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Home / Patient Organizations / Patient Organizations
NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
Teléfono: 301-495-4484 Correo electrónico: [email protected] Fax: 301-718-6366
Enfermedades raras relacionadas: Chanarin-Dorfman Syndrome, Síndrome trico-dento-óseo, Síndrome Periódico Asociado al Receptor del Factor de Necrosis Tumoral (TRAPS), ...
https://rarediseases.org/es/organizations/nih-national-institute-of-arthritis-and-musculoskeletal-and-skin-diseases/
Ver perfil >
NIH/National Institute of Child Health and Human Development
Correo electrónico: [email protected] Fax: 866-760-5947
Enfermedades raras relacionadas: Albinismo ocular con sordera neurosensorial tardía, Embolia de líquido amniótico, Síndrome de Weismann-Netter-Stuhl, ...
https://rarediseases.org/es/organizations/nih-national-institute-of-child-health-and-human-development/
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NIH/National Institute of Dental and Craniofacial Research
Teléfono: 301-496-4261 Correo electrónico: [email protected] Fax: 301-480-4098
Enfermedades raras relacionadas: Haim-Munk Syndrome, Síndrome trico-dento-óseo, Síndrome progeroide de Fontaine, ...
https://rarediseases.org/es/organizations/nih-national-institute-of-dental-and-craniofacial-research/
Ver perfil >
NIH/National Institute of Diabetes, Digestive & Kidney Diseases
Teléfono: 301-496-3583 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de la arteria mesentérica superior, Neoplasia endocrina múltiple tipo 2, Deficiencia de Piruvato Carboxilasa, ...
https://rarediseases.org/es/organizations/nih-national-institute-of-diabetes-digestive-kidney-diseases/
Ver perfil >
NIH/National Institute of General Medical Sciences
Teléfono: 301-496-7301 Correo electrónico: [email protected] Fax: 301-402-0224
Enfermedades raras relacionadas: Pseudocholinesterase Deficiency, Malignant Hyperthermia, Gangrena de Fournier ...
https://rarediseases.org/es/organizations/nih-national-institute-of-general-medical-sciences/
Ver perfil >
NIH/National Institute of Mental Health
Teléfono: 301-443-4513 Correo electrónico: [email protected] Fax: 301-443-4279
Enfermedades raras relacionadas: Síndrome ATR-16, Discinesia tardía, Kleine-Levin Syndrome, ...
https://rarediseases.org/es/organizations/nih-national-institute-of-mental-health/
Ver perfil >
NIH/National Institute of Neurological Disorders and Stroke
Teléfono: 301-496-5751 Fax: 301-402-2186
Enfermedades raras relacionadas: Leucodistrofia metacromática, Paraplejía espástica 52, Paraplejía espástica 47, ...
https://rarediseases.org/es/organizations/nih-national-institute-of-neurological-disorders-and-stroke/
Ver perfil >
NIH/National Institute on Aging
Teléfono: 301-496-1752 Correo electrónico: [email protected] Fax: 301-496-1072
Enfermedades raras relacionadas: Subacute Cerebellar Degeneration, Frontotemporal Degeneration, Alzheimer’s Disease, ...
https://rarediseases.org/es/organizations/nih-national-institute-on-aging/
Ver perfil >
NIH/National Institute on Deafness and Other Communication Disorders
Teléfono: 301-402-0900 Correo electrónico: [email protected] Fax: 301-907-8830
Enfermedades raras relacionadas: Hereditary Hyperphosphatasia, Síndrome de Treacher Collins, Síndrome de Klüver-Bucy, ...
https://rarediseases.org/es/organizations/nih-national-institute-on-deafness-and-other-communication-disorders/
Ver perfil >
NIH/National Institute on Drug Abuse
Teléfono: 301-443-1124 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/nih-national-institute-on-drug-abuse/
Ver perfil >
NIH/National Institutes of Health
Teléfono: 301-496-4000 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Chilaiditi’s Syndrome
https://rarediseases.org/es/organizations/nih-national-institutes-of-health/
Ver perfil >
NIH/National Kidney and Urologic Diseases Information Clearinghouse
Correo electrónico: [email protected] Fax: 703-738-4929
Enfermedades raras relacionadas: Cromosoma 4 en anillo, Nefropatía por IgA, Glomeruloesclerosis Focal y Segmentaria, ...
