Correo electrónico:
info@camk2.org
https://rarediseases.org/es/organizations/camk2-therapeutics-network/
Teléfono:
847-361-3292
Correo electrónico:
ellyn@curedfoundation.org
Enfermedades raras relacionadas:
Acute Eosinophilic Pneumonia, Eosinofilia pulmonar simple, Chronic Eosinophilic Pneumonia, ...
https://rarediseases.org/es/organizations/campaign-urging-research-for-eosinophilic-disease-cured/
Correo electrónico:
bekki@campbellstrust.co.uk
Enfermedades raras relacionadas:
Leigh Syndrome
https://rarediseases.org/es/organizations/campbell-burns-metabolic-trust/
Correo electrónico:
liaisonsecretary@addisonsociety.ca
https://rarediseases.org/es/organizations/canadian-addison-society/
Correo electrónico:
info@AngelmanCanada.org
Enfermedades raras relacionadas:
Síndrome de Angelman
https://rarediseases.org/es/organizations/canadian-angelman-syndrome-society/
Correo electrónico:
cap@pompecanada.com
Enfermedades raras relacionadas:
Enfermedad de Pompe
https://rarediseases.org/es/organizations/canadian-association-of-pompe/
Enfermedades raras relacionadas:
Cáncer de uraco, Testicular Cancer, Post-Transplant Lymphoproliferative Disease, ...
https://rarediseases.org/es/organizations/canadian-cancer-society/
Correo electrónico:
jjcormier@canadiancmtcfoundation.com
https://rarediseases.org/es/organizations/canadian-cmtc-foundation/
Correo electrónico:
info@cysticfibrosis.ca
Enfermedades raras relacionadas:
Fibrosis quística
https://rarediseases.org/es/organizations/canadian-cystic-fibrosis-foundation/
Teléfono:
905-628-8251
Correo electrónico:
janice_hughes@hotmail.com
https://rarediseases.org/es/organizations/canadian-families-with-galactosemia/
Enfermedades raras relacionadas:
Anemia de Fanconi
https://rarediseases.org/es/organizations/canadian-fanconi-anemia-research-fund/
Enfermedades raras relacionadas:
Ferroportin Disease, Juvenile Hemochromatosis, Classic Hereditary Hemochromatosis ...
https://rarediseases.org/es/organizations/canadian-hemochromatosis-society/
Enfermedades raras relacionadas:
Factor XI Deficiency, Factor VII Deficiency, Acquired Hemophilia, ...
https://rarediseases.org/es/organizations/canadian-hemophilia-society/
Enfermedades raras relacionadas:
Hepatopulmonary Syndrome
https://rarediseases.org/es/organizations/canadian-hepatopulmonary-syndrome-program/
Enfermedades raras relacionadas:
Leukocyte Adhesion Deficiency Syndromes, Autosomal Dominant Hyper IgE Syndrome, Autosomal Recessive Hyper IgE Syndrome, ...
https://rarediseases.org/es/organizations/canadian-immunodeficiencies-patient-organization/
Enfermedades raras relacionadas:
Fibrolamellar Carcinoma, Hepatocellular Carcinoma, Autoimmune Hepatitis, ...
https://rarediseases.org/es/organizations/canadian-liver-foundation/
Correo electrónico:
info@lymphovenous-canada.ca
Enfermedades raras relacionadas:
Primary Lymphedema, Síndrome de las uñas amarillas, Síndrome de linfedema-distiquiasis ...
https://rarediseases.org/es/organizations/canadian-lymphedema-framework/
Miembro NORD
Correo electrónico:
info@raredisorders.ca
https://rarediseases.org/es/organizations/canadian-organization-for-rare-disorders-cord/
Correo electrónico:
rkhayes@ccat.on.ca
Enfermedades raras relacionadas:
Osteogénesis imperfecta
https://rarediseases.org/es/organizations/canadian-osteogenesis-imperfecta-society/
Correo electrónico:
info@pbc-society.ca
https://rarediseases.org/es/organizations/canadian-pbc-society/
Teléfono:
604-505-2934
Correo electrónico:
info@canadianrsd.com
https://rarediseases.org/es/organizations/canadian-reflex-sympathetic-dystrophy-network/
Correo electrónico:
info@mpssociety.ca
Enfermedades raras relacionadas:
Mucopolysaccharidoses, Alpha-Mannosidosis, I Cell Disease, ...
