Patient Organizations - Page 9 of 48 - National Organization for Rare Disorders

Canadian Stuttering Association

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/canadian-stuttering-association/

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Canavan Foundation

Teléfono: 212-873-4640 Correo electrónico: [email protected] Fax: 212-873-7892

Enfermedades raras relacionadas: Canavan Disease

https://rarediseases.org/es/organizations/canavan-foundation/

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Canavan Research Foundation

Teléfono: 203-746-2436 Correo electrónico: [email protected] Fax: 203-746-3205

Enfermedades raras relacionadas: Canavan Disease

https://rarediseases.org/es/organizations/canavan-research-foundation/

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Canavan Research Illinois

Teléfono: 847-222-0736 Correo electrónico: [email protected] Fax: 847-222-0736

Enfermedades raras relacionadas: Canavan Disease

https://rarediseases.org/es/organizations/canavan-research-illinois/

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Cancer Care, Inc.

Teléfono: 212-712-8400 Correo electrónico: [email protected] Fax: 212-719-0263

Enfermedades raras relacionadas: Cáncer de esófago, Síndrome de cáncer hereditario de mama y/o de ovario, Enfermedad Linfoproliferativa Post-Trasplante (TLPT), ...

https://rarediseases.org/es/organizations/cancer-care-inc/

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Cancer Commons

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/cancer-commons/

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Cancer Hope Network

Teléfono: 908-879-4039 Correo electrónico: [email protected] Fax: 908-879-6518

Enfermedades raras relacionadas: Linfoma de células del manto, Enfermedad Linfoproliferativa Post-Trasplante (TLPT), Cutaneous T-Cell Lymphomas, ...

https://rarediseases.org/es/organizations/cancer-hope-network/

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Cancer Legal Resource Center

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/cancer-legal-resource-center/

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Cancer Research UK

Correo electrónico: [email protected] Fax: 207-121-6700

Enfermedades raras relacionadas: Linfoma gástrico primario, Fibrolamellar Carcinoma, Hepatocellular Carcinoma, ...

https://rarediseases.org/es/organizations/cancer-research-uk/

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Cancer Support Community

Teléfono: 202-659-9709 Fax: 202-974-7999

Enfermedades raras relacionadas: Linfoma gástrico primario, Glioma, Cáncer del apéndice, ...

https://rarediseases.org/es/organizations/cancer-support-community/

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Canine Companions for Independence

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/canine-companions-for-independence/

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CAPRIN1 Foundation

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/caprin1-foundation/

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Carcinoid Cancer Foundation

Teléfono: 914-683-1001 Fax: 914-683-0183

Enfermedades raras relacionadas: Multiple Endocrine Neoplasia Type 1, Neoplasias Neuroendocrinas Pancreáticas (pNENs), Carcinoid Syndrome ...

https://rarediseases.org/es/organizations/carcinoid-cancer-foundation/

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Cardio-Facio-Cutaneous (CFC) International

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Cardiofaciocutaneous Syndrome

https://rarediseases.org/es/organizations/cardio-facio-cutaneous-cfc-international/

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Cardiomyopathy Association

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Pediatric Cardiomyopathy, Barth Syndrome, Alström Syndrome, ...

https://rarediseases.org/es/organizations/cardiomyopathy-association/

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Care Beyond Limits-Microcephaly Africa Foundation

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/care-beyond-limits-microcephaly-africa-foundation/

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Caregiver Action Network

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/caregiver-action-network/

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CARES Foundation, Inc.

Teléfono: 908-364-0272 Correo electrónico: [email protected] Fax: 908-686-2019

Enfermedades raras relacionadas: Addison’s Disease, Congenital Adrenal Hyperplasia

https://rarediseases.org/es/organizations/cares-foundation-inc/

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Carol Ann Foundation

Teléfono: 520-744-2531 Correo electrónico: [email protected] Fax: 520-744-2535

Enfermedades raras relacionadas: Mucopolisacaridosis IV

https://rarediseases.org/es/organizations/carol-ann-foundation/

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Carroll Center for the Blind

Teléfono: 617-969-6200 Correo electrónico: [email protected] Fax: 617-969-6204

https://rarediseases.org/es/organizations/carroll-center-for-the-blind/

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Carter Centers for Brain Research in Holoprosencephaly and Related Malformations

Teléfono: 214-559-8411 Correo electrónico: [email protected] Fax: 214-559-8383

Enfermedades raras relacionadas: Holoprosencephaly

https://rarediseases.org/es/organizations/carter-centers-for-brain-research-in-holoprosencephaly-and-related-malformations/

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CASK Warriors Foundation Inc

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/cask-warriors-foundation-inc/

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Castleman Disease Collaborative Network

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Castleman Disease

https://rarediseases.org/es/organizations/castleman-disease-collaborative-network/

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Cat Eye Syndrome International

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Síndrome del ojo de gato

https://rarediseases.org/es/organizations/cat-eye-syndrome-international/

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Catastrophic Illness in Children Relief Fund Commission

Teléfono: 609-292-0600 Fax: 609-633-2947

https://rarediseases.org/es/organizations/catastrophic-illness-in-children-relief-fund-commission/

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Cauda Equina Foundation

Teléfono: 407-984-6394 Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/cauda-equina-foundation/

