Patient Organizations - Page 33 of 48 - National Organization for Rare Disorders

NBIA Disorders Association

Miembro NORD

Teléfono: 832-835-6242 Correo electrónico: [email protected]

Enfermedades raras relacionadas: Kufor Rakeb Syndrome, PLA2G6-Associated Neurodegeneration, Aceruloplasminemia, ...

https://rarediseases.org/es/organizations/nbia-disorders-association/

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NBIAcure

Enfermedades raras relacionadas: PLA2G6-Associated Neurodegeneration

https://rarediseases.org/es/organizations/nbiacure/

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NCL Resource

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Classic Infantile CLN1 Disease, Adult Neuronal Ceroid Lipofuscinosis, Juvenile CLN3 Disease ...

https://rarediseases.org/es/organizations/ncl-resource/

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NDF

https://rarediseases.org/es/organizations/ndf/

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NDI (Nephrogenic Diabetes Insipidus) Foundation

Correo electrónico: [email protected] Fax: 888-376-6356

Enfermedades raras relacionadas: Nephrogenic Diabetes Insipidus, Diabetes insípida nefrogénica

https://rarediseases.org/es/organizations/ndi-nephrogenic-diabetes-insipidus-foundation/

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Nebraska Family Support Network

Teléfono: 402-345-0791 Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/nebraska-family-support-network/

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NEC Society

Miembro NORD

Teléfono: 530-448-8088 Correo electrónico: [email protected]

Enfermedades raras relacionadas: Necrotizing Enterocolitis

https://rarediseases.org/es/organizations/nec-society/

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NEHI Research Foundation

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Neuroendocrine Cell Hyperplasia of Infancy

https://rarediseases.org/es/organizations/nehi-research-foundation/

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Nemaline Myopathy Support Group

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Nemaline Myopathy

https://rarediseases.org/es/organizations/nemaline-myopathy-support-group/

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NephCure

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: IgA Nephropathy, Focal Segmental Glomerulosclerosis, C3 Glomerulopathy ...

https://rarediseases.org/es/organizations/nephcure-kidney-international-inc/

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Nephraware

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/nephraware/

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NET (Neuroendocrine Tumor) Research Foundation

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Pancreatic Neuroendocrine Neoplasms (pNENs), Carcinoid Syndrome, Pheochromocytoma/Paraganglioma ...

https://rarediseases.org/es/organizations/net-neuroendocrine-tumor-research-foundation/

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Neuroacanthocytosis Advocacy USA, Inc.

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Neuroacanthocytosis

https://rarediseases.org/es/organizations/neuroacanthocytosis-advocacy-usa-inc/

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Neuroblastoma Children’s Cancer Society

Teléfono: 847-605-1245 Correo electrónico: [email protected] Fax: 847-605-0705

Enfermedades raras relacionadas: Neuroblastoma

https://rarediseases.org/es/organizations/neuroblastoma-childrens-cancer-society/

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Neurofibromatosis Clinic at Texas Children’s Hospital

Teléfono: 832-822-4280 Correo electrónico: [email protected]

Enfermedades raras relacionadas: Neurofibromatosis 1

https://rarediseases.org/es/organizations/neurofibromatosis-clinic-at-texas-childrens-hospital/

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Neurofibromatosis Midwest

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/neurofibromatosis-midwest/

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Neurofibromatosis Network

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: NF2-Related Schwannomatosis, Neurofibromatosis 1, Schwannomatosis relacionada con NF2 ...

https://rarediseases.org/es/organizations/neurofibromatosis-network/

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Neurofibromatosis Northeast

Correo electrónico: [email protected]

Enfermedades raras relacionadas: NF2-Related Schwannomatosis, Neurofibromatosis 1, Schwannomatosis relacionada con NF2 ...

https://rarediseases.org/es/organizations/neurofibromatosis-northeast/

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Neurogenetic Surgery Center at Massachusetts General Hospital

Teléfono: 617-726-5732 Correo electrónico: [email protected] Fax: 617-724-9620

https://rarediseases.org/es/organizations/neurogenetic-surgery-center-at-massachusetts-general-hospital/

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Neuroleptic Malignant Syndrome Information Service, Inc.

Teléfono: 607-674-7920 Correo electrónico: [email protected] Fax: 607-674-7910

Enfermedades raras relacionadas: Malignant Hyperthermia

https://rarediseases.org/es/organizations/neuroleptic-malignant-syndrome-information-service-inc/

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Neurological Institute of New York

Teléfono: 212-305-2500 Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/neurological-institute-of-new-york/

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Neuromuscular Disease Foundation (NDF)

Teléfono: 310-721-1605 Correo electrónico: [email protected]

Enfermedades raras relacionadas: GNE Myopathy

https://rarediseases.org/es/organizations/neuromuscular-disease-foundation-ndf/

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Neuropathy Association

https://rarediseases.org/es/organizations/neuropathy-association/

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Neuropathy Trust

https://rarediseases.org/es/organizations/neuropathy-trust/

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Neuroscience Research Australia

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/neuroscience-research-australia/

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Nevada PEP

Teléfono: 702-388-8899 Correo electrónico: [email protected] Fax: 702-388-2966

https://rarediseases.org/es/organizations/nevada-pep/

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Nevus Network

Teléfono: 419-853-4525 Correo electrónico: [email protected] Fax: 405-377-3403

Enfermedades raras relacionadas: Giant Congenital Melanocytic Nevus, Nevus Sebaceus Syndrome, Megalencephaly-Capillary Malformation, ...

https://rarediseases.org/es/organizations/nevus-network/

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Nevus Outreach Inc

Miembro NORD

Teléfono: 918-331-0595 Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/nevus-outreach-inc-2/

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Nevus Outreach, Inc.