https://rarediseases.org/es/organizations/nih-national-kidney-and-urologic-diseases-information-clearinghouse/
Ver perfil >
NIH/NCATS/Division of Rare Diseases Research Innovation
Correo electrónico: [email protected] Fax: 301-480-9655
https://rarediseases.org/es/organizations/nih-office-of-rare-disease-research/
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NIH/Office of Research on Women’s Health
Teléfono: 301-402-1770 Correo electrónico: [email protected] Fax: 301-402-1798
Enfermedades raras relacionadas: Catamenial Pneumothorax, Hyperemesis Gravidarum
https://rarediseases.org/es/organizations/nih-office-of-research-on-womens-health/
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NIH/Recombinant DNA Program
Teléfono: 301-496-9838 Correo electrónico: [email protected] Fax: 301-496-9839
https://rarediseases.org/es/organizations/nih-recombinant-dna-program/
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NKH International Family Network
Teléfono: 407-484-8479 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Nonketotic Hyperglycinemia
https://rarediseases.org/es/organizations/nkh-international-family-network/
Ver perfil >
NMO BRASIL | Brazilian Association of Patients with Neuromyelitis Optica and its Spectrum Disorders
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/nmo-brasil-brazilian-association-of-patients-with-neuromyelitis-optica-and-its-spectrum-disorders/
Ver perfil >
No Stomach For Cancer
https://rarediseases.org/es/organizations/no-stomach-for-cancer/
Ver perfil >
Noah’s Hope
https://rarediseases.org/es/organizations/noahs-hope/
Ver perfil >
Noah’s Hope–Hope4Bridget Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/noahs-hope-hope4bridget-foundation/
Ver perfil >
Noonan Syndrome Foundation
Enfermedades raras relacionadas: Síndrome de Noonan
https://rarediseases.org/es/organizations/noonan-syndrome-foundation/
Ver perfil >
NORD Membership
Miembro NORD
https://rarediseases.org/es/organizations/nord-membership/
Ver perfil >
NORD’s® Rare Cancer Coalition® (RCC)
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/nords-rare-cancer-coalition-rcc-2/
Ver perfil >
NORD’s™ Rare Cancer Coalition™ (RCC)
Enfermedades raras relacionadas: Leiomiomatosis hereditaria y carcinoma de células renales, Blastoma pleuropulmonar, Linfoma gástrico primario, ...
https://rarediseases.org/es/organizations/nords-rare-cancer-coalition-rcc/
Ver perfil >
Norrie Disease Association
Teléfono: 708-620-4556 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Norrie Disease
https://rarediseases.org/es/organizations/norrie-disease-association/
Ver perfil >
NORSE Institute
Enfermedades raras relacionadas: NORSE (New Onset Refractory Status Epilepticus) and FIRES (Febrile Infection-Related Epilepsy Syndrome)
https://rarediseases.org/es/organizations/norse-institute/
Ver perfil >
North American Hair Research Society
Teléfono: 336-776-2768 Correo electrónico: [email protected] Fax: 336-776-7732
Enfermedades raras relacionadas: Trichotillomania, Alopecia Areata, Cicatricial Alopecia ...
https://rarediseases.org/es/organizations/north-american-hair-research-society/
Ver perfil >
North American Menopause Society
Teléfono: 216-844-8748 Correo electrónico: [email protected] Fax: 216-844-8708
https://rarediseases.org/es/organizations/north-american-menopause-society/
Ver perfil >
North American Riding for the Handicapped Association
Teléfono: 303-452-1212 Correo electrónico: [email protected] Fax: 303-252-4610
https://rarediseases.org/es/organizations/north-american-riding-for-the-handicapped-association/
Ver perfil >
Northwest Parkinson’s Foundation
Teléfono: 206-748-9481 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/northwest-parkinsons-foundation/
Ver perfil >
Northwest Regional Self-Help Clearinghouse
Teléfono: 503-222-5555 Correo electrónico: [email protected] Fax: 503-499-4302
https://rarediseases.org/es/organizations/northwest-regional-self-help-clearinghouse/
Ver perfil >
Northwest Sarcoma Foundation
Teléfono: 503-954-5740 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Sarcoma alveolar de partes blandas, Leiomyosarcoma, Mesenchymal Chondrosarcoma, ...
