Teléfono:
404-639-3534
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Recurrent Pericarditis, Mucormycosis, Clostridial Myonecrosis, ...
https://rarediseases.org/es/organizations/centers-for-disease-control-and-prevention/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/centre-for-genetics-education/
Teléfono:
800-987-8988
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Chronic Granulomatous Disease, Enfermedad granulomatosa crónica
https://rarediseases.org/es/organizations/cgd-society/
Miembro NORD
Teléfono:
813-600-7950
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Primary Myelofibrosis, Polycythemia Vera
https://rarediseases.org/es/organizations/champ1-research-foundation/
Miembro NORD
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/channeling-hope-foundation/
Miembro NORD
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/channeling-hope-foundation-2/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Dejerine-Sottas Syndrome, Roussy Lévy Syndrome, Charcot-Marie-Tooth Disease, ...
https://rarediseases.org/es/organizations/charcot-marie-tooth-association-cmta/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/charge-family-support-group/
Enfermedades raras relacionadas:
Complete DiGeorge Syndrome, CHARGE Syndrome, Congenital Athymia ...
https://rarediseases.org/es/organizations/charge-syndrome-foundation-inc/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Juvenile CLN3 Disease
https://rarediseases.org/es/organizations/charlotte-gwenyth-gray-foundation-to-cure-batten-disease/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/charlotte-gwenyth-gray-foundation-to-cure-batten-disease-at-the-giving-back-fund/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/chd3-foundation/
Miembro NORD
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/chelseas-hope-lafora-children-research-fund-2/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Factor VII Deficiency, Glanzmann Thrombasthenia
https://rarediseases.org/es/organizations/ches-foundation-inc/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/cheyannas-champions-for-children/
Teléfono:
186-934-1075
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Meningitis, Meningococcal Meningitis
https://rarediseases.org/es/organizations/child-brain-injury-trust/
Enfermedades raras relacionadas:
Craniopharyngioma, Sotos Syndrome, Achondroplasia, ...
https://rarediseases.org/es/organizations/child-growth-foundation/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
STXBP1-Related Disorders, Arginine: Glycine Amidinotransferase Deficiency, Guanidinoacetate Methyltransferase Deficiency, ...
https://rarediseases.org/es/organizations/child-neurology-foundation/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/childhood-arthritis-and-rheumatology-research-alliance/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/childhood-cancer-association-inc/
Enfermedades raras relacionadas:
Glioma, Wilms’ Tumor, Anaplastic Astrocytoma, ...
https://rarediseases.org/es/organizations/childhood-cancer-canada-foundation/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/childhood-dementia-initiative/
Teléfono:
207-377-5578
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Retinoblastoma
https://rarediseases.org/es/organizations/childhood-eye-cancer-trust/
Enfermedades raras relacionadas:
Bile Acid Synthesis Disorders, MDR3 Deficiency, Low Gamma-GT Familial Intrahepatic Cholestasis, ...
https://rarediseases.org/es/organizations/childhood-liver-disease-research-and-education-network/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Spinal Muscular Atrophy, Werdnig-Hoffmann Disease, Atrofia muscular espinal ...
https://rarediseases.org/es/organizations/children-with-spinal-muscular-atrophy-ukraine-kharkiv-charitable-foundation/
Enfermedades raras relacionadas:
PHACE Syndrome, Classic Infantile CLN1 Disease, Leigh Syndrome, ...
https://rarediseases.org/es/organizations/childrens-brain-diseases-foundation/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Craniopharyngioma, Glioma, Sacrococcygeal Teratoma, ...
https://rarediseases.org/es/organizations/childrens-brain-tumor-foundation/
Enfermedades raras relacionadas:
Osteogenesis Imperfecta, Osteogénesis imperfecta
https://rarediseases.org/es/organizations/childrens-brittle-bone-foundation/
Enfermedades raras relacionadas:
Factor VII Deficiency, Acquired Hemophilia A, Von Willebrand Disease, ...
https://rarediseases.org/es/organizations/childrens-cancer-blood-foundation/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Pediatric Cardiomyopathy, Recessive Titinopathy, Titinopatía recesiva, ...
https://rarediseases.org/es/organizations/childrens-cardiomyopathy-foundation/
Miembro NORD
Teléfono:
214-570-9099
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Melnick Needles Syndrome, Pfeiffer Syndrome, Shprintzen Goldberg Syndrome, ...
https://rarediseases.org/es/organizations/childrens-craniofacial-association-cca/
Enfermedades raras relacionadas:
Glycogen Storage Disease Type VI, Glycogen Storage Disease Type 7, Glycogen Storage Disease Type IX, ...
https://rarediseases.org/es/organizations/childrens-fund-for-glycogen-storage-disease-research-inc/
Enfermedades raras relacionadas:
Weill-Marchesani Syndrome
https://rarediseases.org/es/organizations/childrens-glaucoma-foundation/
Teléfono:
780-454-7665
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
PHACE Syndrome
https://rarediseases.org/es/organizations/childrens-heart-society/
Enfermedades raras relacionadas:
Neurofibromatosis 1, Neurofibromatosis 1
https://rarediseases.org/es/organizations/childrens-hospital-of-philadelphia-neurofibromatosis-program/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/childrens-interstitial-and-diffuse-lung-disease-child-foundation/
Teléfono:
513-459-0127
Enfermedades raras relacionadas:
COPA Syndrome, Interstitial Lung Disease Due To Surfactant Protein C Deficiency, Interstitial Lung Disease Due To Surfactant Protein B Deficiency, ...
https://rarediseases.org/es/organizations/childrens-interstitial-lung-disease-foundation/
Enfermedades raras relacionadas:
Acute Myeloid Leukemia, Juvenile Myelomonocytic Leukemia, Chronic Lymphocytic Leukemia, ...
https://rarediseases.org/es/organizations/childrens-leukemia-research-association/
Enfermedades raras relacionadas:
MDR3 Deficiency, Low Gamma-GT Familial Intrahepatic Cholestasis, Alagille Syndrome, ...
https://rarediseases.org/es/organizations/childrens-liver-association-for-support-services-c-l-a-s-s/
Enfermedades raras relacionadas:
Congenital Hepatic Fibrosis, MDR3 Deficiency, Low Gamma-GT Familial Intrahepatic Cholestasis, ...
https://rarediseases.org/es/organizations/childrens-liver-disease-foundation/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Maternally Inherited Leigh Syndrome and NARP Syndrome, Barth Syndrome, MERRF Syndrome, ...
https://rarediseases.org/es/organizations/childrens-mitochondrial-disease-network/
