Myositis Support and Understanding Association
Miembro NORD
Enfermedades raras relacionadas: Dermatomyositis, Sporadic Inclusion Body Myositis, Polymyositis and Necrotizing Myopathy ...
https://rarediseases.org/es/organizations/myositis-support-and-understanding-association/
Ver perfil >
Myositis Support Group
Teléfono: 238-044-9708 Fax: 238-039-6402
Enfermedades raras relacionadas: Antisynthetase Syndrome, Polymyositis and Necrotizing Myopathy, Dermatomyositis ...
https://rarediseases.org/es/organizations/myositis-support-group/
Ver perfil >
Myositis Support Group at the Hospital for Special Surgery
Teléfono: 212-774-7623 Fax: 212-774-2333
Enfermedades raras relacionadas: Sporadic Inclusion Body Myositis
https://rarediseases.org/es/organizations/myositis-support-group-at-the-hospital-for-special-surgery/
Ver perfil >
Myotonic Dystrophy Foundation
Miembro NORD
Teléfono: 415-800-7777
Enfermedades raras relacionadas: Myotonic Dystrophy
https://rarediseases.org/es/organizations/myotonic-dystrophy-foundation/
Ver perfil >
Myotonic Dystrophy Support Group
Teléfono: 115-987-5869
Enfermedades raras relacionadas: Myotonic Dystrophy
https://rarediseases.org/es/organizations/myotonic-dystrophy-support-group/
Ver perfil >
Myotubular Trust
Enfermedades raras relacionadas: Centronuclear Myopathy, X-Linked Myotubular Myopathy
https://rarediseases.org/es/organizations/myotubular-trust/
Ver perfil >
Myrovlytis Trust
Enfermedades raras relacionadas: Hereditary Leiomyomatosis and Renal Cell Carcinoma, Birt-Hogg-Dubé Syndrome, Síndrome de Birt-Hogg-Dubé ...
https://rarediseases.org/es/organizations/myrovlytis-trust/
Ver perfil >
naevus global
https://rarediseases.org/es/organizations/naevus-global/
Ver perfil >
Nail Patella Syndrome Worldwide
Teléfono: 703-626-6852
Enfermedades raras relacionadas: Nail Patella Syndrome
https://rarediseases.org/es/organizations/nail-patella-syndrome-worldwide/
Ver perfil >
Nail-Patella Syndrome (UK)
Teléfono: 800-121-8298
https://rarediseases.org/es/organizations/nail-patella-syndrome-uk/
Ver perfil >
Naitbabies
Enfermedades raras relacionadas: Fetal and Neonatal Alloimmune Thrombocytopenia, Trombocitopenia aloinmune fetal y neonatal
https://rarediseases.org/es/organizations/naitbabies/
Ver perfil >
Narcolepsy Network
Miembro NORD
Enfermedades raras relacionadas: Narcolepsy
https://rarediseases.org/es/organizations/narcolepsy-network/
Ver perfil >
Nathaniel Adamczyk Foundation
Enfermedades raras relacionadas: Acute Respiratory Distress Syndrome
https://rarediseases.org/es/organizations/nathaniel-adamczyk-foundation/
Ver perfil >
National Academy of Elder Law Attorneys, Inc.
Teléfono: 703-942-5711
https://rarediseases.org/es/organizations/national-academy-of-elder-law-attorneys-inc/
Ver perfil >
National Adrenal Diseases Foundation (NADF)
Miembro NORD
Enfermedades raras relacionadas: Autoimmune Polyendocrine Syndrome Type II, Autoimmune Polyglandular Syndrome Type 1, Pheochromocytoma/Paraganglioma, ...
https://rarediseases.org/es/organizations/national-adrenal-diseases-foundation-nadf/
Ver perfil >
National Alliance for Hispanic Health
Teléfono: 202-387-5000 Fax: 202-265-8027
https://rarediseases.org/es/organizations/national-alliance-for-hispanic-health/
Ver perfil >
National Alliance on Mental Illness
Enfermedades raras relacionadas: Neurasthenia, XYY Syndrome, Trichotillomania, ...
https://rarediseases.org/es/organizations/national-alliance-on-mental-illness/
Ver perfil >
National Alopecia Areata Foundation
https://rarediseases.org/es/organizations/national-alopecia-areata-foundation/
Ver perfil >
National ALS Registry
Teléfono: 877-442-9719
Enfermedades raras relacionadas: Amyotrophic Lateral Sclerosis, Esclerosis lateral amiotrófica
https://rarediseases.org/es/organizations/national-als-registry/
Ver perfil >
National Amputation Foundation, Inc.