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Giant Congenital Melanocytic Nevus, Nevus Sebaceus Syndrome, Blue Rubber Bleb Nevus syndrome ...

https://rarediseases.org/es/organizations/nevus-outreach-inc/

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New Directions for People with Disabilities, Inc.

Teléfono: 805-967-2841 Correo electrónico: [email protected] Fax: 805-964-7344

https://rarediseases.org/es/organizations/new-directions-for-people-with-disabilities-inc/

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New England Consortium of Metabolic Programs

Teléfono: 617-355-7346 Correo electrónico: [email protected] Fax: 617-730-0907

https://rarediseases.org/es/organizations/new-england-consortium-of-metabolic-programs/

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New England Hemophilia Association

Teléfono: 781-326-7645 Correo electrónico: [email protected] Fax: 781-329-5122

https://rarediseases.org/es/organizations/new-england-hemophilia-association/

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New England Regional Genetics Group

Correo electrónico: [email protected] Fax: 781-444-0127

https://rarediseases.org/es/organizations/new-england-regional-genetics-group/

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New Horizons Un-Limited, Inc.

Teléfono: 414-299-0124 Correo electrónico: [email protected] Fax: 414-347-1977

Enfermedades raras relacionadas: MECP2 Duplication Syndrome, Collagen Type VI-Related Disorders, Spinal Muscular Atrophy, ...

https://rarediseases.org/es/organizations/new-horizons-un-limited-inc/

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New Jersey Self-Help Clearinghouse

Teléfono: 973-989-1122 Correo electrónico: [email protected] Fax: 973-989-1159

https://rarediseases.org/es/organizations/new-jersey-self-help-clearinghouse/

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New York State Office for People with Developmental Disabilities

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/new-york-state-office-for-people-with-developmental-disabilities/

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Newlife Foundation for Disabled Children

Teléfono: 154-346-2777 Correo electrónico: [email protected] Fax: 154-346-8999

Enfermedades raras relacionadas: Amniotic Band Syndrome

https://rarediseases.org/es/organizations/newlife-foundation-for-disabled-children/

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Next Generation of Cystinosis

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Cystinosis, Cistinosis

https://rarediseases.org/es/organizations/next-generation-of-cystinosis/

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NF-2 Sharing Network

Teléfono: 410-461-2245 Fax: 410-461-2245

Enfermedades raras relacionadas: NF2-Related Schwannomatosis, Schwannomatosis relacionada con NF2

https://rarediseases.org/es/organizations/nf-2-sharing-network/

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NF2 BioSolutions

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: NF2-Related Schwannomatosis, Schwannomatosis relacionada con NF2

https://rarediseases.org/es/organizations/nf2-biosolutions/

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Ngly1.org

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/ngly1-org/

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NH Rare Disorders Association

https://rarediseases.org/es/organizations/nh-rare-disorders-association/

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NICER Foundation

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Narcolepsy

https://rarediseases.org/es/organizations/nicer-foundation/

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NICHD Brain and Tissue Bank for Developmental Disorders

Teléfono: 410-706-1755 Correo electrónico: [email protected] Fax: 410-706-2128

https://rarediseases.org/es/organizations/nichd-brain-and-tissue-bank-for-developmental-disorders/

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Niemann-Pick Disease Group (UK)

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Niemann Pick Disease Type C

https://rarediseases.org/es/organizations/niemann-pick-disease-group-uk/

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NIH/Child Health and Human Development – Section on Endocrinology and Genetics

Teléfono: 301-402-1998 Correo electrónico: [email protected] Fax: 301-402-2984

Enfermedades raras relacionadas: Rabson-Mendenhall Syndrome, Síndrome de Rabson-Mendenhall

https://rarediseases.org/es/organizations/nih-child-health-and-human-development-section-on-endocrinology-and-genetics/

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NIH/Clinical Trials

https://rarediseases.org/es/organizations/nih-clinical-trials/

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NIH/Consensus Development Program

Teléfono: 888-644-2667 Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/nih-consensus-development-program/

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NIH/Institute on Alcohol Abuse and Alcoholism

Teléfono: 301-443-3860 Correo electrónico: [email protected] Fax: 301-443-7043

Enfermedades raras relacionadas: Fetal Alcohol Syndrome, Wernicke-Korsakoff Syndrome

https://rarediseases.org/es/organizations/nih-institute-on-alcohol-abuse-and-alcoholism/

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NIH/National Asthma Education and Prevention Program

Teléfono: 301-592-8573 Correo electrónico: [email protected] Fax: 301-592-8563

https://rarediseases.org/es/organizations/nih-national-asthma-education-and-prevention-program/

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