https://rarediseases.org/es/organizations/northwest-sarcoma-foundation/
Ver perfil >
Northwestern University Feinberg School of Medicine
Teléfono: 312-926-5427 Correo electrónico: [email protected] Fax: 312-926-7404
Enfermedades raras relacionadas: Ictiosis epidermolítica
https://rarediseases.org/es/organizations/northwestern-university-feinberg-school-of-medicine/
Ver perfil >
Norwegian Porphyria Centre
Teléfono: 475-597-3050 Correo electrónico: [email protected] Fax: 475-597-3115
Enfermedades raras relacionadas: Hepatoerythropoietic Porphyria, X-Linked Protoporphyria, Hereditary Coproporphyria, ...
https://rarediseases.org/es/organizations/norwegian-porphyria-centre/
Ver perfil >
NOTA
https://rarediseases.org/es/organizations/nota/
Ver perfil >
Nr2F1 Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/nr2f1-foundation/
Ver perfil >
NTM Info & Research, Inc.
Miembro NORD
Teléfono: 305-901-4686 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Enfermedad Pulmonar por Micobacterias No Tuberculosas (NTM)
https://rarediseases.org/es/organizations/ntm-info-research-inc/
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https://rarediseases.org/es/organizations/null/
Ver perfil >
NVACP (Dutch Federation of Addison and Cushing Patients and CAH and Conn)
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/nvacp-dutch-federation-of-addison-and-cushing-patients-and-cah-and-conn/
Ver perfil >
Nystagmus Network (UK)
Teléfono: 292-045-4242 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/nystagmus-network-uk/
Ver perfil >
Obesity Medicine Association
Teléfono: 303-770-2526 Correo electrónico: [email protected] Fax: 303-779-4834
https://rarediseases.org/es/organizations/obesity-medicine-association/
Ver perfil >
OBGYN.net: The Obstetrics & Gynecology Network
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/obgyn-net-the-obstetrics-gynecology-network/
Ver perfil >
Obsessive Compulsive Anonymous
Teléfono: 516-739-0662
https://rarediseases.org/es/organizations/obsessive-compulsive-anonymous/
Ver perfil >
Ocular Immunology and Uveitis Foundation
Teléfono: 781-647-1431 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Posterior Uveitis, Pars Planitis, Síndrome de Behçet ...
https://rarediseases.org/es/organizations/ocular-immunology-and-uveitis-foundation/
Ver perfil >
Ocular Melanoma Foundation (OMF)
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Melanoma ocular
https://rarediseases.org/es/organizations/ocular-melanoma-foundation-omf/
Ver perfil >
Office For Rare Conditions Glasgow
https://rarediseases.org/es/organizations/office-for-rare-conditions-glasgow/
Ver perfil >
Office of Disability Employment Policy
https://rarediseases.org/es/organizations/office-of-disability-employment-policy/
Ver perfil >
Office of Fair Housing/Equal Opportunity
Teléfono: 202-275-0848 Fax: 202-275-0779
https://rarediseases.org/es/organizations/office-of-fair-housing-equal-opportunity/
Ver perfil >
Office of Minority Health
Teléfono: 240-453-2882 Correo electrónico: [email protected] Fax: 240-453-2883
https://rarediseases.org/es/organizations/office-of-minority-health/
Ver perfil >
Office of Special Education and Rehabilitative Services
Teléfono: 202-272-2004 Fax: 202-205-9252
https://rarediseases.org/es/organizations/office-of-special-education-and-rehabilitative-services/
Ver perfil >
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