Teléfono: 516-887-3600 Fax: 516-887-3667
https://rarediseases.org/es/organizations/national-amputation-foundation-inc/
Ver perfil >
National Ankylosing Spondylitis Society
Teléfono: 208-948-9117 Fax: 208-940-7736
Enfermedades raras relacionadas: Ankylosing Spondylitis
https://rarediseases.org/es/organizations/national-ankylosing-spondylitis-society/
Ver perfil >
National Aphasia Association
Teléfono: 212-267-2814 Fax: 212-267-2812
Enfermedades raras relacionadas: L1 Syndrome, Apraxia, Landau Kleffner Syndrome ...
https://rarediseases.org/es/organizations/national-aphasia-association/
Ver perfil >
National Arts & Disability Center
Teléfono: 310-794-1141 Fax: 310-794-1143
https://rarediseases.org/es/organizations/national-arts-disability-center/
Ver perfil >
National Association for Adults with Special Learning Needs
Fax: 614-392-1559
https://rarediseases.org/es/organizations/national-association-for-adults-with-special-learning-needs/
Ver perfil >
National Association for Colitis & Crohn’s Disease (UK)
Teléfono: 845-130-2233
https://rarediseases.org/es/organizations/national-association-for-colitis-crohns-disease-uk/
Ver perfil >
National Association for Continence
Teléfono: 843-377-0900 Fax: 342-377-0905
Enfermedades raras relacionadas: Binswanger Disease, Bladder Exstrophy-Epispadias-Cloacal Exstrophy Complex, Enfermedad de Binswanger ...
https://rarediseases.org/es/organizations/national-association-for-continence/
Ver perfil >
National Association for the Dually Diagnosed
Teléfono: 845-331-4336 Fax: 845-331-4569
https://rarediseases.org/es/organizations/national-association-for-the-dually-diagnosed/
Ver perfil >
National Association for the Education of Young Children
Teléfono: 202-232-8777 Fax: 202-328-1846
https://rarediseases.org/es/organizations/national-association-for-the-education-of-young-children/
Ver perfil >
National Association of Hospital Hospitality Houses, Inc.
Teléfono: 828-253-1188 Fax: 828-253-8082
https://rarediseases.org/es/organizations/national-association-of-hospital-hospitality-houses-inc/
Ver perfil >
National Association of Laryngectomee Clubs (UK)
Teléfono: 207-730-8585 Fax: 207-730-8584
https://rarediseases.org/es/organizations/national-association-of-laryngectomee-clubs-uk/
Ver perfil >
National Association of Protection and Advocacy Systems
Teléfono: 202-408-9514 Fax: 202-408-9520
https://rarediseases.org/es/organizations/national-association-of-protection-and-advocacy-systems/
Ver perfil >
National Association of Psychiatric Health Systems
Teléfono: 202-393-6700 Fax: 202-783-6041
https://rarediseases.org/es/organizations/national-association-of-psychiatric-health-systems/
Ver perfil >
National Association of State Mental Health Program Directors
Teléfono: 703-739-9333 Fax: 703-548-9517
https://rarediseases.org/es/organizations/national-association-of-state-mental-health-program-directors/
Ver perfil >
National Association of the Deaf
Teléfono: 301-587-1788 Fax: 301-587-1791
Enfermedades raras relacionadas: Pendred Syndrome, Auditory Neuropathy Spectrum Disorder, Camurati-Engelmann Disease, ...
https://rarediseases.org/es/organizations/national-association-of-the-deaf/
Ver perfil >
National Ataxia Foundation
Miembro NORD
Enfermedades raras relacionadas: Subacute Cerebellar Degeneration, Leukoencephalopathy with Brain Stem and Spinal Cord Involvement and Lactate Elevation, Spinocerebellar Ataxia with Axonal Neuropathy, ...
