Correo electrónico:
[email protected]
Fax: 866-464-3616
https://rarediseases.org/es/organizations/nih-national-center-for-complementary-and-alternative-medicine/
Enfermedades raras relacionadas:
Neuropathic/Nociplastic Ocular Pain, Neurotrophic Keratitis, COL4A1/A2-Related Disorders, ...
https://rarediseases.org/es/organizations/nih-national-eye-institute/
Enfermedades raras relacionadas:
Short QT Syndrome, Recurrent Pericarditis, Pediatric Non-Small Cell Lung Cancer, ...
https://rarediseases.org/es/organizations/nih-national-heart-lung-and-blood-institute/
Enfermedades raras relacionadas:
Warm Autoimmune Hemolytic Anemia, Cold Agglutinin Disease, X linked Lymphoproliferative Syndrome, ...
https://rarediseases.org/es/organizations/nih-national-heart-lung-and-blood-institute-hematology-branch/
Teléfono:
301-402-0911
Fax: 301-402-2218
Enfermedades raras relacionadas:
Propionic Acidemia, Oculocerebrorenal syndrome
https://rarediseases.org/es/organizations/nih-national-human-genome-research-institute/
Enfermedades raras relacionadas:
Follicular Lymphoma, Mucormycosis, Gerstmann-Sträussler-Scheinker Disease, ...
https://rarediseases.org/es/organizations/nih-national-institute-of-allergy-and-infectious-diseases/
Enfermedades raras relacionadas:
Chanarin-Dorfman Syndrome, Congenital Myasthenic Syndromes, Arterial Tortuosity Syndrome, ...
https://rarediseases.org/es/organizations/nih-national-institute-of-arthritis-and-musculoskeletal-and-skin-diseases/
Correo electrónico:
[email protected]
Fax: 866-760-5947
Enfermedades raras relacionadas:
Amniotic Fluid Embolism, PHACE Syndrome, Sudden Unexplained Death in Childhood, ...
https://rarediseases.org/es/organizations/nih-national-institute-of-child-health-and-human-development/
Enfermedades raras relacionadas:
Haim-Munk Syndrome, Laband Syndrome, Papillon Lefèvre Syndrome, ...
https://rarediseases.org/es/organizations/nih-national-institute-of-dental-and-craniofacial-research/
Teléfono:
301-496-3583
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Liddle Syndrome, Hepatitis D, Pediatric Crohn’s Disease, ...
https://rarediseases.org/es/organizations/nih-national-institute-of-diabetes-digestive-kidney-diseases/
Enfermedades raras relacionadas:
Fournier Gangrene, Pseudocholinesterase Deficiency, Malignant Hyperthermia, ...
https://rarediseases.org/es/organizations/nih-national-institute-of-general-medical-sciences/
Enfermedades raras relacionadas:
ATR-16 Syndrome, Alpha Thalassemia X-linked Intellectual Disability Syndrome, Kleine-Levin Syndrome, ...
https://rarediseases.org/es/organizations/nih-national-institute-of-mental-health/
Teléfono:
301-496-5751
Fax: 301-402-2186
Enfermedades raras relacionadas:
MOG Antibody Disease, Aromatic L-Amino Acid Decarboxylase Deficiency, Miller Fisher Syndrome, ...
https://rarediseases.org/es/organizations/nih-national-institute-of-neurological-disorders-and-stroke/
Enfermedades raras relacionadas:
Subacute Cerebellar Degeneration, Frontotemporal Degeneration, Binswanger Disease, ...
https://rarediseases.org/es/organizations/nih-national-institute-on-aging/
Enfermedades raras relacionadas:
Hereditary Hyperphosphatasia, L1 Syndrome, Recurrent Respiratory Papillomatosis, ...
https://rarediseases.org/es/organizations/nih-national-institute-on-deafness-and-other-communication-disorders/
Teléfono:
301-443-1124
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/nih-national-institute-on-drug-abuse/
Teléfono:
301-496-4000
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Chilaiditi’s Syndrome
https://rarediseases.org/es/organizations/nih-national-institutes-of-health/
Correo electrónico:
[email protected]
Fax: 703-738-4929
Enfermedades raras relacionadas:
Ring Chromosome 4, Focal Segmental Glomerulosclerosis, Autosomal Dominant Polycystic Kidney Disease, ...
https://rarediseases.org/es/organizations/nih-national-kidney-and-urologic-diseases-information-clearinghouse/
Correo electrónico:
[email protected]
Fax: 301-480-9655
https://rarediseases.org/es/organizations/nih-office-of-rare-disease-research/
Enfermedades raras relacionadas:
Catamenial Pneumothorax, Hyperemesis Gravidarum
https://rarediseases.org/es/organizations/nih-office-of-research-on-womens-health/
Teléfono:
407-484-8479
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Nonketotic Hyperglycinemia
https://rarediseases.org/es/organizations/nkh-international-family-network/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/nmo-brasil-brazilian-association-of-patients-with-neuromyelitis-optica-and-its-spectrum-disorders/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/noahs-hope-hope4bridget-foundation/
Enfermedades raras relacionadas:
Noonan Syndrome, Síndrome de Noonan
https://rarediseases.org/es/organizations/noonan-syndrome-foundation/
Miembro NORD
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/nord-membership/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/nords-rare-cancer-coalition-rcc-2/
Enfermedades raras relacionadas:
Pleuropulmonary Blastoma, Gastrointestinal Stromal Tumors, Acute Promyelocytic Leukemia, ...
https://rarediseases.org/es/organizations/nords-rare-cancer-coalition-rcc/
Teléfono:
708-620-4556
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Norrie Disease
https://rarediseases.org/es/organizations/norrie-disease-association/
Enfermedades raras relacionadas:
NORSE (New Onset Refractory Status Epilepticus) and FIRES (Febrile Infection-Related Epilepsy Syndrome)
https://rarediseases.org/es/organizations/norse-institute/
Enfermedades raras relacionadas:
Trichotillomania, Alopecia Areata, Cicatricial Alopecia ...
https://rarediseases.org/es/organizations/north-american-hair-research-society/
Teléfono:
206-748-9481
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/northwest-parkinsons-foundation/
Teléfono:
503-954-5740
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Soft Tissue Sarcoma, Osteosarcoma, Leiomyosarcoma, ...
https://rarediseases.org/es/organizations/northwest-sarcoma-foundation/
Enfermedades raras relacionadas:
Epidermolytic Ichthyosis, Ictiosis epidermolítica
https://rarediseases.org/es/organizations/northwestern-university-feinberg-school-of-medicine/
Enfermedades raras relacionadas:
Hepatoerythropoietic Porphyria, X-Linked Protoporphyria, Hereditary Coproporphyria, ...
https://rarediseases.org/es/organizations/norwegian-porphyria-centre/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/nr2f1-foundation/
Miembro NORD
Teléfono:
305-901-4686
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Nontuberculous Mycobacterial Lung Disease
https://rarediseases.org/es/organizations/ntm-info-research-inc/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/nvacp-dutch-federation-of-addison-and-cushing-patients-and-cah-and-conn/
Teléfono:
292-045-4242
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/nystagmus-network-uk/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/obgyn-net-the-obstetrics-gynecology-network/
Teléfono:
781-647-1431
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Posterior Uveitis, Pars Planitis, Behçet’s Syndrome, ...
https://rarediseases.org/es/organizations/ocular-immunology-and-uveitis-foundation/