https://rarediseases.org/es/organizations/canadian-society-for-mucopolysaccharide-and-related-diseases-inc/
Correo electrónico:
csa-info@stutter.ca
https://rarediseases.org/es/organizations/canadian-stuttering-association/
Enfermedades raras relacionadas:
Canavan Disease
https://rarediseases.org/es/organizations/canavan-foundation/
Enfermedades raras relacionadas:
Canavan Disease
https://rarediseases.org/es/organizations/canavan-research-foundation/
Enfermedades raras relacionadas:
Canavan Disease
https://rarediseases.org/es/organizations/canavan-research-illinois/
Enfermedades raras relacionadas:
Esophageal Cancer, Follicular Lymphoma, Stomach Cancer, ...
https://rarediseases.org/es/organizations/cancer-care-inc/
Correo electrónico:
info@cancercommons.org
https://rarediseases.org/es/organizations/cancer-commons/
Enfermedades raras relacionadas:
Follicular Lymphoma, Post-Transplant Lymphoproliferative Disease, Cutaneous T-Cell Lymphomas, ...
https://rarediseases.org/es/organizations/cancer-hope-network/
Correo electrónico:
DRLC@lls.edu
https://rarediseases.org/es/organizations/cancer-legal-resource-center/
Correo electrónico:
cancerhelpuk@cancer.org.uk
Fax: 207-121-6700
Enfermedades raras relacionadas:
Linfoma gástrico primario, Fibrolamellar Carcinoma, Hepatocellular Carcinoma, ...
https://rarediseases.org/es/organizations/cancer-research-uk/
Teléfono:
202-659-9709
Fax: 202-974-7999
Enfermedades raras relacionadas:
Linfoma gástrico primario, Glioma, Goblet Cell Adenocarcinoma, ...
https://rarediseases.org/es/organizations/cancer-support-community/
Enfermedades raras relacionadas:
Leiomiomatosis hereditaria y carcinoma de células renales, Blastoma pleuropulmonar, Cáncer de pulmón de células pequeñas, ...
https://rarediseases.org/es/organizations/cancer-net/
Correo electrónico:
info@cci.org
https://rarediseases.org/es/organizations/canine-companions-for-independence/
Teléfono:
914-683-1001
Fax: 914-683-0183
Enfermedades raras relacionadas:
Multiple Endocrine Neoplasia Type 1, Pancreatic Neuroendocrine Neoplasms (pNENs), Carcinoid Syndrome ...
https://rarediseases.org/es/organizations/carcinoid-cancer-foundation/
Miembro NORD
Correo electrónico:
info@cfcsyndrome.org
Enfermedades raras relacionadas:
Cardiofaciocutaneous Syndrome
https://rarediseases.org/es/organizations/cardio-facio-cutaneous-cfc-international/
Correo electrónico:
info@cardiomyopathy.org
Enfermedades raras relacionadas:
Pediatric Cardiomyopathy, Barth Syndrome, Alström Syndrome, ...
https://rarediseases.org/es/organizations/cardiomyopathy-association/
Correo electrónico:
info@tcaregiveraction.org
https://rarediseases.org/es/organizations/caregiver-action-network/
Enfermedades raras relacionadas:
Addison’s Disease, Congenital Adrenal Hyperplasia
https://rarediseases.org/es/organizations/cares-foundation-inc/
Enfermedades raras relacionadas:
Mucopolisacaridosis IV
https://rarediseases.org/es/organizations/carol-ann-foundation/
Enfermedades raras relacionadas:
Holoprosencephaly
https://rarediseases.org/es/organizations/carter-centers-for-brain-research-in-holoprosencephaly-and-related-malformations/
Miembro NORD
Correo electrónico:
info@castlemannetwork.org
Enfermedades raras relacionadas:
Castleman Disease
https://rarediseases.org/es/organizations/castleman-disease-collaborative-network/
Correo electrónico:
direction@cateyesyndrome.info
Enfermedades raras relacionadas:
Síndrome del ojo de gato
https://rarediseases.org/es/organizations/cat-eye-syndrome-international/