https://rarediseases.org/es/organizations/national-ataxia-foundation/
Ver perfil >
National Autistic Society
https://rarediseases.org/es/organizations/national-autistic-society/
Ver perfil >
National Axial Spondyloarthritis Society
Enfermedades raras relacionadas: Ankylosing Spondylitis
https://rarediseases.org/es/organizations/national-axial-spondyloarthritis-society/
Ver perfil >
National Batten Disease Registry
Teléfono: 718-494-5201 Fax: 718-982-6346
Enfermedades raras relacionadas: Juvenile CLN3 Disease
https://rarediseases.org/es/organizations/national-batten-disease-registry/
Ver perfil >
National Bleeding Disorders Foundation
Miembro NORD
Enfermedades raras relacionadas: Factor X Deficiency, Factor XI Deficiency, Factor VII Deficiency, ...
https://rarediseases.org/es/organizations/national-hemophilia-foundation/
Ver perfil >
National Blood Clot Alliance
Enfermedades raras relacionadas: Severe hereditary thrombophilia due to congenital protein S deficiency, Protein C Deficiency, Asherson’s Syndrome, ...
https://rarediseases.org/es/organizations/national-blood-clot-alliance/
Ver perfil >
National Board For Respiratory Care, Inc.
Teléfono: 913-895-4900 Fax: 913-895-4650
https://rarediseases.org/es/organizations/national-board-for-respiratory-care-inc/
Ver perfil >
National Bone Marrow Transplant Link
Miembro NORD
Enfermedades raras relacionadas: Graft versus Host Disease
https://rarediseases.org/es/organizations/national-bone-marrow-transplant-link/
Ver perfil >
National Brain Tumor Society (NBTS)
Miembro NORD
Enfermedades raras relacionadas: Primary Central Nervous System Lymphoma, Meningioma, Craniopharyngioma, ...
https://rarediseases.org/es/organizations/national-brain-tumor-society-nbts/
Ver perfil >
National Breast Cancer Coalition
Teléfono: 202-296-7477 Fax: 202-296-7477
Enfermedades raras relacionadas: Hereditary Breast and Ovarian Cancer Syndrome
https://rarediseases.org/es/organizations/national-breast-cancer-coalition/
Ver perfil >
National Cancer Institute
Teléfono: 301-435-3848
Enfermedades raras relacionadas: Perivascular Epithelioid Cell Neoplasm, Bannayan-Riley-Ruvalcaba Syndrome, Acute Promyelocytic Leukemia, ...
https://rarediseases.org/es/organizations/national-cancer-institute/
Ver perfil >
National Captioning Institute
Teléfono: 703-917-7600 Fax: 703-917-9853
https://rarediseases.org/es/organizations/national-captioning-institute/
Ver perfil >
National Center for Chromosome Inversions
Teléfono: 386-752-1548
Enfermedades raras relacionadas: Cat Eye Syndrome
https://rarediseases.org/es/organizations/national-center-for-chromosome-inversions/
Ver perfil >
National Center for Environmental Health Strategies, Inc.
Teléfono: 856-429-5358 Fax: 856-816-8820
Enfermedades raras relacionadas: Formaldehyde Poisoning
https://rarediseases.org/es/organizations/national-center-for-environmental-health-strategies-inc/
Ver perfil >
National Center for Health Statistics
Teléfono: 301-436-8500
https://rarediseases.org/es/organizations/national-center-for-health-statistics/
Ver perfil >
National Center for Learning Disabilities
Teléfono: 212-545-7510 Fax: 212-545-9665
Enfermedades raras relacionadas: 47, XXX (Trisomy X), Gerstmann Syndrome, Beta-Mannosidosis ...
https://rarediseases.org/es/organizations/national-center-for-learning-disabilities/
Ver perfil >
  2. 1
  3. ...
  4. 27
  5. 28
  6. 29
  7. 30
  8. 31
  9. 32
  10. 33
  11. ...
  12. 48