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CCHS Network (Congenital Central Hypoventilation Syndrome)

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Congenital Central Hypoventilation Syndrome

https://rarediseases.org/es/organizations/cchs-network-congenital-central-hypoventilation-syndrome/

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CDG CARE Family Support Network

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Deficiencia de GM3 sintasa, PMM2-CDG, Trastornos congénitos de la glicosilación (2021), ...

https://rarediseases.org/es/organizations/cdg-care-family-support-network/

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CDH International

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Fryns Syndrome, Pentalogy of Cantrell

https://rarediseases.org/es/organizations/cdh-international/

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CDMD at UCLA

https://rarediseases.org/es/organizations/cdmd-at-ucla/

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Cedars-Sinai Medical Genetics Institute

Teléfono: 310-423-9914 Fax: 310-423-2080

https://rarediseases.org/es/organizations/cedars-sinai-medical-genetics-institute/

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Celiac Disease Foundation

Teléfono: 818-716-1513 Correo electrónico: [email protected] Fax: 818-267-5577

Enfermedades raras relacionadas: Enfermedad Celíaca Refractaria, Celiac Disease

https://rarediseases.org/es/organizations/celiac-disease-foundation/

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Celiac Sprue Association

Teléfono: 402-558-0600 Correo electrónico: [email protected] Fax: 402-643-4108

Enfermedades raras relacionadas: Enfermedad Celíaca Refractaria, Autoimmune Polyendocrine Syndrome Type II, Celiac Disease ...

https://rarediseases.org/es/organizations/celiac-sprue-association/

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Center for Assistive Technology

Teléfono: 716-836-1168 Correo electrónico: [email protected] Fax: 716-836-0105

https://rarediseases.org/es/organizations/center-for-assistive-technology/

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Center for Assistive Technology and Environmental Access

Teléfono: 404-894-4960 Correo electrónico: [email protected] Fax: 404-894-9320

https://rarediseases.org/es/organizations/center-for-assistive-technology-and-environmental-access/

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Center for Chronic Illness

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/center-for-chronic-illness/

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Center For Disfigurement

Teléfono: 757-437-8900 Correo electrónico: [email protected] Fax: 757-437-8200

https://rarediseases.org/es/organizations/center-for-disfigurement/

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Center for Hope

Teléfono: 203-869-4848 Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/center-for-hope/

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Center for Housing and New Community Economics (CHANCE)

Teléfono: 603-862-4320 Correo electrónico: [email protected] Fax: 603-862-0982

https://rarediseases.org/es/organizations/center-for-housing-and-new-community-economics-chance/

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Center for Information and Study on Clinical Research Participation

Teléfono: 617-725-2750 Correo electrónico: [email protected] Fax: 617-725-2753

https://rarediseases.org/es/organizations/center-for-information-and-study-on-clinical-research-participation/

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Center for International Blood and Marrow Transplant Research

Teléfono: 414-805-0700 Correo electrónico: [email protected] Fax: 414-805-0714

Enfermedades raras relacionadas: Mielofibrosis primaria, Hyper IgM Syndromes, X linked Lymphoproliferative Syndrome, ...

https://rarediseases.org/es/organizations/center-for-international-blood-and-marrow-transplant-research/

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Center For Loss In Multiple Birth, Inc.

Teléfono: 907-222-5321 Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/center-for-loss-in-multiple-birth-inc/

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Center for Medical Genetics

Teléfono: 713-790-1990 Correo electrónico: [email protected] Fax: 713-790-1903

https://rarediseases.org/es/organizations/center-for-medical-genetics/

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Center for Narcolepsy, Sleep and Health Research

Teléfono: 312-996-5176 Correo electrónico: [email protected] Fax: 312-996-7008

Enfermedades raras relacionadas: Narcolepsy

https://rarediseases.org/es/organizations/center-for-narcolepsy-sleep-and-health-research/

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Center for Peripheral Neuropathy

Teléfono: 773-702-5659 Fax: 773-702-5577

Enfermedades raras relacionadas: Hereditary Sensory and Autonomic Neuropathy Type 1E, Poliarteritis Nodosa, Hereditary Neuralgic Amyotrophy, ...

https://rarediseases.org/es/organizations/center-for-peripheral-neuropathy/

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Center for Persons with Disabilities

Teléfono: 435-797-1981 Fax: 435-797-3944

https://rarediseases.org/es/organizations/center-for-persons-with-disabilities/

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Center for Research on Women with Disabilities

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/center-for-research-on-women-with-disabilities/

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Center for Sickle Cell Disease

Teléfono: 202-865-8292 Correo electrónico: [email protected] Fax: 202-806-4517

https://rarediseases.org/es/organizations/center-for-sickle-cell-disease/

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Center for Universal Design

Teléfono: 919-515-3082 Correo electrónico: [email protected] Fax: 919-515-8951

https://rarediseases.org/es/organizations/center-for-universal-design/

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Centers for Disease Control and Prevention

Teléfono: 404-639-3534 Correo electrónico: [email protected]

Enfermedades raras relacionadas: Tularemia, Síndrome de Reye, Viruela, ...

https://rarediseases.org/es/organizations/centers-for-disease-control-and-prevention/

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