a-wood-foundation/
Ver perfil >
Raynaud’s Association, Inc.
Teléfono: 800-280-8055 Correo electrónico: [email protected] Fax: 914-946-4685
https://rarediseases.org/es/organizations/raynauds-association-inc/
Ver perfil >
RE Children’s Project, LLC
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Encefalitis de Rasmussen
https://rarediseases.org/es/organizations/re-childrens-project-llc/
Ver perfil >
Reach
Teléfono: 845-130-6225 Correo electrónico: [email protected] Fax: 845-130-0262
Enfermedades raras relacionadas: Síndrome de Trismo-Pseudocamptodactilia, Síndrome de Trombocitopenia y Ausencia de Radio, Amniotic Band Syndrome, ...
https://rarediseases.org/es/organizations/reach/
Ver perfil >
Recovery International
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Chiari Frommel Syndrome
https://rarediseases.org/es/organizations/recovery-international/
Ver perfil >
Recurrent Meningitis Association
https://rarediseases.org/es/organizations/recurrent-meningitis-association/
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Recurrent Pregnancy Loss Association
Miembro NORD
Teléfono: 847-308-4554 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Antiphospholipid Syndrome, Trombofilia hereditaria grave por deficiencia congénita de proteína S, Asherman’s Syndrome, ...
https://rarediseases.org/es/organizations/recurrent-pregnancy-loss-association/
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Recurrent Respiratory Papillomatosis Foundation (RRPF)
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Papilomatosis Respiratoria Recurrente
https://rarediseases.org/es/organizations/recurrent-respiratory-papillomatosis-foundation-rrpf/
Ver perfil >
Red Sanfilippo AC
Enfermedades raras relacionadas: Mucopolisacaridosis tipo III
https://rarediseases.org/es/organizations/red-sanfilippo-ac/
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Ree Wynn Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Púrpura trombótica trombocitopénica
https://rarediseases.org/es/organizations/ree-wynn-foundation/
Ver perfil >
Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)
Miembro NORD
Teléfono: 877-662-7737 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de dolor regional complejo
https://rarediseases.org/es/organizations/reflex-sympathetic-dystrophy-syndrome-association-rsdsa/
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Rehabilitation Research & Training Center on Aging with Developmental Disabilities
Teléfono: 312-413-1520 Correo electrónico: [email protected] Fax: 312-996-6942
https://rarediseases.org/es/organizations/rehabilitation-research-training-center-on-aging-with-developmental-disabilities/
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Relapsing Polychondritis Awareness and Support Foundation Inc.
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Relapsing Polychondritis
https://rarediseases.org/es/organizations/relapsing-polychondritis-awareness-and-support-foundation-inc/
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Remember The Girls
Miembro NORD
Teléfono: 609-332-3944 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Distrofia muscular de Duchenne, Atrofia muscular espinal, Síndrome de alfa talasemia-discapacidad intelectual ligada al cromosoma X, ...
https://rarediseases.org/es/organizations/remember-the-girls/
Ver perfil >
ReNU Syndrome United
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/renu-syndrome-united/
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ReNU Syndrome United
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/renu-syndrome-united-2/
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Research!America
Teléfono: 703-739-2577 Correo electrónico: [email protected] Fax: 703-739-2372
https://rarediseases.org/es/organizations/researchamerica/
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RESOLVE: National Infertility Association
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Asherman’s Syndrome, Deficiencia de WNT4, Trastorno relacionado con la alanyl-transfer RNA (tRNA) sintetasa 2 (AARS2-RD), ...
https://rarediseases.org/es/organizations/resolve-national-infertility-association/
Ver perfil >
Restless Legs Syndrome Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Restless Legs Syndrome
https://rarediseases.org/es/organizations/restless-legs-syndrome-foundation/
Ver perfil >
Restricted Growth Association
Teléfono: 300-111-1970 Correo electrónico: [email protected] Fax: 300-111-2454
Enfermedades raras relacionadas: Spondylothoracic Dysplasia, Síndrome de Ellis-Van Creveld, Pseudoacondroplasia, ...
https://rarediseases.org/es/organizations/restricted-growth-association/
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Retina International
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Amaurosis congénita de Leber, Retinitis Pigmentaria, X-linked Retinoschisis, ...
https://rarediseases.org/es/organizations/retina-international/
Ver perfil >
Retroperitoneal Fibrosis World Support
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Retroperitoneal Fibrosis
https://rarediseases.org/es/organizations/retroperitoneal-fibrosis-world-support/
Ver perfil >
Rett Syndrome Research Trust
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: MECP2 Duplication Syndrome, Rett Syndrome
https://rarediseases.org/es/organizations/rett-syndrome-research-trust/
Ver perfil >
Rheumatology Outpatient Clinic at Beth Israel Hospital
https://rarediseases.org/es/organizations/rheumatology-outpatient-clinic-at-beth-israel-hospital/
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RhizoKids International
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Condrodisplasia punctata rizomélica
https://rarediseases.org/es/organizations/rhizokids-international/
Ver perfil >
Riaan Research Initiative Inc.
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/riaan-research-initiative-inc/
Ver perfil >
Ridgebury Farm
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/ridgebury-farm/
Ver perfil >
Ring14 USA Outreach, Inc.
Teléfono: 765-491-6910 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/ring14-usa-outreach-inc/
Ver perfil >
Ring20 Research and Support UK
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/ring20-research-and-support-uk/
Ver perfil >
Riverwood Center
Teléfono: 269-925-0585 Correo electrónico: [email protected] Fax: 269-927-6063
https://rarediseases.org/es/organizations/riverwood-center/
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Robinow Syndrome Foundation
Teléfono: 763-434-1152 Correo electrónico: [email protected] Fax: 763-434-1152
Enfermedades raras relacionadas: Robinow Syndrome
https://rarediseases.org/es/organizations/robinow-syndrome-foundation/
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Rocky Mountain Disability & Business Technical Assistance Center
Teléfono: 303-866-6600 Fax: 303-830-0793
https://rarediseases.org/es/organizations/rocky-mountain-disability-business-technical-assistance-center/
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ROHHAD Fight Inc.
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de obesidad infantil de rápida progresión-disfunción hipotalámica-hipoventilación-disregulación autonómica
https://rarediseases.org/es/organizations/rohhad-fight-inc/
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ROHHAD International Consortium
Enfermedades raras relacionadas: Síndrome de obesidad infantil de rápida progresión-disfunción hipotalámica-hipoventilación-disregulación autonómica
https://rarediseases.org/es/organizations/rohhad-international-consortium/
Ver perfil >
Romberg’s Connection
Teléfono: 319-277-5030 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Parry-Romberg
https://rarediseases.org/es/organizations/rombergs-connection/
Ver perfil >
Ronald McDonald House Charities
Teléfono: 630-623-7048 Correo electrónico: [email protected] Fax: 630-623-7488
https://rarediseases.org/es/organizations/ronald-mcdonald-house-charities/
Ver perfil >
Rose Kushner ‘s Women’s Breast Cancer Advisory Center
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Paget’s Disease of the Breast
https://rarediseases.org/es/organizations/rose-kushner-s-womens-breast-cancer-advisory-center/
Ver perfil >
Rothberg Institute For Childhood Diseases
Teléfono: 203-458-7100 Correo electrónico: [email protected] Fax: 203-458-2514
Enfermedades raras relacionadas: Esclerosis tuberosa
https://rarediseases.org/es/organizations/rothberg-institute-for-childhood-diseases/
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Rothmund-Thomson Syndrome (RTS) Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Rothmund-Thomson
https://rarediseases.org/es/organizations/rothmund-thomson-syndrome-rts-foundation/
Ver perfil >
RP Fighting Blindness
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/rp-fighting-blindness/
Ver perfil >
RTC Portland – Family Support and Children’s Mental Health & Training Center
Teléfono: 503-725-4040 Correo electrónico: [email protected] Fax: 503-725-4180
https://rarediseases.org/es/organizations/rtc-portland-family-support-and-childrens-mental-health-training-center/
Ver perfil >
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